Esophageal cancer treatment: Anyone have good experiences to share?

Posted by earnest @earnest, May 28 9:28am

Hello troops. Does anyone have any good news about their treatments? All I've been reading are horror stories. Not very encouraging at all. I'm on my second week of radiation and chemo, and the first chemo didn't go well. Not meaning to add to the horror stories, but it made my stomach ache really bad. They stopped and gave me steroids, I think. Now I'm hearing these stories about leaking chemo causing pain, makes me apprehensive. So if anyone has had a GOOD experience, PLEASE share it!

Interested in more discussions like this? Go to the Esophageal Cancer Support Group.

Don Higgins, Volunteer Mentor | @dsh33782 | 20 hours ago

In reply to @vickiinalaska "I am a long term survivor of ec. I was diagnosed in April 2012 and finished..." + (show)

Vicki
Great to hear from long term EC survivor. I had chemo and radiation several years ago for EC and am still alive and kicking. At 79 I hope I still have another 10-15 years to enjoy with my wife Charlotte.
Don

mrgvw | @mrgvw | 4 hours ago

In reply to @vickiinalaska "I am a long term survivor of ec. I was diagnosed in April 2012 and finished..." + (show)

Stay away from online support groups?! Really?! I'm only a 5 yr survivor... but the single biggest thing I do, on our twice-weekly Zoom calls, is help my fellow EC patients. Support group? I suppose... but I don't think of us that way. We have a variety of patient counselors... and we've done every treatment known to man, had every type of surgery, have done every immunotherapy. We have stage 1s thru stage 4s... patients from all over the world come visit us... and stick with us. Our doctors only have so much time with us patients... but we patients have all the time in the world to help others.