ESES or CSWS

Posted by wowsmurf @wowsmurf, 2 days ago

Has anyone have child diagnosed with continuing spike waves in sleep or electrical status epileptics during slow wave sleep? And how they are being treated? My son went on steroids for 6 months and it has helped. EEG looks better. Behavior got better. But now that we are weaning off and almost done we notice the impulsive behavior etc is starting to come back and it did go away for a few months. Last EEG still looked improved. Not sure what could be happening as to why the symptoms are coming back but EEG not as crazy as it was in the beginning. Anyone else have this. Could there be something more going on ?

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