Driving making neuropathy of the feet worse

Posted by wilcy @wilcy, Jul 7, 2019

Why does driving make neuropathy of feet worse? Have spinal stenosis!

I am new to the Connect scene and only just learning that there are so many people out there with similar situations. I am 48 and have been dealing with issues in both feet for at least the past year. It started with a burning sensation in both feet, mostly at night. My foot doctor is only just at the point of saying that my symptoms match a neuropathy diagnosis. We just can’t figure out a cause. I had Tarsal Tunnel surgery on both ankles but it hasn’t helped.
I have also noticed that driving is becoming an issue. Cruise control helps but it scares me to think my foot is going to cramp up while I’m on the highway.
Has anyone else had a doctor suggest that this may be a genetic condition? I’m not sure how it helps but I’m just wondering.
Just want to say that hearing other people describe the same symptoms that I have is such a relief! I was really starting to wonder if I’m losing it…especially after the surgery didn’t solve all my problems. Thank you!
Tammy

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@walkingonpinsandneedles

I am new to the Connect scene and only just learning that there are so many people out there with similar situations. I am 48 and have been dealing with issues in both feet for at least the past year. It started with a burning sensation in both feet, mostly at night. My foot doctor is only just at the point of saying that my symptoms match a neuropathy diagnosis. We just can’t figure out a cause. I had Tarsal Tunnel surgery on both ankles but it hasn’t helped.
I have also noticed that driving is becoming an issue. Cruise control helps but it scares me to think my foot is going to cramp up while I’m on the highway.
Has anyone else had a doctor suggest that this may be a genetic condition? I’m not sure how it helps but I’m just wondering.
Just want to say that hearing other people describe the same symptoms that I have is such a relief! I was really starting to wonder if I’m losing it…especially after the surgery didn’t solve all my problems. Thank you!
Tammy

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Hello Tammy @walkingonpinsandneedles, Welcome to Connect. Thank you for sharing your symptoms. I've had numb feet for 20+ years but no pain associated. I've been diagnosed with idiopathic small fiber peripheral and have the fear of losing my ability to drive also even at my ripe old age of 76. You mentioned you had Tarsal Tunnel surgery. Burning feet is mentioned as one of the symtoms and the surgery is one of treatments.

National Organization for Rare Disorders – Tarsal Tunnel Syndrome
https://rarediseases.org/rare-diseases/tarsal-tunnel-syndrome/

Was your doctor thinking that the surgery would get rid of the burning sensation and pain in your feet?

There is another discussion that you may want to read through and meet other members discussing burning feet.

> Groups > Neuropathy > Burning Feet syndrome
https://connect.mayoclinic.org/discussion/burning-feet-syndrome/

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@jeffrapp

I have seen those crocs, but haven't ordered them yet. I bought another similar pair that didn't work. I think it's because I bought my regular size, but the fur lining made them too tight. I might try buying them one size larger.
Has anybody had any experience with this?

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I tried a pair of the fur lined crocs on and while I was impressed with the softness of the lining and the roominess of the toe box, I knew they would not worn for me because they were not cushioned enough in the sole.
Im not sure what I’m going to do for warm shoes as the weather gets colder. I found a pair of Sketchers walkers that are comfortable at the moment. I need a lot of cushioning, a big toe box and something breathable as my feet sweat a lot.

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@walkingonpinsandneedles

I am new to the Connect scene and only just learning that there are so many people out there with similar situations. I am 48 and have been dealing with issues in both feet for at least the past year. It started with a burning sensation in both feet, mostly at night. My foot doctor is only just at the point of saying that my symptoms match a neuropathy diagnosis. We just can’t figure out a cause. I had Tarsal Tunnel surgery on both ankles but it hasn’t helped.
I have also noticed that driving is becoming an issue. Cruise control helps but it scares me to think my foot is going to cramp up while I’m on the highway.
Has anyone else had a doctor suggest that this may be a genetic condition? I’m not sure how it helps but I’m just wondering.
Just want to say that hearing other people describe the same symptoms that I have is such a relief! I was really starting to wonder if I’m losing it…especially after the surgery didn’t solve all my problems. Thank you!
Tammy

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Hi Tammy and welcome! I'm sorry to hear of your pain. Perhaps it's time to rule out neuropathy by visiting a neurologist and being tested.
Wishing you luck.
Rachel

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@johnbishop

@wilcy, Just curious if you have discussed the driving making the neuropathy worse with your doctor or neurologist? I have no medical training or background but don't really think driving is a cause of making neuropathy worse. Driving can be a problem due to having to sit in a fixed position for awhile, back, leg, foot strain, etc. — all can add up to make anything worse (just my thoughts).

So, driving causes your feet to hurt (pain) more?

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Had steroid shot yesterday between L3-4 ! Already 100% better!

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@wilcy, 100%! Yipee Skippee! That’s a great number. How long is it supposed to last? Be happy and content today. Chris

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@tigreyes2004

I feel for you bc I have the neuropathy & there is no reason for it. I do have a disk that is pressing against the other & a bulging disk. I wonder if that can be contributing to my pain. Even with 900 mg of gabapentin, it doesn't help? I don't know what to do either. I'm scared to try Lyrica or Eleval. Does anyone know about the med Toparmax. My dr. mentioned it the other day but it looks like it has a lot of side effects. Has anyone taken it & have you had side effects.

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Hi, @tigreyes2004 – here is some Mayo Clinic information on topiramate (Topomax) https://www.mayoclinic.org/drugs-supplements/topiramate-oral-route/description/drg-20067047

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@walkingonpinsandneedles

I am new to the Connect scene and only just learning that there are so many people out there with similar situations. I am 48 and have been dealing with issues in both feet for at least the past year. It started with a burning sensation in both feet, mostly at night. My foot doctor is only just at the point of saying that my symptoms match a neuropathy diagnosis. We just can’t figure out a cause. I had Tarsal Tunnel surgery on both ankles but it hasn’t helped.
I have also noticed that driving is becoming an issue. Cruise control helps but it scares me to think my foot is going to cramp up while I’m on the highway.
Has anyone else had a doctor suggest that this may be a genetic condition? I’m not sure how it helps but I’m just wondering.
Just want to say that hearing other people describe the same symptoms that I have is such a relief! I was really starting to wonder if I’m losing it…especially after the surgery didn’t solve all my problems. Thank you!
Tammy

Jump to this post

@walkingonpinsandneedles

I live in central Oregon, where there are great doctors, but for more in depth testing, my neurologist referred me to Oregon Health Sciences University hospital in Portland. One of the tests was a DNA, and there were indicators of a hereditary connection. I already assumed that, since my father and all five of my siblings have had neuropathy.

Driving can be painful. I'm just glad that someone invented cruise control.

Jim

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