Driving making neuropathy of the feet worse

Posted by wilcy @wilcy, Jul 7, 2019

Why does driving make neuropathy of feet worse? Have spinal stenosis!

@jeffrapp

Hi Jim
Your driving experience is almost exactly like mine.
About 6 months ago we bought a new car that has a form of cruise control that maintains a set distance from the car in front of you. It works amazingly well, especially on freeways, and allows me to keep my feet off the peddles more.
Since shoes and socks cause burning, I have even been known to drive barefoot (don't tell anyone), and control the peddles with my toes, in order to minimize the amount of contact with the peddles.
I have tried lidocaine cream, but I don't find that it helps much. I think it doesn't penetrate skin very well.
I am in the process of experimenting with different combinations using DMSO, which does penetrate. I'm hoping the DMSO will carry the lidocaine (or other substances like ketamine, phenytoin, etc.) with it.
I'll post results when I have them.
Meanwhile, good luck!
I wonder if anyone else has tried Ugg boots, which have a shearling lining. They seem to help some. I have even constructed shearling insoles for my various shoes, including flip flops. Lastly, I find that Crocs help some, probably because they are so roomy.

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Gentlemen

I've enjoyed the car stories despite the cause of these stories and your pain. I'm sorry.

I just drove 5 miles to test whether my break from lidocaine infusions this week made a difference and boy oh boy did they ever! It was unbearable and a miserable amount of pain in my feet and legs. Cold, numb, cramping, aching, burning pain. After 3 months on infusions, I knew my progression was worsening but not until this week did I get the full effect. My point being that I'm not able to wear sneakers . Today they were just slipped on without tying and I can't do it. I actually had just thought of winter and using my daughters Ugg boots. Not sure about my son's wedding next year.

Thanks for sharing your info.
Rachel

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@jeffrapp

Hi Jim
Your driving experience is almost exactly like mine.
About 6 months ago we bought a new car that has a form of cruise control that maintains a set distance from the car in front of you. It works amazingly well, especially on freeways, and allows me to keep my feet off the peddles more.
Since shoes and socks cause burning, I have even been known to drive barefoot (don't tell anyone), and control the peddles with my toes, in order to minimize the amount of contact with the peddles.
I have tried lidocaine cream, but I don't find that it helps much. I think it doesn't penetrate skin very well.
I am in the process of experimenting with different combinations using DMSO, which does penetrate. I'm hoping the DMSO will carry the lidocaine (or other substances like ketamine, phenytoin, etc.) with it.
I'll post results when I have them.
Meanwhile, good luck!
I wonder if anyone else has tried Ugg boots, which have a shearling lining. They seem to help some. I have even constructed shearling insoles for my various shoes, including flip flops. Lastly, I find that Crocs help some, probably because they are so roomy.

Jump to this post

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I have seen those crocs, but haven't ordered them yet. I bought another similar pair that didn't work. I think it's because I bought my regular size, but the fur lining made them too tight. I might try buying them one size larger.
Has anybody had any experience with this?

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@rwinney

Gentlemen

I've enjoyed the car stories despite the cause of these stories and your pain. I'm sorry.

I just drove 5 miles to test whether my break from lidocaine infusions this week made a difference and boy oh boy did they ever! It was unbearable and a miserable amount of pain in my feet and legs. Cold, numb, cramping, aching, burning pain. After 3 months on infusions, I knew my progression was worsening but not until this week did I get the full effect. My point being that I'm not able to wear sneakers . Today they were just slipped on without tying and I can't do it. I actually had just thought of winter and using my daughters Ugg boots. Not sure about my son's wedding next year.

Thanks for sharing your info.
Rachel

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I have diabetic necropsy in legs and feet. I am taking 900mg of Gabapentin AM< NONON, PM. It helps a little. I hurt so bad I want to scream. I am not getting any help. It hurts to walk and stand. I am still working today…. I hope I can continue tp work.

