Experience with FluBu4 ?

Thanks Lori, you and the Mayo connect got us through so much. Some pretty crazy times but well worth it. Thanks you are a gem. 😘❤️

@jeffhampton
I hope that your pain has subsided and you are back tearing up the turf running again. Best wishes- own the path of persistence!

@g4c I wish I could say I was running again. However, I’m still working on strength and stamina. Running has been a bit of a challenge. I walk a lot these days and working to get my walking pace under 14 minutes per mile. Getting close.

I am grateful to be alive and look a life much differently these days. There are still some down days but they continue to diminish. I am also grateful for your support and the rest of this group. As you know, the journey can be very interesting, challenging and even difficult at times.

My big picture view is one of my daughters cared enough to give me another chance. I owe it to her, my wife and other 3 daughters to do everything I can to thrive.

Thank you again for your support and guiding words.

@jeffhampton
It sounds as if you are moving in the right direction and what a great attitude. I totally understand that!! We’re in the bonus round. I wish you all the best.

@loribmt Checked into Barnes 2/3 after getting my new Trifusion line installed. Day -5 today, second doses of busulfan and fludarabine. So far so good. Still have energy and an appetite, no side effects yet.

@andreak7 So far so good…reminds me of the joke my husband tells of a guy falling off a 20 story building. He got to the 10th floor and yells, so far so good. 😂

It may take a week before you start feeling the side effects, much like your chemo for AML. But I think I mentioned in a previous reply that it will leave you feeling much more fatigued and possibly nauseated than with your other chemo…let’s say the lows are lower for a few days. So hang in there! Sleep will be your best friend for during that time. Once the cells engraft there is a steady upward recovery.

So, today is Day -6? That’s customarily a day of rest and pushing fluids! Then tomorrow, Day 0, is your new Re-Birthday! You officially get to celebrate two birthdays every year from now on. ☺️

Hi @andreak78 …just checking in. By my reckoning, yesterday (Feb 10) was your Day 0~transplant day! I hope you’re doing well…it’s all recovery from here! Hugs.

@andreak78 Hi Andrea. I wanted to follow up to see how you’re feeling. You’re a couple of weeks post BMT transplant and should be coming around from the dark side of the moon now…that’s how I termed it. The first couple of weeks can be less than pleasant. Are you starting to regain some strength and stamina?

@loribmt I was actually discharged the day you sent this! That was Day 17. The mouth and throat sores were terrible, but I made it through. Nausea, vomiting and diarrhea were harder than other chemo stints also. I had two additional doses of chemo on days 3 & 4. That is a good term- coming around the dark side of the moon. I lost my taste buds for several weeks and they're just now starting to return. Tomorrow I go in for labs, doctor visit, and infusion of abatacept for a study I'm in. And Friday (Day 31) is my first bone marrow biopsy since the transplant. Feeling hopeful, a little anxious but overwhelmingly happy to be recovering at home since Day 17!

@andreak78 congratulations on finally returning home! After all the turmoil from conditioning chemo and the side effects of the transplant, coming home is such a comfort. No more beeping sounds or blood draws before the sun even rises. My return home after the transplant was such a relief, even though I still felt awful. I hope your biopsy brings good results!