1. < Infectious Diseases

Epstein Barr Nuclear AG AB IGG result of over 600

Posted by lsh @lsh, May 3, 2020

Hello, I am searching for information and also input because of my hideously high lab results for EBNA Nuclear AB IGG. My result was given as over 600. The range is less than 18 is negative. Over 22 is positive. To restate, my lab result is over 600.

I am 52. I did have mono at age 11. For at least four years I have complained on numerous times to my PCP of fatigue. We suspected thyroid but that has been treated and I still have suffered from bouts of fatigue, feeling like I was coming down with a bug, dizziness, etc for 3 or 4 days out of just about every month for the last eighteen months. I finally saw a naturopath who tested me for EBV.

I love my Naturopath, but I am wondering if I should be seeing a specialist because of this high lab result.
I am on a treatment plan of antiviral supplements, and immune supporting vitamins and supplements which she said will probably need to be taken for at least three months.

Has anyone else had numbers this high? I am having trouble finding much information on reactivated EBV.

Thank you!
Lisa

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anneh12345 | @anneh12345 | Oct 28 12:08pm
In reply to @caregiver49 "10 years here." + (show)
@caregiver49

10 years here.

Jump to this post

Have you been able to confirm if you have Chronic Epstein Barr?

REPLY
anneh12345 | @anneh12345 | Oct 28 12:14pm

Has your Drs been able to confirm you have Chronic Epstein Barr? I have high numbers as well but can't get into see an Infectious Disease Dr. assuming they would be able to tell me?

REPLY
1 reply
caregiver49 | @caregiver49 | Oct 28 12:30pm

Yes. Probably those told they have me/Cfs should ask to be tested. At least knowing its present may lead doctors to study it more. I should have been tested years ago. If I hadn’t requested the test I would not know.
Whatever these diseases turn out to be, if doctors label a patient with ME/CFS or similar maladies they stop looking for answers. EBV in my view should be on their list of blood tests.
Perhaps Dr Google is more useful in understanding than most physicians 🤕
Best wishes for your return to living with normalcy

REPLY
1 reply
caregiver49 | @caregiver49 | Oct 28 12:33pm
In reply to @anneh12345 "Has your Drs been able to confirm you have Chronic Epstein Barr? I have high numbers..." + (show)
@anneh12345

Has your Drs been able to confirm you have Chronic Epstein Barr? I have high numbers as well but can't get into see an Infectious Disease Dr. assuming they would be able to tell me?

Jump to this post

I asked my cardiologist to include it with my blood tests.

REPLY
anneh12345 | @anneh12345 | Oct 28 12:41pm
In reply to @caregiver49 "Yes. Probably those told they have me/Cfs should ask to be tested. At least knowing its..." + (show)
@caregiver49

Yes. Probably those told they have me/Cfs should ask to be tested. At least knowing its present may lead doctors to study it more. I should have been tested years ago. If I hadn’t requested the test I would not know.
Whatever these diseases turn out to be, if doctors label a patient with ME/CFS or similar maladies they stop looking for answers. EBV in my view should be on their list of blood tests.
Perhaps Dr Google is more useful in understanding than most physicians 🤕
Best wishes for your return to living with normalcy

Jump to this post

Is the test for me/cfs the Epstein-Barr blood test?
Here's my latest, I had 3 in early 2024. 1 Dr said i had cebv and another said no??
EBV VIRAL CAPSID AG (VCA) AB (IGM)59.70 H
U/mL
EBV VIRAL CAPSID AG (VCA) AB (IGG)543.00 H
U/mL
EBV NUCLEAR AG (EBNA) AB (IGG)48.30 H
U/mL
INTERPRETATION:RECENT

Suggestive of a recent Epstein-Barr Virus infection.
REFERENCE RANGE: < 36.00 U/mL EBV VCA AB (IgM)

U/mL Interpretation
============== ================
< 36.00 Negative
36.00 - 43.99 Equivocal
>43.99 Positive

=================================================
REFERENCE RANGE: < 18.00 U/mL EBV VCA AB (IgG)

U/mL Interpretation
============== ================
< 18.00 Negative
18.00 - 21.99 Equivocal
>21.99 Positive

=================================================
REFERENCE RANGE: < 18.00 U/mL EBV EBNA AB (IgG)

U/mL Interpretation
============== ================
< 18.00 Negative
18.00 - 21.99 Equivocal
>21.99 Positive S

REPLY
caregiver49 | @caregiver49 | Oct 28 1:15pm

There is no test for M.E./ Cfs. They say it is diagnosed by exclusion. If your tests are negative for things they understand they call it me/cfs. To me it says they don’t know what is causing the life altering symptoms and stop their search for possibilities. Like ME/CSF, EBV also is a mystery illness. My heart doc tried to get me seen at Mayo and I was turned down.
I think basically we are on our own. I am too worn out to chase help much longer. I now research to satisfy myself I have not missed something like the EBV blood test. More to help others than myself as I am getting too old to recover. Good luck

REPLY
1 reply
anneh12345 | @anneh12345 | Oct 29 10:35am
In reply to @caregiver49 "There is no test for M.E./ Cfs. They say it is diagnosed by exclusion. If your..." + (show)
@caregiver49

There is no test for M.E./ Cfs. They say it is diagnosed by exclusion. If your tests are negative for things they understand they call it me/cfs. To me it says they don’t know what is causing the life altering symptoms and stop their search for possibilities. Like ME/CSF, EBV also is a mystery illness. My heart doc tried to get me seen at Mayo and I was turned down.
I think basically we are on our own. I am too worn out to chase help much longer. I now research to satisfy myself I have not missed something like the EBV blood test. More to help others than myself as I am getting too old to recover. Good luck

Jump to this post

Im sorry to hear that, however I totally understand. Thank you for your efforts and all the best.

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