Essential Thrombocytosis symptoms

Posted by lynn22 @lynn22, Apr 5, 2023

Having had high platelets since 2017 and doctors could not find a cause I paid to see a haematologist and I was diagnosed with ET in 2019. With a platelet level of 723 I was put on baby Asprin but unfortunately it did not suit me. I was then put on Clopidogrel but had an allergic reaction to it. I have refused to have a biopsy so far but said I will if levels go over 800. The haematologist made it quite clear that I am at a high risk of having a stroke. So I am taking Arnica homeopathy twice a day to thin the blood which helps the headaches which I have suffered with for years and take 2 paracetamol a day, usually when I wake-up as that’s when I get most headaches and sometimes it is like having a massive hangover. I also get tired and lightheaded and since January I am suffering with constant tingling hands and feet which according to the internet is another side affect. But as of two weeks ago I have tingling lips and tongue which is not listed as a side affect and I am wondering if anyone else also has these symptoms tingling symptoms. Having tried to see a doctor the surgery have said I can have a routine appointment which is weeks away. My doctor has agreed that I have a blood test every 3 months to monitor, at the moment it ranges from 750 to 800. Any advice gratefully received.

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@marnie12

You might want to check your ferritin and iron levels at your General Practitioners office. I was told at my Oncologists office that I wasn't anemic, even though I was obviously pale and experiencing extreme fatigue. So I went to my G
P. for specific tests for anemia and the ferritin was very low! It took about 2 to 3 months of no hydroxyuria and iron tablets to have ANY energy again. It's a delicate balance with hu if you become anemic. Can't hurt to get another lab with ferritin and iron levels. Anemia fatigue is horrible. Good luck to you!

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Thanks so much for your reply. This is very helpful and I will have my GP check my blood test for these items. Wishing you the best in your journey with a ET

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@lyno29

Hi Claire, I’m taking a homeopathic arnica 6c, four drops 4x a day in place of baby aspirin….
I won’t be able to do a blood test till February.
Wanted a more holistic blood thinner than aspirin
and arnica is good for blood circulation and also helps heal emotional trauma. Please consult a homeopathic specialist for the correct dosage as there are different ways to approach it. My platelets are over 1,000,000 so this is me doing what I can in a natural way!

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Thank you so much for the feedback. I will check this out at our local health food store. Hope everything is good with you…..Claire

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