Dofetilide and Artrial fibrillation

Posted by lisa619 @lisa619, Mar 12 7:41pm

So I am taking Dofetilitide and ever since it has been hiding the Afib pretty good and went to a new cardiologist because my old one left. But the electophsygiist could not find the Afib in my records from the 10 years that I have been switched to different medication and going back to 18 years ago I was put on an event monitor and that is how they found out I had it. I was pretty bad then and bad palpitations where I had to lay down and had over 3 hours. Any way they want to take me off my medication because they can’t find it anymore does anyone have thoughts on this? It scares me because I was so bad before and my old cardiologist made me promise to never go off of it. My records don’t go back from 18 years ago and they just don’t seem to believe me these doctors. Now they found Supra Ventricular tachycardia. Oh they said don’t worry you can’t die from Afib.

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I can no longer edit my post (thanks for the positive reaction!), but I should have posted that sometimes one of the 'fixes' might also be a valve replacement/repair. For example, it is known that a prolapsed mitral valve, the valve that lets blood flow from the left atrium into the left ventricle, can cause atrial fibrillation. A repair sometimes discourages more AF and the patient may never have it again. Or, it is very easily held at bay via mild drugs and little of them....for a long time. Or, an ablation does what it does for so many patients who have AF for a discernible reason....stops the arrhythmia and the chaos it generates in their lives.

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Profile picture for gloaming @gloaming

@dcypherzzz It's a great question.....................best answered between you and a consulting electrophysiologist. An EP will look at your file, talk to you, ask for one or two diagnostics such as an angiogram..maybe...and decide for him/herself if you are likely to do well with an ablation.

Ablations can stop the unwanted cardiac rhythm. They don't always work, although a repeated attempt usually improves the chances by at least 10%. The more complex your arrhythmia, the more difficult it is to ablate. The more advanced your arrhythmia, the more difficult it is to ablate. So we tell people to make up their minds sooner rather than later if they want to have an ablation, but that puts them in the position of having to learn more. Here is what matters:

a. The type of arrhythmia. Some kinds don't do well with ablations and may need a pacemaker;

b. Many arrhythmias tend to progress, either to worse forms of themselves or to include other arrhythmias. The idea is to treat them as soon as formally diagnosed either with medicine or with mechanical 'fixes', they being ablations or a pacemaker;

c. And finally, in many cases medicine is about treating symptoms, or rather trying to maintain or to improve the patient's quality of life. As you know only too well, arrhythmias can greatly impact one's quality of life with sleep loss, crappy sleep when you get it, feeling anxious, inability to function well and to maintain relationships, etc. Most of us soon accept that the best treatment is one that is least invasive and risky, but that also stops or severely limits those unwanted side-effects (from drugs) and symptoms.

If you have not been formally assessed yet, you should get that done last afternoon. The reason is that some arrhythmias present a higher risk of a stroke because the poorer circulation of blood in an affected heart can encourage clotting. Escaped clots get lodged into the heart itself, the lungs, the organs, and worst of all, the brain. If you have atrial fibrillation, as an example, your risk of a clot and a stroke from it rises to about 5 times what it was before your heart began to act up. So my advice is to get to a cardiologist ASAP and to begin to educate yourself about the arrhythmia you seem to have. From there, knowledge will be your trump card.

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@gloaming Thanks so much. I see my cardiologist tomorrow. Had this 5 weeks. I had a problem with old cardiologist... He said he's doing EKG (my Kardia device always says normal sinus rythm. Ambulance also. ER also.) No troponin. He said he's doing a sonogram also? I'm so scared I'm beside myself. My PA said stress. Gave me Ativan. Does nothing. My back feels like an ice pick between my shoulder blades. ER said I have some spinal stenosis but no answer to the pain cause. At times I want to die. I've never experienced anything like this. PS hot spells when it stops at 5 am. Starts when I fall asleep. Never daytime, I don't think.

