@sueholdenf Hi Sue, thank you for the suggestion about hand controls. Looking back at this post, I remember how desperate I was. Since then, I have gone to the Pain Rehabilitation Center at Mayo Clinic and learned many tools to help with chronic symptoms, including strengthing, and am able to drive more comfortably with time limitations. Thank you again for your suggestion.
i wish i could afford to even get to the pain clinic and have a place to stay when i'm there. i am always in pain for a variety of reasons and i don't like taking opiods. the medical marijuana doesn't really help physically.
I think you mean ablating the nerves, which means removing them, by means of burning with electricity, chemically, etc. This is not possible with SFPN, as the problem involves vast numbers of small nerves, and anyway, even if possible, would probably be counteractive. Large nerves can be ablated, but do you really want to cut off sensation to your whole foot?
BTW, I find that my recently developed metatarsalgia (pain in the ball of my right foot due to degeneration of the joint, which is an orthopedic problem separate from the SFPN) is making the neuropathy worse in that foot. My podiatrist advises me to wear orthotics, but I can't wear shoes for very long because of the neuropathy. I ususally wear flip flops or go barefoot, which is bad for the metatarsalgia. Lots of fun!
I find that almost anything can effect PN, which makes it very hard to know what to do to make it better.
I've been diagnosed with SFN by my neurologist, also. And I also have arthritis in my back, knees and Im thinking my feet. Does the ball of your foot have shooting pains when u walk, because the joint beside my ankle has seemingly stabbing like pains in it, and stays swollen.. (Subtalar joint)
My feet can go numb when driving. Shifting my butt left and right helps a bit, so my guess is something about how I sit is cutting off something. This numbness goes away pretty quickly when I am out of the car. But I had this issue long before I had neuropathy in my feet so I am not sure it is related.
I am in the same boat as you with the feet and having them go numb when driving. At stop lights, I put the car in park, and tap ( briskly) my foot on the floor...and it actually helps the circulation. I live in PA, so I KNOW in the WINTER this is ten times worse. I have a garage, but an old car that I cannot "start" remotely. That would help. Anyone have any good ideas on this?
Best Wishes,
Fala
I've been diagnosed with SFN by my neurologist, also. And I also have arthritis in my back, knees and Im thinking my feet. Does the ball of your foot have shooting pains when u walk, because the joint beside my ankle has seemingly stabbing like pains in it, and stays swollen.. (Subtalar joint)
Those shooting pains could result from arthritis or various other mechanical/orthopedic issues unrelated to SFN. A good foot specialist would know what’s going on.
I believe that I have baxter's nerve entrapment. My numbness is when I am off of feet eg. when I'm in bed. During the day pain is under medial side of heel, medial ankle and spreads to lateral plantar to baby toe which is always numb.
This all hapend after TKR, caused by swelling of the inside of my ankle.
I believe that I have baxter's nerve entrapment. My numbness is when I am off of feet eg. when I'm in bed. During the day pain is under medial side of heel, medial ankle and spreads to lateral plantar to baby toe which is always numb.
This all hapend after TKR, caused by swelling of the inside of my ankle.
Thanks for responding. I've already read on that website. Doctors just say perhaps it'll just take time for inflammation to go down and release the nerve. I'm worried about permanent damage. Its been 9 months since tkr.
Connect
Connect
Like
Helpful
Hug
You’re welcome , I may look into a pain clinic myself to see if it helps k Thankyou
-
Like -
Helpful -
Hug
1 Reaction@sueholdenf I think that's a great idea! You have nothing to lose. Here is a link to PRC:
- https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691
Please let me know if you have any questions. What mostly would you hope to gain by attending the program?
-
Like -
Helpful -
Hug
1 Reactioni wish i could afford to even get to the pain clinic and have a place to stay when i'm there. i am always in pain for a variety of reasons and i don't like taking opiods. the medical marijuana doesn't really help physically.
I've been diagnosed with SFN by my neurologist, also. And I also have arthritis in my back, knees and Im thinking my feet. Does the ball of your foot have shooting pains when u walk, because the joint beside my ankle has seemingly stabbing like pains in it, and stays swollen.. (Subtalar joint)
I am in the same boat as you with the feet and having them go numb when driving. At stop lights, I put the car in park, and tap ( briskly) my foot on the floor...and it actually helps the circulation. I live in PA, so I KNOW in the WINTER this is ten times worse. I have a garage, but an old car that I cannot "start" remotely. That would help. Anyone have any good ideas on this?
Best Wishes,
Fala
-
Like -
Helpful -
Hug
3 ReactionsI got hand controls, it helped.
-
Like -
Helpful -
Hug
2 ReactionsThose shooting pains could result from arthritis or various other mechanical/orthopedic issues unrelated to SFN. A good foot specialist would know what’s going on.
-
Like -
Helpful -
Hug
1 ReactionI believe that I have baxter's nerve entrapment. My numbness is when I am off of feet eg. when I'm in bed. During the day pain is under medial side of heel, medial ankle and spreads to lateral plantar to baby toe which is always numb.
This all hapend after TKR, caused by swelling of the inside of my ankle.
@fourj, I'm sorry to hear you are having pain and numbness issues following your TKR. I did find some easy to understand information on treatment options if you have Baxter's Nerve entrapment.
--- https://www.texasfootsurgeons.com/services/foot-pain/entrapment-neuropathy.
Have you discussed your thoughts/concerns with your doctor or the surgeon who did the TKR to see if they have suggestions to help?
Thanks for responding. I've already read on that website. Doctors just say perhaps it'll just take time for inflammation to go down and release the nerve. I'm worried about permanent damage. Its been 9 months since tkr.
-
Like -
Helpful -
Hug
1 Reaction