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Epidiolex: Do you take it? Side effects?

Epilepsy & Seizures | Last Active: 6 days ago | Replies (9)

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Hello, Carnation, My adult son has been taking Epidiolex for about a year. He also remains on Dilantin and Celontin, both of which he has been on for many years. Before, he was taking Medical Marijuana instead of Epidiolex. The Med. Marijuana was slightly more effective (he had a fewer seizures), but much, much more costly. The Epidiolex does help control his seizures, which occur only when he sleeps or dozes. He was diagnosed with Lennox-Gestault Syndrome a few years ago based on his symptoms (not on his EEG). The main side-effect we have noticed is drowsiness. Best wishes to you if you decide to try it!

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Replies to "Hello, Carnation, My adult son has been taking Epidiolex for about a year. He also remains..."

Thanks for the Information. 😁❤️

Hi @pamelastewart5,
Nice to meet you!
Before starting pure CBD, I was also on medical marijuana with very low THC and like your son's experience, it controlled my seizures somewhat better than just pure CBD. But since there are quality and consistency issues with that kind of medication here in my country, my doctor switched to pure CBD/Epidiolex.
How has your son been doing on Epidiolex overall? Has his seizure frequency improved, and has the drowsiness gotten any better over time?
Chris