Every day I cough up what looks like a scab with ugly mucous and blood

Posted by needtoknow @needtoknow, Feb 10, 2016

Every day I cough up what looks like a scab with ugly mucous and tiny amounts of blood. It seems to come from the back of my throat or nose. My doctor has seen the scab but does not see anything wrong. This, to me, seems really odd. Has anyone had this problem?

If someone at Mayo is skilled at skull based meniniomas, cranial csf leaks would add comments….please patients look up for yourselves.
top not hosp and drs have NO idea? ENT skull based surgeons (not in Rochester) nasal bleeding, debilitating brain leaks misdiagnosed and dismissed. so very sad.

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@akbishop12

If someone at Mayo is skilled at skull based meniniomas, cranial csf leaks would add comments….please patients look up for yourselves.
top not hosp and drs have NO idea? ENT skull based surgeons (not in Rochester) nasal bleeding, debilitating brain leaks misdiagnosed and dismissed. so very sad.

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@akbishop12, welcome. It sounds like you might wish to speak with someone at Mayo Clinic's Office of Patient Experience. If you would like to share a concern, please complete the online feedback form (https://mccoreprodcrmextncast.blob.core.windows.net/$web/ShareAConcern.html) and someone will contact you within three business days. Or you can call or email them.

Mayo Clinic Office of Patient Experience
Phone: 844-544-0036 (toll free)
Email: opx@mayo.edu

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I’m also glad to have found this group for I’ve been having some of same issues this last year. Sad that some of you have found no resolution still. Been coughing up the hardened phylum, can’t breathe out of left nostril, neck very sore and tender, tender spots and bumps on face, ear pain, TMJ, and nights are difficult cuz I can’t breathe. I feel whole face/neck is deteriorating. ENT did scope but no answer. Just been using the over counter stuff you all are using but no relief. Warmer and humid weather may help I’m hoping but winter is just around corner here in Minnesota.

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@zaa

I’m also glad to have found this group for I’ve been having some of same issues this last year. Sad that some of you have found no resolution still. Been coughing up the hardened phylum, can’t breathe out of left nostril, neck very sore and tender, tender spots and bumps on face, ear pain, TMJ, and nights are difficult cuz I can’t breathe. I feel whole face/neck is deteriorating. ENT did scope but no answer. Just been using the over counter stuff you all are using but no relief. Warmer and humid weather may help I’m hoping but winter is just around corner here in Minnesota.

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Hi Zaa, welcome to the ENT group. Your discomfort with pain and breathing problems sound miserable. I'm tagging @jea1 @edeng @vita61 @beebuzz and @nrd1 to see if they have some experiences and thoughts to share with you.

In the meantime, you may also wish to see this related discussion on TMJ
– Research on TMJ: What treatments work for you? https://connect.mayoclinic.org/discussion/research-on-tmj/

Zaa, how do you manage your pain? It must be so hard to get a good night's sleep.

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@colleenyoung

Hi Zaa, welcome to the ENT group. Your discomfort with pain and breathing problems sound miserable. I'm tagging @jea1 @edeng @vita61 @beebuzz and @nrd1 to see if they have some experiences and thoughts to share with you.

In the meantime, you may also wish to see this related discussion on TMJ
– Research on TMJ: What treatments work for you? https://connect.mayoclinic.org/discussion/research-on-tmj/

Zaa, how do you manage your pain? It must be so hard to get a good night's sleep.

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I, like others, had a bad orthodontist 45 years ago, that could have done some damage and have had lots of dental work too. Dentist found a tooth yesterday that has resorption so may loose it. I’m a clincher and have worn mouth guard for 20+ years. Started to see physical therapist so getting the exercises and have seen acupuncturist couple times to deal with sinus and tmj. I’m not seeing any comments on here about loss of hearing and tinnitus, which happened to me on my bad tmj side. Anyone? So much happening in my face and neck, I’m worried! The stress and depression has been very difficult to deal with and not knowing who to turn to.

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No, mine isn’t in my nose. It’s in my throat and looks just like many have posted.
I’m sorry that many are going through it but I’m a way, it’s nice to know that I’m not alone..
I almost considered getting my adenoids removed but from what’s few have said, it won’t change..
I also have a deviated septum.. I was hoping correcting it will help but it sounds like it has made others worse..
Also, about 5 years ago, after I “coughed” one up, I started eating a tablespoon of honey for a few weeks and when I went to my first ent appointment, they only saw “a small white patch” and couldn’t give me answers. Then it came back the next year and has been getting bigger every year since. I’m probably going to try the honey..
Good luck with it guys, hopefully we can find answers finally!!