I am trying CBD cream on legs and feet. it helps… ideas any help please

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Hi John,
Still trying to get a handle on cause, progression and end stage of SFN. Do you think anyone would be willing to set up a survey that members on this site and/or the Facebook site with 8000+ members would be willing/able to develop. It would be helpful to many of us, and, who knows, maybe to medical researchers, family medical background, injuries, medications prior to onset, amalgam fillings, epidurals, vaccinations fairly recent to the onset, illnesses, age, weight, diet, exercise routine etc. to see if there are commonalities we share.

Popular right now is the Medical Medium who recommends juicing celery as a cure for many chronic diseases including many neurological conditions. Has anyone mentioned this?

Just desperate along with the rest of you. I'm doing the celery juicing and the Bishop group protocol but still deteriorating.

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@chace61

I have diabetic necropsy in legs and feet. I am taking 900mg of Gabapentin AM< NONON, PM. It helps a little. I hurt so bad I want to scream. I am not getting any help. It hurts to walk and stand. I am still working today…. I hope I can continue tp work.

I am trying CBD cream on legs and feet. it helps… ideas any help please

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I feel for you bc I have the neuropathy & there is no reason for it. I do have a disk that is pressing against the other & a bulging disk. I wonder if that can be contributing to my pain. Even with 900 mg of gabapentin, it doesn't help? I don't know what to do either. I'm scared to try Lyrica or Eleval. Does anyone know about the med Toparmax. My dr. mentioned it the other day but it looks like it has a lot of side effects. Has anyone taken it & have you had side effects.

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I am taking 900 mg of Gabapentin …no help type 1 diabetic…. the cbd creams help

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@chace61

I have diabetic necropsy in legs and feet. I am taking 900mg of Gabapentin AM< NONON, PM. It helps a little. I hurt so bad I want to scream. I am not getting any help. It hurts to walk and stand. I am still working today…. I hope I can continue tp work.

I am trying CBD cream on legs and feet. it helps… ideas any help please

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Hello and welcome to Connect. I'm sorry to hear of your diagnosis and I feel your pain. Mine is from Small Fiber Neuropathy via B12 deficiency.

Does your Neurologist have further ideas or treatments for you? Have you brought your pain to your Doctors attention?

Please search through the threads and learn of different products, techniques, such as myofacial release, injections, treatments etc…

Most people share their personal experiences, ddiagnosis, what works, what doesn't and current research that continues to happen through trial and error.

We are here to support one another and learn.

Wishing you relief from such awful pain.
Rachel

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SFPN idiopathic, causes burning pain in my feet, along with numbness. The tingling goes up to my knees. My feet hurt regardless what footwear I am or am not wearing. They hurt when I lie down or stretch out in the recliner. Contact with bedding really hurts, so I have a blanket lifter and lie on my side with my feet on a feather pillow. Sometimes it feels better if I wear some loose diabetic socks, but not always. PN can be unpredictable.

I have as much insole cushion as I can fit in my shoes. The ones I have liked the most is Air Plus work insoles industrial.

I can only wear shoes with a wide toe bed, and often I get a size larger to make room for the insoles. Clark's have become my favorite. I found some Nikes that I can wear outside, working and doing a fair amount of walking. Another good brand for me is Dansko.

I have to put insoles in Crocs, wear flip flops in the shower. I'm trying a new medication that seems to be helping. My feet don't hurt as much as they were before, and I can work in the yard or whatever.

Jim

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I am new to the Connect scene and only just learning that there are so many people out there with similar situations. I am 48 and have been dealing with issues in both feet for at least the past year. It started with a burning sensation in both feet, mostly at night. My foot doctor is only just at the point of saying that my symptoms match a neuropathy diagnosis. We just can’t figure out a cause. I had Tarsal Tunnel surgery on both ankles but it hasn’t helped.
I have also noticed that driving is becoming an issue. Cruise control helps but it scares me to think my foot is going to cramp up while I’m on the highway.
Has anyone else had a doctor suggest that this may be a genetic condition? I’m not sure how it helps but I’m just wondering.
Just want to say that hearing other people describe the same symptoms that I have is such a relief! I was really starting to wonder if I’m losing it…especially after the surgery didn’t solve all my problems. Thank you!
Tammy

