My Experience on Evenity for Treating Osteoporosis

I never heard of Tymlos til seeing I this site last night (I had signed up but somehow never accessed it) So far I am trying to do this drug-free but I know that may be dreaming - my ex sister in law just had her first Reclast the other week, she is in her mid 50s and she pointed out to me that if weight bearing exercises even prevented osteoporosis much less reversed it she never would have gotten it, she's worked out w a trainer for years , plays tennis, fences, skis, runs. It's like the perfect athlete and there she was with a bad bone density test. And yet the side effects so scary - I get dizzy from more than 3 days of anything, otc non-steriodals, Tylenol, so when people mention tinnitus i worry that these drugs affect ears and even if they don't cause the jaw necrosis I'll be dizzy.

It is interesting that you mention Forteo tho. My aunt did that for years - expensive, put her in the donut hole - but a couple months ago I was having a tooth (that had a graft, exactly what you shouldn't do while taking the drugs) being checked by a new guy in my periodontist's practice . Told him my problem. He said you can take Forteo, it doesn't do that. My regular dentist at one point said do none of the new drugs, their half life is longer, just do Fosomax so you can stop taking it if you need a treatment.

I will look up Tymlos.

I am right now feeling dumb because I realized I got my dx at 62, that was only 5 years from menopause for me, I should have done HRT , I would have had a few years to build up bone density before it was too dangerous (although got BC at 66, would have of course blamed self even more if I'd done the HRT the prior 3 years ha ha).

THANKS for response. It is such a dilemma. And now I see a Margaret Martin video that says the way I've been doing squats - holding my 4 pound dumbbells in front as I squat - -is all wrong, that I'm putting a fracture causing load on my vertebrae. You could spend your life trying to find the answers to this.

I never heard of Tymlos til seeing I this site last night (I had signed up but somehow never accessed it) So far I am trying to do this drug-free but I know that may be dreaming - my ex sister in law just had her first Reclast the other week, she is in her mid 50s and she pointed out to me that if weight bearing exercises even prevented osteoporosis much less reversed it she never would have gotten it, she's worked out w a trainer for years , plays tennis, fences, skis, runs. It's like the perfect athlete and there she was with a bad bone density test. And yet the side effects so scary - I get dizzy from more than 3 days of anything, otc non-steriodals, Tylenol, so when people mention tinnitus i worry that these drugs affect ears and even if they don't cause the jaw necrosis I'll be dizzy.

It is interesting that you mention Forteo tho. My aunt did that for years - expensive, put her in the donut hole - but a couple months ago I was having a tooth (that had a graft, exactly what you shouldn't do while taking the drugs) being checked by a new guy in my periodontist's practice . Told him my problem. He said you can take Forteo, it doesn't do that. My regular dentist at one point said do none of the new drugs, their half life is longer, just do Fosomax so you can stop taking it if you need a treatment.

I will look up Tymlos.

I am right now feeling dumb because I realized I got my dx at 62, that was only 5 years from menopause for me, I should have done HRT , I would have had a few years to build up bone density before it was too dangerous (although got BC at 66, would have of course blamed self even more if I'd done the HRT the prior 3 years ha ha).

THANKS for response. It is such a dilemma. And now I see a Margaret Martin video that says the way I've been doing squats - holding my 4 pound dumbbells in front as I squat - -is all wrong, that I'm putting a fracture causing load on my vertebrae. You could spend your life trying to find the answers to this.

@sal462 Tymlos and Forteo are similar, and both work through the parathyroid. I was able to tolerate Tymlos because, unlike Forteo, the dose is adjustable. The pen has "clicks" and I did two and worked up to 7 for my 18 months and am now doing a few months at full dose of 8 clicks.

I am sensitive to meds and this worked for me since it gave my body time to adjust. The side effects are worth it versus fractures, which I already have, and with ramping up, the side effects have been very tolerable.

Doing Reclast or Prolia before Forteo or Tymlos affects the effectiveness of the bone builders. Sequencing properly is important but insurance companies need to catch up with the science!

Margaret Martin is wonderful and yes lifting weights in front of you really strains the spine! I say that from hard experience 🙂

Hi Thanks for response.

I can't believe all the years I've spent lifting - I guess luckily only 4 lb -- dumbbells in front of me per a PT instructions from 1990. And yet the more recent PT, KNOWING my exercises, knowing I had osteoporosis never said to change the way I do it.

Thanks for more specifics on that Tymlos. I think because I had breast cancer those parathyroid ones might be out for me, not sure.

