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Essential Thrombocythemia: Making treatment decisions

Posted by mamsgirl1998 @mamsgirl1998, Jan 27, 2024

I have ET and was diagnosed 2 years ago. I am 50 Years old and my latest platelet count was 1,183,000. I only take a baby aspirin daily. My hematologist said I could try Hydroxyurea if I wanted. I am low risk and at first I didn’t want to take it. My platelet count continues to climb. I am thinking about trying the medication. Anyone else tried it? Any ill side effects?

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christina3444 | @christina3444 | 3 days ago
In reply to @drbart86 "I'm am looking for various areas to maybe retire. Arizona is in my potential areas for..." + (show)
@drbart86

I'm am looking for various areas to maybe retire. Arizona is in my potential areas for several reasons. I have ET, does anybody go to the Scottsdale Mayo clinic? If so who is the ET specialist there? I would like to be able to visit there prior to making a final decision. As we do deal with an uncommon condition, I want to work with a true specialist. I am currently with one in Colorado.
Thanks in advance.

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Please check out my comment. I retired and moved to Az in part because I thought Mayo would meet my needs. In my years of research no where was it mentioned that Mayo AZ only takes Medicare patients for certain specialties unless you were seeing Mayo MD prior to going on Medicare. Had I known this I would not have moved to AZ.

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