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@walkingonpinsandneedles

I am new to the Connect scene and only just learning that there are so many people out there with similar situations. I am 48 and have been dealing with issues in both feet for at least the past year. It started with a burning sensation in both feet, mostly at night. My foot doctor is only just at the point of saying that my symptoms match a neuropathy diagnosis. We just can’t figure out a cause. I had Tarsal Tunnel surgery on both ankles but it hasn’t helped.
I have also noticed that driving is becoming an issue. Cruise control helps but it scares me to think my foot is going to cramp up while I’m on the highway.
Has anyone else had a doctor suggest that this may be a genetic condition? I’m not sure how it helps but I’m just wondering.
Just want to say that hearing other people describe the same symptoms that I have is such a relief! I was really starting to wonder if I’m losing it…especially after the surgery didn’t solve all my problems. Thank you!
Tammy

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Hello Tammy @walkingonpinsandneedles, Welcome to Connect. Thank you for sharing your symptoms. I've had numb feet for 20+ years but no pain associated. I've been diagnosed with idiopathic small fiber peripheral and have the fear of losing my ability to drive also even at my ripe old age of 76. You mentioned you had Tarsal Tunnel surgery. Burning feet is mentioned as one of the symtoms and the surgery is one of treatments.

National Organization for Rare Disorders – Tarsal Tunnel Syndrome
https://rarediseases.org/rare-diseases/tarsal-tunnel-syndrome/

Was your doctor thinking that the surgery would get rid of the burning sensation and pain in your feet?

There is another discussion that you may want to read through and meet other members discussing burning feet.

> Groups > Neuropathy > Burning Feet syndrome
https://connect.mayoclinic.org/discussion/burning-feet-syndrome/

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@jeffrapp

I have seen those crocs, but haven't ordered them yet. I bought another similar pair that didn't work. I think it's because I bought my regular size, but the fur lining made them too tight. I might try buying them one size larger.
Has anybody had any experience with this?

Jump to this post

I tried a pair of the fur lined crocs on and while I was impressed with the softness of the lining and the roominess of the toe box, I knew they would not worn for me because they were not cushioned enough in the sole.
Im not sure what I’m going to do for warm shoes as the weather gets colder. I found a pair of Sketchers walkers that are comfortable at the moment. I need a lot of cushioning, a big toe box and something breathable as my feet sweat a lot.

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@walkingonpinsandneedles

I am new to the Connect scene and only just learning that there are so many people out there with similar situations. I am 48 and have been dealing with issues in both feet for at least the past year. It started with a burning sensation in both feet, mostly at night. My foot doctor is only just at the point of saying that my symptoms match a neuropathy diagnosis. We just can’t figure out a cause. I had Tarsal Tunnel surgery on both ankles but it hasn’t helped.
I have also noticed that driving is becoming an issue. Cruise control helps but it scares me to think my foot is going to cramp up while I’m on the highway.
Has anyone else had a doctor suggest that this may be a genetic condition? I’m not sure how it helps but I’m just wondering.
Just want to say that hearing other people describe the same symptoms that I have is such a relief! I was really starting to wonder if I’m losing it…especially after the surgery didn’t solve all my problems. Thank you!
Tammy

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Hi Tammy and welcome! I'm sorry to hear of your pain. Perhaps it's time to rule out neuropathy by visiting a neurologist and being tested.
Wishing you luck.
Rachel

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@johnbishop

@wilcy, Just curious if you have discussed the driving making the neuropathy worse with your doctor or neurologist? I have no medical training or background but don't really think driving is a cause of making neuropathy worse. Driving can be a problem due to having to sit in a fixed position for awhile, back, leg, foot strain, etc. — all can add up to make anything worse (just my thoughts).

So, driving causes your feet to hurt (pain) more?

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Had steroid shot yesterday between L3-4 ! Already 100% better!

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@wilcy, 100%! Yipee Skippee! That’s a great number. How long is it supposed to last? Be happy and content today. Chris

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