Someone here I think mentioned that Bone Coach guy. I just listened to the video, I am so suspicious of these things, but wonder if anyone has done his program. A lot of it make sense, those are all the things I'm doing anyway but I have really investigated the absorption issue except for the usual celiac test.

I just look at my dental future and cannot imagine the osteoporosis drugs being a part of it. Get so depressed.

I never heard of Tymlos til seeing I this site last night (I had signed up but somehow never accessed it) So far I am trying to do this drug-free but I know that may be dreaming - my ex sister in law just had her first Reclast the other week, she is in her mid 50s and she pointed out to me that if weight bearing exercises even prevented osteoporosis much less reversed it she never would have gotten it, she's worked out w a trainer for years , plays tennis, fences, skis, runs. It's like the perfect athlete and there she was with a bad bone density test. And yet the side effects so scary - I get dizzy from more than 3 days of anything, otc non-steriodals, Tylenol, so when people mention tinnitus i worry that these drugs affect ears and even if they don't cause the jaw necrosis I'll be dizzy.

It is interesting that you mention Forteo tho. My aunt did that for years - expensive, put her in the donut hole - but a couple months ago I was having a tooth (that had a graft, exactly what you shouldn't do while taking the drugs) being checked by a new guy in my periodontist's practice . Told him my problem. He said you can take Forteo, it doesn't do that. My regular dentist at one point said do none of the new drugs, their half life is longer, just do Fosomax so you can stop taking it if you need a treatment.

I will look up Tymlos.

I am right now feeling dumb because I realized I got my dx at 62, that was only 5 years from menopause for me, I should have done HRT , I would have had a few years to build up bone density before it was too dangerous (although got BC at 66, would have of course blamed self even more if I'd done the HRT the prior 3 years ha ha).

THANKS for response. It is such a dilemma. And now I see a Margaret Martin video that says the way I've been doing squats - holding my 4 pound dumbbells in front as I squat - -is all wrong, that I'm putting a fracture causing load on my vertebrae. You could spend your life trying to find the answers to this.

Don't beat yourself up! We all our doing our best and it is so hard with all of the options available and not knowing what is right for your body? I did HRT and ended up with breast cancer and advanced osteoporosis. I also have dental issues so I can't take hardly any meds for osteo except Forteo. My parathyroid levels were high so I can't take Forteo until the PTH is normal. I had parathyroid surgery and my levels are still high. Really tough. Not sure what to do?

Hi Thanks for response.

I can't believe all the years I've spent lifting - I guess luckily only 4 lb -- dumbbells in front of me per a PT instructions from 1990. And yet the more recent PT, KNOWING my exercises, knowing I had osteoporosis never said to change the way I do it.

Thanks for more specifics on that Tymlos. I think because I had breast cancer those parathyroid ones might be out for me, not sure.

Someone here I think mentioned that Bone Coach guy. I just listened to the video, I am so suspicious of these things, but wonder if anyone has done his program. A lot of it make sense, those are all the things I'm doing anyway but I have really investigated the absorption issue except for the usual celiac test.

I just look at my dental future and cannot imagine the osteoporosis drugs being a part of it. Get so depressed.

I hope that weights work for you. I am still trying to avoid Evenity altogether ( much to my doctor’s dismay) because I can’t see a future free of various dental procedures & the jaw necrosis risk plus the black box about the heart attacks just freaked me out. So I most of the time do some weights, maybe not enough but I am good about wearing a weighted vest while walking or other exercises. I think mine is the NYK one. It at least gives hope. I hate that they want us to take all these drugs.

Hi Thanks for response.

I can't believe all the years I've spent lifting - I guess luckily only 4 lb -- dumbbells in front of me per a PT instructions from 1990. And yet the more recent PT, KNOWING my exercises, knowing I had osteoporosis never said to change the way I do it.

Thanks for more specifics on that Tymlos. I think because I had breast cancer those parathyroid ones might be out for me, not sure.

Someone here I think mentioned that Bone Coach guy. I just listened to the video, I am so suspicious of these things, but wonder if anyone has done his program. A lot of it make sense, those are all the things I'm doing anyway but I have really investigated the absorption issue except for the usual celiac test.

I just look at my dental future and cannot imagine the osteoporosis drugs being a part of it. Get so depressed.

Hello, my rheumatologist started me on Evenity. After the 3rd month of the 2 injections I woke up and my lower jaw was out of place, I couldn’t open my mouth, it sounded like mush or sand in there. My doctor immediately took me off Evenity. He gave me an order to see a Maxillofacial surgeon. Every one of them only take dental insurance and I’m on Medicare. I’ve been told I have developed necrosis of the jaw. I’ve been giving up on finding a surgeon in my area, I don’t know what else to do.