dysautonomia and /or MCAS

Posted by monikka @monikka, Sep 18 1:47pm

Livivng with Long Covid for two years. It took me a while to realize I was not myself anymore. My doctor told me that the symptoms might go away after a year . My other provider finally said I might be dealing with post covid dysautonomia. Based on my own research on line I might be dealing either with dysautonomia and/or MCAS . Has anybody in this group has been diagnosed with these Dxs?

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rodneyharding | @rodneyharding | Sep 19 5:27am

Check out the Cleveland Clinic MCAS Guide. They have done a lot of Research to figure out the Treatment for Multiple Symptoms ,that Affect People Differently. It is " Work in Progress " for all Involved trying to figure out COVID ...Now I'm not a Licensed Medical Doctor, I just do my own Research for my own Knowledge and Health Bennifits...

monikka | @monikka | Sep 19 11:19am

Thank you

vostie | @vostie | Sep 19 12:02pm

I have tried to find an allergist who can officially diagnosis MCAS for me but they are few and far between. I developed multiple food allergies following covid along with sporadic shortness of breath, tremendous itchy rashes on my legs, hot red cheeks after eating or drinking specific foods, fatigue, fluctuating pulse/blood pressure, nasal congestion, palpitations, and diarrhea. All of the food allergies are new post covid and my reactions initially were pretty severe. After 1 year on LDN, I have less reactions but when I do, they are significant. I do take Montelukast and a daily antihistamine but have yet to try cromolyn sodium. I do not take a histamine-2 blocker as I do not want to turn off most of the acid production in my stomach.

quickstepper | @quickstepper | Sep 20 10:17am

Yes, I have post covid dysautonomia, confirmed by my doctor. She says she has no treatments to offer me. I am slowly improving by doing wellness improvements in my lifestyle. Low carb eating, autonomic breathing and guided imagery practice, red light therapy, optimizing sleep, walking, early morning light exposure, drinking lots of water. It's been very slow improvement but it has helped.

monikka | @monikka | Sep 20 11:49am

In reply to @vostie "I have tried to find an allergist who can officially diagnosis MCAS for me but they..." + (show)

@vostie
Thank you

monikka | @monikka | Sep 20 11:50am

In reply to @quickstepper "Yes, I have post covid dysautonomia, confirmed by my doctor. She says she has no treatments..." + (show)

@quickstepper thank you so much

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