I have dry eyes due to sjogren's syndrome. Does anyone else deal with dry eyes?
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Yes. I went to the hospital and they did a a blood draw. They had me eat before I came in. The technician then took the blood and separated the blood from the plasma and made the drops. They are put into tubes that hold about 3 drops. You need a dedicated scissors to cut the tubes and you need to use alcohol to clean both the tubes and the scissors every time to eliminate the chance of infections. The plasma is rather thick and coagulates kind of keeping your eye protected.
Hope this helps.
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Ok. But that’s not what you said in your first post. You said the doctor had YOU make eye drops with your own blood, use them four times a day and keep them in the freezer. The way you presented it wasn’t possible or sanitary. Never mind the ridiculousness of you drawing your own blood and putting it in your eyes, if you keep blood in the freezer, it would be frozen, so you’d be thawing and refreezing the blood 4 times a day.
The drops com in tiny tubes I received about 100 of them. One tube per eye drops. About three drops per tube. I place the tube between my fingers for about 5 minutes which defrosts it. You can only use the tube for up to an hour.
I need to use alcohol to wipe the dedicated scissors and the tube to make them sterile.
@christinebuchar. This sounds very odd. How did you do this?
The eye doctor had me go to the hospital and give blood. They separated the plasma from it and put that into a long tube which they cut and sealed into small one inch tubes. To keep infection at bay I need to use alcohol to swipe on the scissors and the tube. There are about 3 drops per tube. They only last an hour unfrozen. Good luck
@christinebuchar That sounds much better! How long does the effect last for your eyes?
Thanks for taking the time to post this information! I had never heard of this type of eye drop before your post. It sounds really promising!
Did your insurance pay for it? I assume it's pretty expensive.
Yesterday at physical therapy, another patient told us about a plasma treatment for her rotator cuff tear that really helped her. Her insurance did not pay for it.
If you don't mind– what state are you in? what hospital made the drops for you?
BIG thank you!
I put them in 4 times a day. I use them because I have a rip in my cornea and I can’t stop it from reopening. So the eye doctor put in a contact lens to try to keep the rip closed. These drops help my contact from getting to dry. How long does it last, I guess in a 14 hour day divide by 4.
My insurance paid for all of it. I live in Rochester NY. I went to Strong Memorial hospital.
Pubmed is filled with references to the toxicity of benzalkonium chloride to the eye. It's been well studied and well documented. This is a (probably partial) list of damage done by BAK to the eye, which I copied and pasted from a medical article:
Decreased corneal, conjunctival, trabecular meshwork, and ciliary epithelial cell survival;
Corneal epithelial cell injury;
Conjunctival goblet cell loss;
Delayed corneal wound healing;
Lymphocyte infiltration of conjunctival; epithelium and stroma;
Elevates inflammatory marker concentrations in ocular tissues;
DNA fragmentation and oxidative damage in TM cells leading to altered gene expression ;
Induction of corneal epithelial cell apoptosis .
I've attached a pdf of this specific article, however there are many supporting article. BAK is a dangerous preservative.
…thanks for providing proof and I too wonder why it is still used (well I the reason, but why not another chemical instead of BAK)… when I look back over my 79 yrs I shake my head at all the medications I used without question in those day and wonder if any of my current issues were caused by them, will never know! J.
I'm sad to say that I've had to order medications without BAK from Australia and New Zealand, in the past. I've had to order Zioptan – glaucoma medication without BAK from an online pharmacy, because my insurance company wouldn't pay for anything but the generic cheap version – with BAK. My antihistamine for my eyes came from Australia. Why don't American ophthalmologists stand up for their patients against the use of BAK in nearly all over-the-counter eye medications? I have my suspicions, but won't share. There are FINALLY now some medications being developed and released which use a special filter to filter out BAK, but they are a pain in the butt to dispense into the eye. But maybe this is a signal that things will improve in the future.
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