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Evenity effectiveness after stopping Prolia

Posted by awesomemomx2 @awesomemomx2, May 10, 2024

Looking for information about the effectiveness of Evenity after stopping Prolia in the prevention of rebound fractures.

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Profile picture for acker
acker | @acker | Jun 29 3:33am
In reply to @acker "@jeanweather hi, I've read and enquired much after Mum had injury after 5 yrs of prolia..." + (show)
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@jeanweather
hi, I've read and enquired much after Mum had injury after 5 yrs of prolia [now also called corora], and after 5 local drs (general, and specialist) guessing incorrectly, the best they could do is keep her on prolia, i.e they don't know anything more they can do.

i've corresponded to a couple of leading Australian endocrinologists whose opinions and experiences i trusted; here's what they've said, each, in no particular order:
• can't stop prolia unless followed by next drug type. (we know that.)
• one said use alendronate at the 4-5 month mark into prolia, for 6 months, then start teriparatide 18mths, then back to prolia again
(but your dr is talking about reclast 2 months after evenity. if he/ she really knows what he's talking about, that to me sounds about right and sounds like a relatively good option. wish my mum had the expertise in this town to advise on her 'treatments'. )

• one of the endos was not really impressed with evenity net gains,
(not much you can do about that now).
• evenity gains at upward for the first 9 months, then after that they level out for the rest of the 3 months.
• one endo said that after stopping evenity, you go back onto prolia.

• enjoy life not obsessing too much over drug choices, eat well, make sure the place is well lit and clear paths,
--------
i would add to all that include healthy fats and oils - butter, avocado oil, sesame oil, especially if underweight,
there is fermented soy cubes from the Asian store that are high in nattokinase;
i've heard good reports about boron supplements - read up and see what suits you...
keep moving, including gentle stretching,
i get my mum to gently stamp her feet throughout the day,
and take 3 full breaths intermittently ...

best wishes !
acker

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@acker can i also add here, use of natural sea salt, for seasoning food;
for decades we have been warned off it - that might be a problem for some, but not all - it contains trace elements .. good for bones ..
and also necessary for body's production of stomach acid
- which will assist APPETITE and digestion - need that to put on body FAT,
which is a positive factor for bone health in underweight people.
(I'm not saying become obese.)
underweight is a known factor in low bone density.
à tu santé!
salt, butter, honey, healthy oils!
(not canola).
in my pantry i have sesame seed oil, avocado oil, extra virgin olive oil, macadamia nut oil, mustard seed oil;
beef tallow, butter, ghee, sea salt, nuts. some quality ice cream. my Mum and i are lightweights.
even heavyweights might benefit from healthy fats and oils, as diet-foods often don't work. another topic altogether.

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Profile picture for acker
acker | @acker | Jun 29 3:40am
In reply to @dbamos1945 "@acker: I am very appreciative to get your response and your opinions on the sequencing after..." + (show)
Profile picture for dbamos1945 @dbamos1945

@acker: I am very appreciative to get your response and your opinions on the sequencing after Evenity. It is only one more example of the need for every patient to be their own health care advocate.
I will contact mfg of Fosamax - Alendronate 70mg (Northstar) tomorrow and see their recommendations and if I get reliable info I will let you know.
Thanks again friend! Hug, Bette

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@dbamos1945
that's a great idea, the manufacturers might have a specialist you can consult with on the phone? or online.

make sure your doc gives details how to take the tablet, it's quite particular, have to sit upright half an hour with it and something like no food or drink.
that's why prolia became popular with prescribers, as they didn't have to worry about patients taking it incorrectly.
hope it's simple and helpful for you.

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Profile picture for acker
acker | @acker | Jun 29 3:43am
In reply to @jeanweather "@acker Hi I’m getting my last 2 Evenity injections after 8 years of prolia. I’m 67..." + (show)
Profile picture for jeanweather @jeanweather

@acker Hi I’m getting my last 2 Evenity injections after 8 years of prolia. I’m 67 years old. I wish I would have waited to start a drug like prolia but it seemed so promising. It stopped working and my Dr then suggested Evenuty for a year. I’ve been having a lot of bone pain but hoping that when I have finished it will ease up. Do you know what your friend did next? My Dr wants me to take Recladt 2 months after last Evenity. Any knowledge will help. Thank you

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@jeanweather
i heard from others that a reclast infusion takes 45 min
BUT ASK THE nurse to take 90 minutes, it is easier on your body.
they might've even said to hydrate a lot beforehand - but ask around.

