Share this:
grammykay

Essential Tremors

Posted by @grammykay in Brain & Nervous System, Sep 12, 2011

uncontrolable shaking

Tags: Fatty Liver Disease

lindag

Posted by @lindag, Sep 13, 2011

I have been diagnosed with benign essential tremors. I head shakes as though I 'm shaking my head no. Some days it's not bad; however, on some I can feel it. It was brought to my attention about 4 years ago. After that, family members began to tell me how they had noticed it.

GRAMMYKAY likes this
grammykay

Posted by @grammykay, Sep 13, 2011

Thank you Linda for your reply. How were you diagnosed with it? What kind of testing was done? The same here for me, my family has brought it to my attention.

lindag

Posted by @lindag, Sep 13, 2011

I went to a Neurologist and they did not run test other than the: hold your hands out, turn your head left, right, stay focused on object, etc., One doctor started me on primidone. The side effects were awful. I was vomiting uncontrollably and ended up in the emergency room after the second day. I changed doctors and the one I have gone to for the last 3 years told me to drink wine. At first he recommended red wine; however, I changed to white. If I'm having a 'bad' day, it helps. I take 6 oz. once a day and take about 4 days out of the week. I wish I didn't have this but there's not a cure at this time. My primary care physician is going to try something natural and new. The John Hopkins Uni. has been experimenting on the essential tremors. I'll let you know once I start (product) and then continue to update if I can tell a difference. I get embarrassed at times. We own a furniture store in WV, so I'm around the public a lot. Then to church on Sundays. So, seven days a week I feel awkward when it's a 'bad' day.

GRAMMYKAY likes this
grammykay

Posted by @grammykay, Sep 13, 2011

I have not been diagnosed yet but im sure thats what it is. I dont have any other symptoms. I am 46 years old a grandmother of 3 beautiful grandchildren and married for 30 years. I understand exactly how you feel. I get embarrassed all the time.When I see someone looking at me I wonder if I am having a tremor. It hasnt stop me from living a full life but it is hard sometimes to deal with because I dont feel like anything is wrong, but when people notice it I feel so uncomfortable. Thank you again Linda for sharing with me. You are a blessing to me. I pray that everything works out for you. Please keep me up dated.

lindag

Posted by @lindag, Sep 13, 2011

You are welcome! And I will update as soon as I find out anything.

ardis

Posted by @ardis, Sep 14, 2011

GrammyKay, I'm having trouble with this discussion board. I sent you a long msg, but it was on a different screen than this, so am wondering if you got it. Please let me know if you got my msg. If not, I'll send it again. Ardie K.

grammykay

Posted by @grammykay, Sep 15, 2011

I got it thank you. 🙂

grammykay

Posted by @grammykay, Sep 15, 2011

I sent you a message back. Hope you get it's. Let me know.

katsgotit

Posted by @katsgotit, Sep 22, 2011

GrammyKay,
I too have essential tremor but have had the surgery and am now 95% better on
my right side. I have the left side scheduled to be done in October. I can't tell
how much this has changed my life. Do you have a hospital with good neuro.
department? I was so sick of people asking me why I was so nervous, spilling
coffee, receiving change was a nightmare! You can get this fixed!! katsgotit

GRAMMYKAY likes this
grammykay

Posted by @grammykay, Sep 22, 2011

Thank you Katsgotit for your reply. I haven't been to a Neuro yet. I have had tremors since I was in my 20's it is very embarrassing sometimes. People look at you like your crazy. Mine is a shaking head tremor. I don't really know when it is happening.I have never done drugs or drank alcohol. I was in a car wreak about 26 years ago and I suffered a concussion. I've also have been put to sleep twice and had 2 spinals for the birth of my 4 children. Other than that I have always been healthy.

grammykay

Posted by @grammykay, Sep 22, 2011

Thank you Katsgotit for your reply. I haven't been to a Neuro yet. I have had tremors since I was in my 20's it is very embarrassing sometimes. People look at you like your crazy. Mine is a shaking head tremor. I don't really know when it is happening.I have never done drugs or drank alcohol. I was in a car wreak about 26 years ago and I suffered a concussion. I've also have been put to sleep twice and had 2 spinals for the birth of my 4 children. Other than that I have always been healthy.

katsgotit

Posted by @katsgotit, Sep 22, 2011

Grammykay,
Yes I had head tremor, forearms, hands, and with this surgery the head tremor is
100%gone. The procedure is called deep brain stimulation or DBS. Mine started
when I was in my 20's and slowly it got worse. I'm 66 now. I hope you can find a
cure too. None of the medications worked well but I know there are many out there.
Maybe one of them would work for you. Don't give up! I started to give up being with
people or doing things I liked...that's when I went for help. katsgotit

GRAMMYKAY likes this
grammykay

Posted by @grammykay, Sep 22, 2011

Thank you 🙂

ncgrama

Posted by @ncgrama, Oct 9, 2012

When did you have your first DBS?

katsgotit

Posted by @katsgotit, Oct 10, 2012

Last June (1911) ad the second was in October (1911). Had my 6 month checkup
and all is just fine. This can really change your life and I would recommend it to
anyone.

ncgrama

Posted by @ncgrama, Oct 11, 2012

A very personal question. I'll understand if you don't answer. Are you on Medicare and if so was the treatment covered.

lo

Posted by @lo, Oct 11, 2011

I have generalized dystonia and blepharospasms plus and pain dysregulation. At first they thought I had Young on-set Parkinsons, but I noticed none of those people at the group complained of pain. After i almost lost my eyesight, could not talk, barely move from the spasms they found out I have dystonia. Had many surgeries, doing better, meds are awful, i stick with very little and get the shots. To afraid of the surgery right now.

katsgotit

Posted by @katsgotit, Oct 10, 2012

Better make that 2011, lol I 'm forgetful as always just not shaking.

katsgotit

Posted by @katsgotit, Oct 11, 2012

ncgrama, I am 67 and on medicare. Medicare covered it all. Do you have a
medical center near by? I'm thinking Duke university. I had to go to Seattle (Swedish Hospital) about 3 hours from here. One of the drawback of living on the edge of nowhere. If there is anything you would like to know, just post me.

vihiway

Posted by @vihiway, Mar 21, 2016

I have what has been diagnosed as a benign tremor in my left hand. The whole side is weaker and it causes me not to be able to balance my right and left sides.s..what is a benign tremor?

Please login or become a member to post a comment.