1. < Blood Cancers & Disorders

Essential thrombocythemia

Posted by Tessa @tessa, Nov 12, 2011

I am interested in connecting with others with this illness. I was diagnosed this summer with ET and have been to see two hematologists here in Michigan and then went out to Mayo clinic. I am a 27 year old female and wondering what kinds of experiences others like myself have had. I had doctors telling me I should go on hydroxyurea which is chemo therapy which I was very hesitant to do when I was having absolutely no symptoms. The elevated platelet count was simply found on a routine CBC. When I went out to Mayo I was told all I needed to do was take aspirin that there was no need for chemo therapeutic intervention at this time,especially because I am interested in having kids. I am interested in hearing other peoples experiences.

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

appraiser1946 | @appraiser1946 | Oct 16 8:07am
In reply to @taraamato "Hi Karla, Do you have and tingling feeling , numbness and pain in your legs from..." + (show)
@taraamato

Hi Karla,
Do you have and tingling feeling , numbness and pain in your legs from ET? I’m not sure if it’s from ET or a separate issue. I’m also on aspirin, iron , along with the HU. How high were your platelets?

Jump to this post

Hi Karla. Yes, I have tingling in my feet and some numbness. It is very bothersome when I am trying to go to sleep. I take two 500 hydroxyurea a day and twice a week I take three 500 hydroxyurea, and of course a daily 81 milligram aspirin. my platelets went up approximately two months ago. When this happened my doctor put me on three hydroxyurea twice a week. My platelets came down to 421 my last lab test. If my platelets stay down, I am hoping he will take me off of the three twice a week. I feel the tingling and numbness in my feet is due to the hydroxyurea.

REPLY
1 reply
taraamato | @taraamato | Oct 16 9:36am
In reply to @appraiser1946 "Hi Karla. Yes, I have tingling in my feet and some numbness. It is very bothersome..." + (show)
@appraiser1946

Hi Karla. Yes, I have tingling in my feet and some numbness. It is very bothersome when I am trying to go to sleep. I take two 500 hydroxyurea a day and twice a week I take three 500 hydroxyurea, and of course a daily 81 milligram aspirin. my platelets went up approximately two months ago. When this happened my doctor put me on three hydroxyurea twice a week. My platelets came down to 421 my last lab test. If my platelets stay down, I am hoping he will take me off of the three twice a week. I feel the tingling and numbness in my feet is due to the hydroxyurea.

Jump to this post

I've had this tingling feeling and numbness way before I started the hydroxyurea and before I was diagnosed with ET. My Mom and I are thinking it could be a separated issue. Ive seen a Neurologist and they did a nerve test and it showed that I have a lot of nerve damage in my lower legs, calves and feet.

REPLY
View MoreView Less
Please sign in or register to post a reply.