Endometrial stromal sarcoma (ESS): What treatment did you get?

Posted by darren12 @darren12, Sep 17 12:24pm

My wife has just been diagnosed with endometrial strongly sarcomas ESS. This is a very rare type of cancer which was found when she was having an hysterectomy and has now developed in her lung. I’m looking for some advice on what the best way to help her and also for a second opinion on how best to treat this cancer.

Thanks

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Hi @darren12, welcome. As you likely already know, endometrial stromal sarcoma tumors start in the supporting connective tissue (stroma) of the lining of the uterus (the endometrium). We here in this group can certainly help to support you and share experiences to help you support your wife. This must've come as a shock to both you and your wife.

If you are looking for a second opinion, I highly recommend the Mayo Clinic for complex, rare cancers. You can self-refer on behalf of your wife or request that her currently physician submit the referral. You will find all the information to get started here: http://mayocl.in/1mtmR63

Darren, has it been determined if her ESS is low-grade or high-grade? How is she doing? How are YOU?

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@colleenyoung

Hi @darren12, welcome. As you likely already know, endometrial stromal sarcoma tumors start in the supporting connective tissue (stroma) of the lining of the uterus (the endometrium). We here in this group can certainly help to support you and share experiences to help you support your wife. This must've come as a shock to both you and your wife.

If you are looking for a second opinion, I highly recommend the Mayo Clinic for complex, rare cancers. You can self-refer on behalf of your wife or request that her currently physician submit the referral. You will find all the information to get started here: http://mayocl.in/1mtmR63

Darren, has it been determined if her ESS is low-grade or high-grade? How is she doing? How are YOU?

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Thanks, she has been confirmed as low grade, we are keeping positive and has started taking hormone blockers today in the hope this will, slow down or hopefully shrink the small nodule on her lung.

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