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Anyone else out there with extremely high lipoprotein (a)?
Hi! I just found out that I have an extremely high lipoprotein (a) of 515 nmol/L. I'm terrified; it's that high. I'm 58 years old and my total cholesterol is 212. My LDL is 141, and my HDL is just 40. My cholesterol/HDL ratio is 5.3. Of course it's a long weekend and I may not be able to reach my doctor tomorrow. I have watched a couple of informational sessions online from various doctors discussing elevated LP(a), but no one mentions anything close to how high mine is. Is there anyone else out there with severely elevated Lp(a)? Thanking you in advance. Sue M.
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Thank you for your response. I see my heart doctor next week I will ask him. My lipo(a) is 581.4. The nurse said that was the highest she had ever seen. My Dr started me on Zetia, to lower cholesterol. My regular cholesterol is low under 100. Was just on
Rosuvastatin. never on what you mentioned Repatha. Really no cure for it. More cholesterol meds could even raise my lipo(a). !
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1 ReactionHi: my Lp(a) started at 185.7
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2 ReactionsHi Rosie, if you don't mind me asking what was your LP(a)? Mine has been checked three different times and reminds consistently around 93 or 94. I have been told that it remains fairly constant. What were you taking before repatha? I am very interested in repatha since you indicated lowered your LPA. Best of luck to you in your journey too lower the blood lipids.
Hi Rosie: last Fall my cardiologist added Repatha to my cholesterol lowering regimen, and while it lowered my LDL from 109 to 27, there was also a 60% decrease in my Lp(a), although to be fair, I started much lower than you.
I don’t believe Repatha is marketed for anything other than LDL reductions, it may be worth checking. Also, look into clinical trials (if you’re interested), as there are some out there specifically for Lp(a)
Hello @rosie66,
There have been some recent comments on this topic, since January of this year, from @dode @meryl59 @kjss @bitsygirl. Perhaps one of these members will respond to your posts. If not, just click on "Reply" under their post and type in your comment or question to them.
If you look under the first post of each discussion group you will see an oval shaped icon that says, "Oldest to Newest" with a drop-down arrow. By clicking on this you can arrange the posts from newest to oldest. That way you are aware of the more recent posts in the group. Each time, however, that you make this change it will automatically revert back to "oldest to newest."
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1 ReactionDoes this problem have any recent comments? Someplace else? This is 2 years old I tried but don’t think anyone is responding now.
Thanks.
Hi. My test number was 581.4 on 03/2024. Like yours a shock. I am 75. Like you were a few years ago, trying to figure it out. I hope that you will respond since you have been figuring out - now a few years. Thank You sdix.
Here is what I try to live by. I called it the three S’s. Salt, sugar and saturates. Limit all three. By sugars I mean added sugars - sugars in fruits and veggies are fine.
@csage1010csage1010 , Hi. I really don't know how to blog on a website, I hope this is working. You had said in a blog about 2 years ago now that you have really high numbers like I do. I have 581. I am really wondering how you are doing in these last 2 years, what you have found out about the situation.
Thank you, rosie66
This is an older blog, I hope the initiator found some solutions for high lipoprotein(a) - I wondered because I just found out my test results were also very high - 581, and I am a bit anxious on what that really means. What could help. Seems like some things maybe work, but actually they do not.