Extreme outer ear pain: What can it be?
Please….someone help me.
I’ve visited my allergist, an ear-nose-throat specialist and my own internist.
None of them have ever heard of my problem and don’t know how to help me.
Started approx 20 yrs ago, Every couple of months I would get an awful pain on one of my ears if I had been laying on it during the night. It would happen to either ear, whichever one I laid on.
To describe the pain. It is so intense that it wakes me. Pain is NOT inside the ear but around the edges of the entrance of it. It is so painful, I can’t touch it. It will be throbbing. It also hurts tremendously behind, towards the bottom back of the ear. Can’t touch that either. The only thing that will make it go away is when I then get up and stand and within approx 30 min it is gone. I even tested it by massaging behind the ear (once I could bear to touch it) and it seemed to make pain go away faster.
The last approx 3 years, I have no longer been able to even lay on either ear when in bed because now the pain will come every time. I have learned to sleep on my back. Sometimes I would still move onto my side during night, and wake up with pain.
For last 6 months, I’ve been having pressure and achy feeling around one of the ears, even while laying on my back. Then I started getting the pain even while sleeping on my back.
I am very much afraid that the day will come when I will no longer be able to lay down in my bed to go to sleep.
I am desperate to get to the bottom of this and perhaps for first time in 20 years be able to comfortably lay on my side in bed.
My ENT doctor said my ears are healthy …. i have no hearing loss.
This ear pain, however, is starting to affect my daily living, since I don’t seem to be able to get the restful sleep I need.
I will be forever grateful if someone could pinpoint this. thanks.
Interested in more discussions like this? Go to the Ear, Nose & Throat (ENT) Support Group.
May want to have lymph nodes in neck checked.
I suffered for 11 years of outer ear pain at night! It was a fluke how i discovered what 100% cured. I never new others suffered untill a friend told me there problem. I googled and was amazed at all the forums out there. This also cured my friend, thats why i am trying to share to all I can. For 11 years eveynight, i would wake up 1-3 times a night in excruciating pain. Would last 2-7 min after sitting up. Went to many doctors. No answer.
I went to a chiropractor for a horrible shoulder/neck pain. He mention i should by this pillow. $115.00 ! Ouch. I was desperate. Needless to say never helped my shoulder/neck. Just had to wait it out. But i did notice from first night no ear pain. Didnt think the pillow would have helped. Just thought it was a fluke. Days go buy, no ear pain. Of course i still dont think the pillow had anything to do with it. Just thought I grew out of it as things come and go. I was traveling, had to stay at a hotel. Low and behold 1st night ear pain! Woke up 3 times in excruciating pain. Suffered 4 more nights. Went home 1st night no pain! Needless to say bought a travel size. Bad thing is it has water it in. So be careful you you are flying. I have not been stopped at the airport yet. But you can always drain it first. I am not affiliated with the company what so ever! Want to make that clear. It is called the chiroflow pillow. Its been 7 years of no ear pain, except a few occasions when i forgot to bring it. After you forget it a few times, you learn to pack it first. Good thing is you can buy it alot cheaper on amazon for around $40.00. Please let me know if this works for anyone out there!!!!!
Hello @karenwithnomoreearpain, Welcome to Mayo Clinic connect. Thank you so much for sharing your experience. Others will find this information helpful.
@ellienewfan, have you tried this pillow? Do you have any questions for Karen?
Hello @karenwithnomoreearpain. Please tell us the name of this pillow and where we can buy it. Thanks for the info. @danavs.
Chiroflow, you can buy it on amazon now, around $40
FYI – read through the reviews before purchasing this one. Apparently the real Chiroflow pillows are only available through chiropractors and are not sold “online”. Even their official website refers you to a chiropractor that sells them with no way to order one directly. I don’t know how they could get away with using the name brand and logo if they aren’t real if that is the case. Just a good idea to research before buying.
My 1st one i bought was at chiropractor. My travel size on amazon. Same tag on both. Not sure how that works.
It’s called Relapsing Polychondritis. If your nose seems infected with it too. Also, can appear in other connective tissue. Can get biopsy of ear tissue which will confirm or not.
See ENT. Get ear biopsy to test for Relapsing Polychondritis.
It’s treated with Steroids, if that’s what it is.