I really didn’t see a group that addressed dystonia and the issues it causes, My dystonia effects my eyes through blephrospasms, my neck (which pulls relentlessly to the right) and other facial muscles which take some concentration on my part to stay as normal as possible. With all this lumped together it is both physically and mentally exhausting to maintain as normal a life as possible. I have been treated with two medications and Botox with limited effect. The next step will be deep brain stimulation which will require some surgery to put everything in place to stimulate the brain in several areas to reduce the symptoms as much as possible. I just wondered if anyone has been through this procedure and what type of results and side effects have you experienced.