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I have been diagnosed with benign essential tremors. I head shakes as though I ‘m shaking my head no. Some days it’s not bad; however, on some I can feel it. It was brought to my attention about 4 years ago. After that, family members began to tell me how they had noticed it.
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Thank you Linda for your reply. How were you diagnosed with it? What kind of testing was done? The same here for me, my family has brought it to my attention.
I went to a Neurologist and they did not run test other than the: hold your hands out, turn your head left, right, stay focused on object, etc., One doctor started me on primidone. The side effects were awful. I was vomiting uncontrollably and ended up in the emergency room after the second day. I changed doctors and the one I have gone to for the last 3 years told me to drink wine. At first he recommended red wine; however, I changed to white. If I’m having a ‘bad’ day, it helps. I take 6 oz. once a day and take about 4 days out of the week. I wish I didn’t have this but there’s not a cure at this time. My primary care physician is going to try something natural and new. The John Hopkins Uni. has been experimenting on the essential tremors. I’ll let you know once I start (product) and then continue to update if I can tell a difference. I get embarrassed at times. We own a furniture store in WV, so I’m around the public a lot. Then to church on Sundays. So, seven days a week I feel awkward when it’s a ‘bad’ day.
I have not been diagnosed yet but im sure thats what it is. I dont have any other symptoms. I am 46 years old a grandmother of 3 beautiful grandchildren and married for 30 years. I understand exactly how you feel. I get embarrassed all the time.When I see someone looking at me I wonder if I am having a tremor. It hasnt stop me from living a full life but it is hard sometimes to deal with because I dont feel like anything is wrong, but when people notice it I feel so uncomfortable. Thank you again Linda for sharing with me. You are a blessing to me. I pray that everything works out for you. Please keep me up dated.
You are welcome! And I will update as soon as I find out anything.
I too have essential tremor but have had the surgery and am now 95% better on
my right side. I have the left side scheduled to be done in October. I can’t tell
how much this has changed my life. Do you have a hospital with good neuro.
department? I was so sick of people asking me why I was so nervous, spilling
coffee, receiving change was a nightmare! You can get this fixed!! katsgotit
Thank you Katsgotit for your reply. I haven’t been to a Neuro yet. I have had tremors since I was in my 20’s it is very embarrassing sometimes. People look at you like your crazy. Mine is a shaking head tremor. I don’t really know when it is happening.I have never done drugs or drank alcohol. I was in a car wreak about 26 years ago and I suffered a concussion. I’ve also have been put to sleep twice and had 2 spinals for the birth of my 4 children. Other than that I have always been healthy.
Yes I had head tremor, forearms, hands, and with this surgery the head tremor is
100%gone. The procedure is called deep brain stimulation or DBS. Mine started
when I was in my 20’s and slowly it got worse. I’m 66 now. I hope you can find a
cure too. None of the medications worked well but I know there are many out there.
Maybe one of them would work for you. Don’t give up! I started to give up being with
people or doing things I liked…that’s when I went for help. katsgotit
I have generalized dystonia and blepharospasms plus and pain dysregulation. At first they thought I had Young on-set Parkinsons, but I noticed none of those people at the group complained of pain. After i almost lost my eyesight, could not talk, barely move from the spasms they found out I have dystonia. Had many surgeries, doing better, meds are awful, i stick with very little and get the shots. To afraid of the surgery right now.
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