E coli

Posted by imatine @imatine, Nov 3, 2020

Were you infected with e coli? How did you find out? What symptoms? What treatment did you take? Thanks so much

Hello @imatine. I see you are inquiring about E. coli in a couple different groups. I think this question is best supported in the Digestive Health Group (here) so you will notice I have removed it from the Kidney & Bladder Group.

Can I ask if you are having possible symptoms or what your experience is with E. coli?

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Hello Amanda, I am having pain in my stomach, abdomen, my left arm is hardly moving and I feel pain at the level of my kidneys. I have nausea, especially when I eat smth.

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Hello @imatine,

We have another member, @cdink1941, who has posted about e-coli. His post is under the topic of recurring kidney bladder infections. Here is the link to that discussion, https://connect.mayoclinic.org/discussion/bladder-invection/?pg=1#comment-419390.

I would like to invite @cdink1941 to join in this conversation.

As Amanda, @amandajro, has inquired what are your symptoms currently?

Liked by imatine

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@imatine

Hello Amanda, I am having pain in my stomach, abdomen, my left arm is hardly moving and I feel pain at the level of my kidneys. I have nausea, especially when I eat smth.

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Hello @imatine,

These sound like troublesome symptoms and undoubtedly require medical attention. Have you been told that these problems are related to e-coli?
Have you been evaluated by a physician?

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@imatine I had E coli after receiving radiation for pancreatic cancer. My symptoms were fever, chills and vomiting. The E coli was found in my blood not in my digestive system.

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@marvinjsturing

@imatine I had E coli after receiving radiation for pancreatic cancer. My symptoms were fever, chills and vomiting. The E coli was found in my blood not in my digestive system.

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@marvinjsturing Thanks for this information, Marvin. So you had a blood test that diagnosed the problem as E coli?

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Thank you @marvinjsturing I hope you are doing well now. What kind of blood test should I take? Thanks

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@ imatine – Sorry for butting in here! To find out if you have E.coli in your blood, you will have to have a blood culture – where they will watch for bacteria growth over 2-3 days. There is usually fever present too. E.coli in urine is probably more common. You will need a urine culture for this. With the symptoms you have, this could be a possibility. If a urine E.coli infection is severe, it can enter the blood stream- especially if your immune system is weakened, similar to Marvin.

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@hopeful33250

@marvinjsturing Thanks for this information, Marvin. So you had a blood test that diagnosed the problem as E coli?

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@hopeful33250 @imatine I had a blood culture done. I was surprised how quickly I got my results. I was in ER from about midnight to 3:00 AM. During that time blood was drawn for the culture. Then they sent me home. Just after lunch, they called me and told me I had to come back to be admitted to the hospital. They ran several tests and never found the cause. I had to have 15 infusions of antibiotics. I have not had problems with E coli since.

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@astaingegerdm

@ imatine – Sorry for butting in here! To find out if you have E.coli in your blood, you will have to have a blood culture – where they will watch for bacteria growth over 2-3 days. There is usually fever present too. E.coli in urine is probably more common. You will need a urine culture for this. With the symptoms you have, this could be a possibility. If a urine E.coli infection is severe, it can enter the blood stream- especially if your immune system is weakened, similar to Marvin.

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@astaingegerdm thank you so much for helpful message. I've done a urine culture today and hopefully will find out in a couple of days. Big hugs

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@marvinjsturing

@hopeful33250 @imatine I had a blood culture done. I was surprised how quickly I got my results. I was in ER from about midnight to 3:00 AM. During that time blood was drawn for the culture. Then they sent me home. Just after lunch, they called me and told me I had to come back to be admitted to the hospital. They ran several tests and never found the cause. I had to have 15 infusions of antibiotics. I have not had problems with E coli since.

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Thank you @marvinjsturing that's really helpful 🙏🏼

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Yes, thanks to @astaingegerdm and @marvinjsturing. I have learned a lot about E Coli through your posts.

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@hopeful33250

Yes, thanks to @astaingegerdm and @marvinjsturing. I have learned a lot about E Coli through your posts.

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Could I ask a question related to my collagenous colitis? I have been running a low grade fever every afternoon/evening for some time with this. It would disappear when I was on budesonide, but when we stopped that, it was back. Since July-August. By low grade I mean between 99.5 and up to (once) 100.7. Mostly it's 99.5-99.8 or 100. It comes in the afternoon, often goes through the early evening and then leaves later. Has anyone else had this kind of fever? One of the medical people I've seen thought it might be due to inflammation, but mostly they just note it down, seeming not to know what it means. I find it oddly debilitating — it makes me feel lethargic and weak.

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@elizabeth1944

Could I ask a question related to my collagenous colitis? I have been running a low grade fever every afternoon/evening for some time with this. It would disappear when I was on budesonide, but when we stopped that, it was back. Since July-August. By low grade I mean between 99.5 and up to (once) 100.7. Mostly it's 99.5-99.8 or 100. It comes in the afternoon, often goes through the early evening and then leaves later. Has anyone else had this kind of fever? One of the medical people I've seen thought it might be due to inflammation, but mostly they just note it down, seeming not to know what it means. I find it oddly debilitating — it makes me feel lethargic and weak.

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Hello @elizabeth1944,

I can understand your concern about this persistent low-grade fever. You say that your doctor is noting it but doesn't know the reason. I'm wondering what type of specialist you are seeing now?

Have you considered a second opinion?

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@elizabeth1944 – Hi! I also had collagenous colitis and took budesonide. I don’t recall having fevers. Your doctor might very well be correct- the inflammation can cause the fever. Budesonide is anti inflammatory- the disease calms down- fever is gone. However, when you have fever, I would ask the doctor to order some tests to be on the safe side. Blood tests, urine tests.

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