My Experience on Evenity for Treating Osteoporosis

Posted by arlene7 @arlene7, Jul 7, 2020

Thought I would share for those considering or on Evenity for osteoporosis:
Afer much research and discussions with my GP and Cardiologist, I have decided to start my treatment with Evenity injections. As with all drugs, there are many side effects. My biggest concerns were stroke and heart attack. However, considering that I do no have any history for either, for me personally, the benefits outweigh the risks. As my GP said to me, "if everyone only thought about the side effects of the drugs, no one would be taking them".

I had my first injections (subcutaneously in the back of each arm) on June 30th. The nurse that administered the injections discussed the drug in depth, along with all the possibilities that may occur. She also mentioned that for all the patients that she has seen, none has had any side effects.

The injections are once a month for only one year, so I'm hoping that this works well for me and I can improve my bone density, especially in my spine, where I need it the most.

My endocronologist has also prescribed Hydrochlorthiazide for my idiopathic hypocalcemia. I have an appointment with an allergist this month to confirm whether I still have an allergy to sulfa drugs, since this drug contains sulfa. Apart from this I take D3 orally and try to obtain additional calcium through foods not supplements. Trying to walk 3-4 times a week and will begin with a few weight bearing exercises.

My journey began September, 2019 when I was diagnosed with severe osteoporosis. After waiting to see three doctors, receiving three denials from insurance company for Evenity, which took several months, I am hopefully on my way for a favorful outcome.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@hopefulheart

Following
I’m getting first injection today

Jump to this post

The lumps went away pretty quickly for me. I also was advised to take antihistamine the day before, the day of, and for a few days after the shot to help with inflammation. It made a difference in the site reaction.

REPLY
@sandrac

The lumps went away pretty quickly for me. I also was advised to take antihistamine the day before, the day of, and for a few days after the shot to help with inflammation. It made a difference in the site reaction.

Jump to this post

Great
Thanks

REPLY
@noechel1

Hi: I am a 70-year-old woman facing the Evenity decision. I am a cancer survivor who never fully regained her energy level, but I do a lot of walking and exercise every day. I am concerned because I weigh under 100 pounds and typically do not tolerate medication well. Are there any other lightweights out there who have tried it?

Jump to this post

I weigh 120 and just started Evenity. Only had 1st month injection so far...but no issues!

REPLY
@grammy9

I weigh 120 and just started Evenity. Only had 1st month injection so far...but no issues!

Jump to this post

Thanks so much for your note. I'm pulling for you and all Evenity users/tryers. Please keep me posted.

REPLY
@grammy9

I weigh 120 and just started Evenity. Only had 1st month injection so far...but no issues!

Jump to this post

I've had 2 months worth of injections and after the 2nd month, I've started having aches and pains in my upper arms going into my shoulders. Not sure if it's the Evenity or arthritis creeping in.

REPLY

Im 6 months in on the evenity shots and experiencing neuropathy in my ribs and back. I just had a nerve block on monday and so far not much relief but they did tell me that it could take up to 2 weeks … im trying to manage the pain so i can finish the shots. I need them bc my bones are so bad.. hopefully you can get through them🙏🏻

REPLY
@mathompson

Im 6 months in on the evenity shots and experiencing neuropathy in my ribs and back. I just had a nerve block on monday and so far not much relief but they did tell me that it could take up to 2 weeks … im trying to manage the pain so i can finish the shots. I need them bc my bones are so bad.. hopefully you can get through them🙏🏻

Jump to this post

My thoughts and prayers are with you. It's terrible feeling like you are doing the best thing for your bones and yet the pain is so terrible that you question your decision. Wish I could will some relief in your direction!

REPLY
@mathompson

Im 6 months in on the evenity shots and experiencing neuropathy in my ribs and back. I just had a nerve block on monday and so far not much relief but they did tell me that it could take up to 2 weeks … im trying to manage the pain so i can finish the shots. I need them bc my bones are so bad.. hopefully you can get through them🙏🏻

Jump to this post

How are you managing your pain?

REPLY
@kon1018

How are you managing your pain?

Jump to this post

Honestly its been rough managing it.. i was hoping this nerve block would help but after one week i still have pain so ill see what plan B is.. im suffering not gonna lie..

REPLY
Please sign in or register to post a reply.