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Esophageal cancer treatment: Anyone have good experiences to share?

Posted by earnest @earnest, May 28, 2024

Hello troops. Does anyone have any good news about their treatments? All I've been reading are horror stories. Not very encouraging at all. I'm on my second week of radiation and chemo, and the first chemo didn't go well. Not meaning to add to the horror stories, but it made my stomach ache really bad. They stopped and gave me steroids, I think. Now I'm hearing these stories about leaking chemo causing pain, makes me apprehensive. So if anyone has had a GOOD experience, PLEASE share it!

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mrmac1234 | @mrmac1234 | Feb 13 1:00pm
In reply to @dsh33782 "mrmac1234 Hi, was stage 3 esophageal cancer with tumor in lower esophagus and local lymph nodes..." + (show)
@dsh33782

mrmac1234
Hi, was stage 3 esophageal cancer with tumor in lower esophagus and local lymph nodes showing up on scans.
I could not eat and I also had feeding tube I used for several months. After the chemo and radiation treatments started the tumor shrunk and I was able to start swallowing again. I know how scary it all is, but I'm better now. Have you had chemo and radiation yet?
Don

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Sorry for the typos lyphnodes and liver also effected . Six centimeter
tumor and myself gives broke through the wall and lining chemo has now
closed narrow my esophagus.

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1 reply
Mentor
Don Higgins, Volunteer Mentor | @dsh33782 | Feb 13 8:33pm
In reply to @mrmac1234 "Sorry for the typos lyphnodes and liver also effected . Six centimeter tumor and myself gives..." + (show)
@mrmac1234

Sorry for the typos lyphnodes and liver also effected . Six centimeter
tumor and myself gives broke through the wall and lining chemo has now
closed narrow my esophagus.

Jump to this post

mrmac
6 cm tumor sounds large. Are you able to eat using feeding tube now?
Don

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healthylynn | @healthylynn | 5 days ago
In reply to @gdj "My experience has been similar to Don’s. My surgery was last August 3rd. I’m very fortunate,..." + (show)
@gdj

My experience has been similar to Don’s. My surgery was last August 3rd. I’m very fortunate, and grateful.

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Hi Fellow Travelers.
I want to update my experience with esophageal cancer treatments. A month ago I completed one year of immunotherapy; ipilimumab and nivolumab. This was the only western medicine/ treatment I received.
According to the recent PET scan and the endoscopy with biopsies I am cancer free.
This is great news and the changes that I have made, nutritionally, exercises, meditation and mindfulness will be a permanent way of living.
I am grateful for this opportunity to stay on the planet.

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1 reply
stever1 | @stever1 | 4 days ago
In reply to @healthylynn "Hi Fellow Travelers. I want to update my experience with esophageal cancer treatments. A month ago..." + (show)
@healthylynn

Hi Fellow Travelers.
I want to update my experience with esophageal cancer treatments. A month ago I completed one year of immunotherapy; ipilimumab and nivolumab. This was the only western medicine/ treatment I received.
According to the recent PET scan and the endoscopy with biopsies I am cancer free.
This is great news and the changes that I have made, nutritionally, exercises, meditation and mindfulness will be a permanent way of living.
I am grateful for this opportunity to stay on the planet.

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Way to go HealthyLynn. Your lifestyle changes alongside western medicine have served you well. It's now your job to continue with this to keep the environment of your body in a state where cancer can't live. I'd be very interested to know what changes you made with your diet, mindset, and exercise. I'm on this same path and I feel certain that with my lifestyle changes, the cancer will not recur.

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1 reply
emersonmoon | @emersonmoon | 4 days ago
In reply to @stever1 "Way to go HealthyLynn. Your lifestyle changes alongside western medicine have served you well. It's now..." + (show)
@stever1

Way to go HealthyLynn. Your lifestyle changes alongside western medicine have served you well. It's now your job to continue with this to keep the environment of your body in a state where cancer can't live. I'd be very interested to know what changes you made with your diet, mindset, and exercise. I'm on this same path and I feel certain that with my lifestyle changes, the cancer will not recur.

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I’m interested too!

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lionsfan | @lionsfan | 3 days ago

I'm 8 months out from FolFox 5 chemotherapy and proton beam radiation treatment. I've had my share of bumps in the road, but am currently cancer free and feeling much better. I've restarted my 2.5 hour x 5 days per week workouts and have gained 10 pounds back of my 30 pounds lost. Expect some low moments just so you're ready, but they may not happen. Everyone's different in how they respond. Stay positive and good luck.

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