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Empty Sella Syndrome

Brain & Nervous System | Last Active: Jan 27 4:56pm | Replies (133)

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@nodakchik

I am currently being worked up for terrible headaches. Had an MRI of my brain and aside from finding out I probably had a stroke, the report states, "incidental partially empty sella" is found. Having no idea of what this was, I started researching it. I have so many of the symptoms. Have asked the Neurologist about it but was told that headaches are not a component of this disorder. Everything I've read states headaches are experienced by 90% of those with this condition. We are still working on a cause for my headaches but wondering what symptoms others are having with the empty sella...?? I don't think I've had my prolactin level checked (but my daughter recently found out she has a pituitary prolatinoma)- so then I also wonder if there's a heriditary component to any of this. ??? Any info is appreciated!!

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Replies to "I am currently being worked up for terrible headaches. Had an MRI of my brain and..."

I hope you've found some answers since 2013. I recently got this diagnosis as the doctor ordered an MRI for my migraines. I'm just learning about it but there isn't a lot of information. I think that crowdsourcing details about symptoms will help us all.