Connect
Early surgery: Can I get aortic aneurysm repair before it's 5.0?
I have a 4.1 ascending aortic aneurysm, and my local cardiologist tells me what every other one tells me, including Cleveland Clinic and Mayo. No surgery considered until 5.0, if valves are in good shape (mine are, except for 5% regurgitation).
The rationale offered for waiting: the risk of the surgery is greater than the risk of an event resulting from the aneurysm before it reaches 5.0. Meanwhile, I am told to limit myself to moderate exercise and to take drugs, in hopes of slowing growth of aneurysm.
I will be 71 next month, in good health, and very active. I am more interested in getting the repair done now so that I can resume a full life, rather than waiting around until I get feeble and less likely to have a good result when they eventually open me up for repair. I am much more willing to accept the risk of the surgery now than I will be 10 years down the road. I know, I know--it might never even require surgery--in which case, I can continue my life of "moderate exercise" until my number is finally up. Not interested.
Does anyone know a top surgeon who is willing to talk with me about getting this done now or in the near future?
Like
Helpful
HugInterested in more discussions like this? Go to the Aortic Aneurysms Support Group.
Connect
This is a question you should be asking a good cardiologist and surgeon about.
-
Like -
Helpful -
Hug
3 ReactionsI have a 5cm aorta aneurism grown from recent 4.8
A aortic artifical valve since 1990 34 years old
Been leaking,they say not much
Living with heavy breathing and exhaustion
People tell me to turn my head because i breathe so hard
72 years old
Should i have surgery or wait
-
Like -
Helpful -
Hug
1 ReactionThere are abdominal aneurysms, but this thread is referring to aortic aneurysms. I believe that they both can be viewed via ultrasound.
Thank you for your reply.
I thought there were also abdominal aneurysms, in which case the aneurysms wouldn't show on echocardiograms (not true?).
Start with an echocardiogram first. It should identify an aneurysm if present and well as any valve issues. Insurance will usually cover those.
I've been told an operation can be dangerous so best to wait. I have waited and now i am close to an operation and older than when it was first diagnosed. I would have preferred an operation earlier but i am not the surgeon. I hope they know what they are doing. They tell you to avoid stress, in this world? Good luck with that, and also not to lift over 50 pounds. That gives me a good excuse at the gym
What about the Endovascular (TEVAR) procedure? I've been reading about this procedure and it seems to be much less invasive. Like so many people in this forum, my aneurism diagnosis (even though it's under 5 cm) has really changed how I live my life and if this was a treatment option now, I'd probably do it.
Insurance I think should cover. I had to have both my kids tested for bicuspid aortic valve because I have that- insurance did cover both of their 2 d echos to rule that out. I am guessing also it is dependent on what caused the aneurysms. For me it was a congenital heart defect- my aorta was kinked- CoA- because of that and not a generic link they didn’t have to get the scans for the aneurysm. But any tests that was recommended by my cardiologist the pediatrician had no problem getting them ordered and covered- I am sure it would be the same for adult children as well.
Wow! That certainly IS young. Is a CT scan the usual way to check for aneurysms? How else do people find out?
My ex-husband died suddenly of a burst aneurysm a few months ago, and our sons were advised to be checked for aneurysms. I hope their insurance covers a. CT scan on grounds of their being hereditary high-risk.
I have no symptoms but chose to have a CT scan, that insurance won't pay for, because friends died suddenly, not because they had aneurysms. When friends die suddenly in their 50s you feel your own mortality.