Emotional aftermath following breast cancer treatment

Posted by rhongirl @rhongirl, Aug 23, 2022

While I was diagnosed in Dec. 2019, chemo, cancer surgery, and four more surgeries took place over the next 2 1/2 years (one of which was a second cancer surgery). I'm 6 weeks out from my last surgery, feeling somewhat normal physically, but wading through the emotional aftermath. "What just happened to me?" I told my husband that I've spent the past 2 1/2 years trying to stay alive - and I'm exhausted. Exaggerated emotions with up-and-down mood swings. . . I find myself yearning for that sense of emotional equilibrium I had before this all began. I'm doing my best to give myself time for this part of the healing - but I find myself weary. Family and friends look at me like I'm fine now, and the trauma has passed - but the truth is, I am not fine on the inside. It's as if my body is trying to reboot emotionally, and its short-circuiting a bit. I am so goal-oriented. . . if I just had that "magic" date of when everything would be normal again, I could focus on that; but it doesn't work that way. I have to be patient with this portion of the healing - and I'm finding that hard. What are others' experiences with this? How long does it take for your emotions to settle from the trauma of breast cancer?

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@ck225

I am going through similar circumstances with stage four breast cancer metastasized in the bones. I was at stage two and had a three-year remission period that ended with a broken arm. Also have been diagnosed with PTSD. Not sure how to micromanage that. Or anything sometimes…I cannot get the support that I need from my family and my partner is absolutely nonresponsive and when he is, he’s ugly and insensitive. I am not ok but am expected to be absolutely fine.
I found that recovering from all the medication I went through and all of the surgeries at stage 2 was very difficult and it did take a couple of years. Remind yourself that you are not crazy. You went through a traumatic situation and your body is offkilter trying to survive and find balance, which is natural. Medicine is hard on our bodies. Just give yourself a little time and things will start to feel better and I do pray you are cancer free forever. Make sure you receive annual follow up scans!

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I agree with ksue3 below that counseling can really help. A social worker in oncology might be a good place to start. Also, there numerous support groups led by therapists. Your oncology team should be able to refer you to both. Depending on what kind of cancer center, palliative care can also help. They offer adjunctive therapies--some counseling, chaplains, sometimes massage and acupuncture. I've found that if I enter a situation kind of dedicating it to my healing it works well even if not perfect. Keep in touch with us!

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@ksue3

I didn't think about PTSD but it sure fits. We have been through a lot. I too have had deaths to deal with along with everything else. I am a widow and family not nearby. Friends were wonderful and helpful, just not the same as family.

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Hi
My Dr started me on zoloft 25mg. Going on 5 weeks finally feeling like myself. I had anxiety the first 3 weeks but now it's good. So glad I started it. Sorry for your losses and struggles. It's difficult for sure.

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Your words capture exactly how I’ve been feeling. There’s no describing it to the outside world as well as you’ve just done. Thank you for sharing your experience and know that you’re not alone.

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@ck225

I am going through similar circumstances with stage four breast cancer metastasized in the bones. I was at stage two and had a three-year remission period that ended with a broken arm. Also have been diagnosed with PTSD. Not sure how to micromanage that. Or anything sometimes…I cannot get the support that I need from my family and my partner is absolutely nonresponsive and when he is, he’s ugly and insensitive. I am not ok but am expected to be absolutely fine.
I found that recovering from all the medication I went through and all of the surgeries at stage 2 was very difficult and it did take a couple of years. Remind yourself that you are not crazy. You went through a traumatic situation and your body is offkilter trying to survive and find balance, which is natural. Medicine is hard on our bodies. Just give yourself a little time and things will start to feel better and I do pray you are cancer free forever. Make sure you receive annual follow up scans!

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Wow, good post! I know and feel your pain. The meds are insane. I was tortured and poisoned with Anastrozole. There was an investigation but one sided. I too have PTSD. I began to recover 4 months after stopping the year and a half of toxic Anastrozole.
Meanwhile, terrified of my 81 year old friend with metastatic prostate to bone but a year later started taking XTandi, $15,000 a month but doctor found a way to get it funded. He’s doing far better than me. I’m losing my hair from stress, radiation and Anastrozole. Terrified of doctors and panic attacks, still focusing on healing.
I am shocked at the lack of support, almost zero but am grateful for this forum. Take care and cheers to surviving.
Jan Wilder

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@sue417

Hi
My Dr started me on zoloft 25mg. Going on 5 weeks finally feeling like myself. I had anxiety the first 3 weeks but now it's good. So glad I started it. Sorry for your losses and struggles. It's difficult for sure.

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Glad Zoloft is helping. I was prescribed this med before cancer. People react very different to these medications. I had to stop after a week-Zoloft was worse than depression that finally passed.

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@sealskin

Glad Zoloft is helping. I was prescribed this med before cancer. People react very different to these medications. I had to stop after a week-Zoloft was worse than depression that finally passed.

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Hi
Yes the first 3 weeks were rough hi anxiety but my pharmacist told me to persevere. I am glad I did. You need lorezepam .5 mg when you first start it. You feel worse at first because it's changing your serotonin.

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@sue417

Hi
Wow I finished treatment this apr. Struggling with fatigue and the same emotional turmoil. Mood swings, depression. Also had 4 deaths happen during my treatment and putting my mom in a nursing home. In therapy and getting on meds. I have never felt this kind of mental exhaustion. I was told it's a form of ptsd

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Very similar situation here. Having lost several family members in 4 years, plus 2 pets. In the midst of my husband’s cancer journey, and choosing to end his struggles, I was diagnosed with breast cancer. Two surgeries & two years later a friend of his mentioned PTSD. The symptoms I am finally admitting to surely fit that diagnosis.

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@sasserb3

Very similar situation here. Having lost several family members in 4 years, plus 2 pets. In the midst of my husband’s cancer journey, and choosing to end his struggles, I was diagnosed with breast cancer. Two surgeries & two years later a friend of his mentioned PTSD. The symptoms I am finally admitting to surely fit that diagnosis.

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Hi
Sorry for your losses . I hope you get some help. I am glad I went on meds. It took a couple trys to find the right one. Zoloft 25mg is working for me. Counseling is definitely a good idea.

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