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Profile picture for acker
acker | @acker | Jun 29 3:54am

i read that zoledronic acid [reclast] has better results overall than alendronate (fosamax) -
but then i notice that large gains are also difficult to maintain
- so, as the professor i was corresponding with says - don't get too caught up with drug choices (i must've been asking a lot of questions), enjoy quality of life with social connections, nutritious foods, good lighting, safe shoes and clear floor / paths.

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Profile picture for dbamos1945
dbamos1945 | @dbamos1945 | Jun 29 8:37pm
In reply to @dbamos1945 "@acker: I am very appreciative to get your response and your opinions on the sequencing after..." + (show)
Profile picture for dbamos1945 @dbamos1945

@acker: I am very appreciative to get your response and your opinions on the sequencing after Evenity. It is only one more example of the need for every patient to be their own health care advocate.
I will contact mfg of Fosamax - Alendronate 70mg (Northstar) tomorrow and see their recommendations and if I get reliable info I will let you know.
Thanks again friend! Hug, Bette

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@acker: Regarding Fosamax:
Fosamax Clinical Guidelines on initiating dosage following Evenity 12th treatment for Osteoporosis is as follows:
Preventing bone loss following 12 months of Evenity is to begin Fosamax (Alendronate) 70mg ( 1 tablet per week First Thing Upon Awakening with a Full Glass of Water remain standing/sitting - DO NOT LIE DOWN, EAT or DRINK FOR 30 MINUTES - within 4 weeks of last dose of Evenity (without delay)! This will preserve the bone density gains you have achieved. Be sure to review the medication guidelines and side effect possibilities!
I hope the above info will assist fellow Osteoporosis patients preparing to begin next “lock in” medication for best bone density results. Best health to you…
P.S. Reference: National Osteoporosis Guidelines Group (NOGG)

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2 replies
Profile picture for acker
acker | @acker | Jun 29 10:51pm
In reply to @dbamos1945 "@acker: Regarding Fosamax: Fosamax Clinical Guidelines on initiating dosage following Evenity 12th treatment for Osteoporosis is..." + (show)
Profile picture for dbamos1945 @dbamos1945

@acker: Regarding Fosamax:
Fosamax Clinical Guidelines on initiating dosage following Evenity 12th treatment for Osteoporosis is as follows:
Preventing bone loss following 12 months of Evenity is to begin Fosamax (Alendronate) 70mg ( 1 tablet per week First Thing Upon Awakening with a Full Glass of Water remain standing/sitting - DO NOT LIE DOWN, EAT or DRINK FOR 30 MINUTES - within 4 weeks of last dose of Evenity (without delay)! This will preserve the bone density gains you have achieved. Be sure to review the medication guidelines and side effect possibilities!
I hope the above info will assist fellow Osteoporosis patients preparing to begin next “lock in” medication for best bone density results. Best health to you…
P.S. Reference: National Osteoporosis Guidelines Group (NOGG)

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@dbamos1945
good action!, and good response time by Northstar.
your doc seems to be right. a script should be easy to get. they might text message it to you? ok, take care! 🙂

REPLY
Profile picture for acker
acker | @acker | Jul 15 6:55am
In reply to @dbamos1945 "@acker: Regarding Fosamax: Fosamax Clinical Guidelines on initiating dosage following Evenity 12th treatment for Osteoporosis is..." + (show)
Profile picture for dbamos1945 @dbamos1945

@acker: Regarding Fosamax:
Fosamax Clinical Guidelines on initiating dosage following Evenity 12th treatment for Osteoporosis is as follows:
Preventing bone loss following 12 months of Evenity is to begin Fosamax (Alendronate) 70mg ( 1 tablet per week First Thing Upon Awakening with a Full Glass of Water remain standing/sitting - DO NOT LIE DOWN, EAT or DRINK FOR 30 MINUTES - within 4 weeks of last dose of Evenity (without delay)! This will preserve the bone density gains you have achieved. Be sure to review the medication guidelines and side effect possibilities!
I hope the above info will assist fellow Osteoporosis patients preparing to begin next “lock in” medication for best bone density results. Best health to you…
P.S. Reference: National Osteoporosis Guidelines Group (NOGG)

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@jeanweather
did you see this?
start (bisphosphonate) within 4 weeks of last evenity dose,

or contact manufacturer of reclast

best wishes

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