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I have one Question to the group: is it ok to take a flight of stairs in the house right after you are discharged fri. The hospital?
The house we are renting has bedrooms upstairs, so I was wondering if that should be a concern?
Great question! After my kidney transplant my blood pressure became very low, I also needed some time to adjust to the effects of the new meds, sometimes I became very dizzy with little warning. Although I didn't have specific restrictions by my team at Mayo I just would ask my husband for help if I thought I was unsteady when maneuvering up and down stairs or we'd use the complimentary wheelchairs at hospitals if we needed to get to an appointment and I felt weak or lightheaded. I don't think anyone can predict exactly what each individual will experience or how our bodies will react.
@meenusingh After transplant, or any major surgery, where new medications and protocols are put in place, it takes time to adjust. Be gentle on yourself. Don't try to be a hero. Accept help when it is offered. Ask for help when needed. You know your body best, and listen as it tells you what is going on. My husband tried to do more than he should at the beginning. After that laid him low for a few days, he listened more, and recovery went well after that. Hope this helps.
@meenusingh, Welcome to Connect. And Congratulations on your new transplant!
I am happy to meet you…I am also a liver/kidney recipient. After you are settled and in full recovery mode, I would be interested to hear your story.
My transplant was 9 years ago and I did not have steps to contend with. I can only remember the 'do not lift' and the do not drive' restrictions at this point. My biggest concern would have to be, "Where is the bathroom?" You do not need to be doint stairs hurriedly, or repeatedly.
Yes, this should be a concern for you. So, please talk to your transplant team about this. Only they are qualified to know your particular aftercare needs.
Thank you so much for all the prompt and concerned replies! I am grateful for that
Yes, the lesson I am hearing is that listen to your body and take it slow
Ask for help
And it’s different things for different people
Rosemary, I am still waiting for the organs. It could be any day or a month as I am told. Yes would love to connect and share my story..
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I definitely am sending prayers heavenward for you and your donor.
Where will you transplant? Will you receive both organs at the same time?
Aww! Thank you sooo much Rosemary!! I need all the prayers. I am Geeta ng it done in Rochester as I am a Primary hyperoxalurea type 1 case . Yes both organs at the same time and removal of native kidneys; all at once!
My native kidneys were not removed at time of transplant. I had a different set of circumstances, though.
Are you on dialysis?
@meenusingh Although I had a much different condition than you I wanted to reach out and let you know I had my native kidneys removed at time of (kidney) transplant too. My experience with the surgery and recovery went very well and I hope yours does as well.
@meenusingh, I want to take a moment to say, "Hi, I hope that you are making forward progress". Have you received any update about a transplant? How are you feeling?
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