Anyone else out there with extremely high lipoprotein (a)?

Hi Rosie: last Fall my cardiologist added Repatha to my cholesterol lowering regimen, and while it lowered my LDL from 109 to 27, there was also a 60% decrease in my Lp(a), although to be fair, I started much lower than you.

I don’t believe Repatha is marketed for anything other than LDL reductions, it may be worth checking. Also, look into clinical trials (if you’re interested), as there are some out there specifically for Lp(a)

Hello @rosie66,

There have been some recent comments on this topic, since January of this year, from @dode @meryl59 @kjss @bitsygirl. Perhaps one of these members will respond to your posts. If not, just click on "Reply" under their post and type in your comment or question to them.

If you look under the first post of each discussion group you will see an oval shaped icon that says, "Oldest to Newest" with a drop-down arrow. By clicking on this you can arrange the posts from newest to oldest. That way you are aware of the more recent posts in the group. Each time, however, that you make this change it will automatically revert back to "oldest to newest."

Does this problem have any recent comments? Someplace else? This is 2 years old I tried but don’t think anyone is responding now.
Thanks.

Hi. My test number was 581.4 on 03/2024. Like yours a shock. I am 75. Like you were a few years ago, trying to figure it out. I hope that you will respond since you have been figuring out - now a few years. Thank You sdix.

Here is what I try to live by. I called it the three S’s. Salt, sugar and saturates. Limit all three. By sugars I mean added sugars - sugars in fruits and veggies are fine.

@csage1010csage1010 , Hi. I really don't know how to blog on a website, I hope this is working. You had said in a blog about 2 years ago now that you have really high numbers like I do. I have 581. I am really wondering how you are doing in these last 2 years, what you have found out about the situation.
Thank you, rosie66

This is an older blog, I hope the initiator found some solutions for high lipoprotein(a) - I wondered because I just found out my test results were also very high - 581, and I am a bit anxious on what that really means. What could help. Seems like some things maybe work, but actually they do not.

Hang in there , listen to your body and find some good drs and keep appointments
I got symptoms of HOCM at 52
Never had a clue but thankfully my cardio looked deeper after failing a stress test and ordered pacemaker/ defib.
Best of health

I just found this group and think it's very informative....I'm a 53 year old woman who was recently diagnosed with high lipo protein a (over 600), plus high triglyderides (224), HDL of 71 and LDL of 135. Until last summer, I'd never even heard of lipo protein A and wonder why it's not tested for and discussed more, since it sounds relatively common?

Regardless, what's even scarier to me is that we found out last summer that my 19 year old daughter also has high LPA and LDL levels...and she's a super fit Division 1 collegiate athlete who eats a pretty clean diet (lots of veggies and low fat protein). She's already on a statin, and has to have echos every five years. I guess it's good that we know and hopefully can do something about it, but it's terrifying to me. We also lost my mom at age 58 due to complications of a heart attack, and her father died at age 48 of his third heart attack, so we clearly know where it comes from.

My cardiologist hasn't given me any dietary guidelines as yet so I'm finding your comments interesting. I haven't gotten to read everyone's comments yet but it sounds like either low carb or vegan are the two best options. Wish me luck! And the same to you.
kjss

Wow! Thanks for posting that.