Dofetilide and Artrial fibrillation
So I am taking Dofetilitide and ever since it has been hiding the Afib pretty good and went to a new cardiologist because my old one left. But the electophsygiist could not find the Afib in my records from the 10 years that I have been switched to different medication and going back to 18 years ago I was put on an event monitor and that is how they found out I had it. I was pretty bad then and bad palpitations where I had to lay down and had over 3 hours. Any way they want to take me off my medication because they can’t find it anymore does anyone have thoughts on this? It scares me because I was so bad before and my old cardiologist made me promise to never go off of it. My records don’t go back from 18 years ago and they just don’t seem to believe me these doctors. Now they found Supra Ventricular tachycardia. Oh they said don’t worry you can’t die from Afib.
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I can no longer edit my post (thanks for the positive reaction!), but I should have posted that sometimes one of the 'fixes' might also be a valve replacement/repair. For example, it is known that a prolapsed mitral valve, the valve that lets blood flow from the left atrium into the left ventricle, can cause atrial fibrillation. A repair sometimes discourages more AF and the patient may never have it again. Or, it is very easily held at bay via mild drugs and little of them....for a long time. Or, an ablation does what it does for so many patients who have AF for a discernible reason....stops the arrhythmia and the chaos it generates in their lives.
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1 Reaction@gloaming Thanks so much. I see my cardiologist tomorrow. Had this 5 weeks. I had a problem with old cardiologist... He said he's doing EKG (my Kardia device always says normal sinus rythm. Ambulance also. ER also.) No troponin. He said he's doing a sonogram also? I'm so scared I'm beside myself. My PA said stress. Gave me Ativan. Does nothing. My back feels like an ice pick between my shoulder blades. ER said I have some spinal stenosis but no answer to the pain cause. At times I want to die. I've never experienced anything like this. PS hot spells when it stops at 5 am. Starts when I fall asleep. Never daytime, I don't think.
@dcypherzzz Your biggest ally is your 'normality', or what you remember of it. Your worst enemy might be........MIGHT BE... your own mind, maybe unresolved difficulties that you're suppressing without realizing it. So, as little as I can do for you, and I'd really like to see you win at this, you may have to fight like the dickens to keep an open and inquisitive mind, one that tends to be optimistic and to hope for the best. Try not to doubt, to worry, and to expect the worst. Be willing to try something and to run with it hard for at least a couple of weeks to see if you don't begin to get a welcome change.
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2 Reactions@gloaming Yes, I need to be positive. Went 100 miles to cardio. No dr. Just had EKG and sonagram. He'll call in a week. The girls said sorry, all the monitors are out...
I'm extremely worried and I must try to change my mindset.
Thank you.
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1 Reaction@dcypherzzz sending prayers and have a positive mindset and I know how difficult it is
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2 Reactions@gloaming I've incorporated positive thinking, much prayer and following my friend's helpful suggestions. Last night, I fell asleep at 9 pm. I woke at 10:30 pm with palpitations. I took .5 mg lorazepam. Woke 4:30 with palpitations, took .5 mg lorazepam. Woke at 7:45 AM!! Woke up and gave thanks for the sleep.
I had a stomach issue yesterday that scared me. I'm trying to wean myself off Protonix. Symptoms? Chest pain and nausea!!! I can't be doing that right now! I feel so good this morning. Thank my wonderful friends and Jesus! And the drugs? I'm aware these meds may be covering up something but my doctors are saying it's stress. Thanks for listening. I'm in the big heat wave!
@dcypherzzz Good! I don't know what Protonix is, but guessing it's a PPI? Those shouldn't be used often or for long as far as I know. They can mess with the gut biome and with electrolyte balances, not to mention nutritional absorption in the gut.
I feel you must be a good person....at heart, and under it all...like the rest of us. Let yourself off the hook for past problems, correct what you can and must (what you know you must, as painful as it may be), and reclaim your life. Keep an open mind, and if you have any energy and no work/life obligations that take up too much of your time, maybe volunteer a bit? Such purposes can really spice up an existence. My wife and I shop with an organization that does grocery order shopping for shut-ins. The call in their orders, a group of us receive them and write them on forms, and the the shoppers meet on certain mornings, take a form, plunk it on a writing board, grab a shopping cart, and begin to go up and down the aisles filling those orders. It's exercise, and it is helping a poor soul who can't do this for themelves....just as an idea of what I mean about volunteering. It might be good for your brain to have that good-heartedness working for you. Note that I don't presume you AREN'T doing volunteering already, but if you aren't, would you consider it? 😀
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