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find an ent skull based neruo!

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The same thing has been happening to me for the past year. I have been to 3 different ENT's one said Allergies, one said surgery (I said no), and the last one said acid reflux. I've honestly lost all confidence in them ever being able to figure this out. My regular doctor had also had me try antibiotics and like others the problem went away and then came back. I decided yesterday I was just done with the doctors all together…. that's when I came across this forum and its honestly heartbreaking how many of us are having to deal with this and getting no answers. So I kept digging and I ran across something called Nasopharyngeal bursitis the crusting type. Has anyone else looked into this or asked their doctor if this could possibly be what is causing this horrid situation? I have now had one stuck up there for weeks. I get the burning feeling like its loosened and ready to come out. the minute I try to really hack it up it sticks back up there. I consistently have thick mucus building up around it that I can get to come out when I use colloidal silver nose spray, but the scab seems to be getting more and more stubborn. Whats worse is I have had to be put on Anxiety medication do to all of this. I have had 3 major major panic attacks and ended up in the ER. Just really curious about this Nasopharyngeal bursitis they say its rare… but is it really that rare? Are they misdiagnosing us because it is said to be a rare occurrence?

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Guys!!!! I may have found an answer!!!!!
Look up:
Crust type of nasopharyngeal bursitis and Tornwaldt’s cyst

So far I have read that “Combined endoscopic endonasal and transoral approach with good electrocauterization is a minimally invasive and effective way of treating both types of nasopharyngeal bursitis” but I’m going to have to research other effective ways!!
Hopefully it will help!!! 💜💜

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@noblelife

The same thing has been happening to me for the past year. I have been to 3 different ENT's one said Allergies, one said surgery (I said no), and the last one said acid reflux. I've honestly lost all confidence in them ever being able to figure this out. My regular doctor had also had me try antibiotics and like others the problem went away and then came back. I decided yesterday I was just done with the doctors all together…. that's when I came across this forum and its honestly heartbreaking how many of us are having to deal with this and getting no answers. So I kept digging and I ran across something called Nasopharyngeal bursitis the crusting type. Has anyone else looked into this or asked their doctor if this could possibly be what is causing this horrid situation? I have now had one stuck up there for weeks. I get the burning feeling like its loosened and ready to come out. the minute I try to really hack it up it sticks back up there. I consistently have thick mucus building up around it that I can get to come out when I use colloidal silver nose spray, but the scab seems to be getting more and more stubborn. Whats worse is I have had to be put on Anxiety medication do to all of this. I have had 3 major major panic attacks and ended up in the ER. Just really curious about this Nasopharyngeal bursitis they say its rare… but is it really that rare? Are they misdiagnosing us because it is said to be a rare occurrence?

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Haha I just found the same thing and posted it before I saw your comment. That’s my best guess so far!!! Definitely sounds like what I’ve been experiencing

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Just saw someone just recently said the same thing!!

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@noblelife

The same thing has been happening to me for the past year. I have been to 3 different ENT's one said Allergies, one said surgery (I said no), and the last one said acid reflux. I've honestly lost all confidence in them ever being able to figure this out. My regular doctor had also had me try antibiotics and like others the problem went away and then came back. I decided yesterday I was just done with the doctors all together…. that's when I came across this forum and its honestly heartbreaking how many of us are having to deal with this and getting no answers. So I kept digging and I ran across something called Nasopharyngeal bursitis the crusting type. Has anyone else looked into this or asked their doctor if this could possibly be what is causing this horrid situation? I have now had one stuck up there for weeks. I get the burning feeling like its loosened and ready to come out. the minute I try to really hack it up it sticks back up there. I consistently have thick mucus building up around it that I can get to come out when I use colloidal silver nose spray, but the scab seems to be getting more and more stubborn. Whats worse is I have had to be put on Anxiety medication do to all of this. I have had 3 major major panic attacks and ended up in the ER. Just really curious about this Nasopharyngeal bursitis they say its rare… but is it really that rare? Are they misdiagnosing us because it is said to be a rare occurrence?

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Try doing it after a warm shower and drinking something warm. It helps to loosen mine

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