1. < Epilepsy & Seizures

Epidiolex

Posted by Carnation @carnation, Mar 16, 2020

Do any of you Adults take Epidiolex for your Seizures And does it reduce the amount of them? What type of side effects do you get from Epidiolex?

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pamelastewart5 | @pamelastewart5 | Mar 18, 2020

Hello, Carnation, My adult son has been taking Epidiolex for about a year. He also remains on Dilantin and Celontin, both of which he has been on for many years. Before, he was taking Medical Marijuana instead of Epidiolex. The Med. Marijuana was slightly more effective (he had a fewer seizures), but much, much more costly. The Epidiolex does help control his seizures, which occur only when he sleeps or dozes. He was diagnosed with Lennox-Gestault Syndrome a few years ago based on his symptoms (not on his EEG). The main side-effect we have noticed is drowsiness. Best wishes to you if you decide to try it!

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Carnation | @carnation | Mar 18, 2020
In reply to @pamelastewart5 "Hello, Carnation, My adult son has been taking Epidiolex for about a year. He also remains..." + (show)
@pamelastewart5

Hello, Carnation, My adult son has been taking Epidiolex for about a year. He also remains on Dilantin and Celontin, both of which he has been on for many years. Before, he was taking Medical Marijuana instead of Epidiolex. The Med. Marijuana was slightly more effective (he had a fewer seizures), but much, much more costly. The Epidiolex does help control his seizures, which occur only when he sleeps or dozes. He was diagnosed with Lennox-Gestault Syndrome a few years ago based on his symptoms (not on his EEG). The main side-effect we have noticed is drowsiness. Best wishes to you if you decide to try it!

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Thanks for the Information. 😁❤️

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mmas | @mmas | Apr 21, 2020

My daughter was on it and I noticed she would get dry heaving from it. We would give a heavier dose at night because that’s when she has her seizures. But if she woke she would be dry heaving. She was only 6 when she took it but compared to the other stuff she’s on i didn’t see much more of a change/side effects. She isn’t on it anymore because unfortunately it didn’t control her seizures. Best of luck!

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