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Essential thrombocythemia: Interested in connecting with others
Blood Cancers & Disorders | Last Active: Sep 25, 2025 | Replies (163)Comment receiving replies
I've had this tingling feeling and numbness way before I started the hydroxyurea and before I was diagnosed with ET. My Mom and I are thinking it could be a separated issue. Ive seen a Neurologist and they did a nerve test and it showed that I have a lot of nerve damage in my lower legs, calves and feet.
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Could be from ET. I had the numbness symptom before diagnosis. Unfortunately it is neuropathy and I don’t think there is a cure-especially once you have damage. However, I found acupuncture helps with that symptom.