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Profile picture for dcypherzzz @dcypherzzz

@gloaming Thanks so much. I see my cardiologist tomorrow. Had this 5 weeks. I had a problem with old cardiologist... He said he's doing EKG (my Kardia device always says normal sinus rythm. Ambulance also. ER also.) No troponin. He said he's doing a sonogram also? I'm so scared I'm beside myself. My PA said stress. Gave me Ativan. Does nothing. My back feels like an ice pick between my shoulder blades. ER said I have some spinal stenosis but no answer to the pain cause. At times I want to die. I've never experienced anything like this. PS hot spells when it stops at 5 am. Starts when I fall asleep. Never daytime, I don't think.

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@dcypherzzz Your biggest ally is your 'normality', or what you remember of it. Your worst enemy might be........MIGHT BE... your own mind, maybe unresolved difficulties that you're suppressing without realizing it. So, as little as I can do for you, and I'd really like to see you win at this, you may have to fight like the dickens to keep an open and inquisitive mind, one that tends to be optimistic and to hope for the best. Try not to doubt, to worry, and to expect the worst. Be willing to try something and to run with it hard for at least a couple of weeks to see if you don't begin to get a welcome change.

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Profile picture for gloaming @gloaming

@dcypherzzz Your biggest ally is your 'normality', or what you remember of it. Your worst enemy might be........MIGHT BE... your own mind, maybe unresolved difficulties that you're suppressing without realizing it. So, as little as I can do for you, and I'd really like to see you win at this, you may have to fight like the dickens to keep an open and inquisitive mind, one that tends to be optimistic and to hope for the best. Try not to doubt, to worry, and to expect the worst. Be willing to try something and to run with it hard for at least a couple of weeks to see if you don't begin to get a welcome change.

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@gloaming Yes, I need to be positive. Went 100 miles to cardio. No dr. Just had EKG and sonagram. He'll call in a week. The girls said sorry, all the monitors are out...

I'm extremely worried and I must try to change my mindset.
Thank you.

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Profile picture for dcypherzzz @dcypherzzz

@gloaming Yes, I need to be positive. Went 100 miles to cardio. No dr. Just had EKG and sonagram. He'll call in a week. The girls said sorry, all the monitors are out...

I'm extremely worried and I must try to change my mindset.
Thank you.

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@dcypherzzz sending prayers and have a positive mindset and I know how difficult it is

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Profile picture for gloaming @gloaming

@dcypherzzz Your biggest ally is your 'normality', or what you remember of it. Your worst enemy might be........MIGHT BE... your own mind, maybe unresolved difficulties that you're suppressing without realizing it. So, as little as I can do for you, and I'd really like to see you win at this, you may have to fight like the dickens to keep an open and inquisitive mind, one that tends to be optimistic and to hope for the best. Try not to doubt, to worry, and to expect the worst. Be willing to try something and to run with it hard for at least a couple of weeks to see if you don't begin to get a welcome change.

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@gloaming I've incorporated positive thinking, much prayer and following my friend's helpful suggestions. Last night, I fell asleep at 9 pm. I woke at 10:30 pm with palpitations. I took .5 mg lorazepam. Woke 4:30 with palpitations, took .5 mg lorazepam. Woke at 7:45 AM!! Woke up and gave thanks for the sleep.
I had a stomach issue yesterday that scared me. I'm trying to wean myself off Protonix. Symptoms? Chest pain and nausea!!! I can't be doing that right now! I feel so good this morning. Thank my wonderful friends and Jesus! And the drugs? I'm aware these meds may be covering up something but my doctors are saying it's stress. Thanks for listening. I'm in the big heat wave!

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Profile picture for dcypherzzz @dcypherzzz

@gloaming I've incorporated positive thinking, much prayer and following my friend's helpful suggestions. Last night, I fell asleep at 9 pm. I woke at 10:30 pm with palpitations. I took .5 mg lorazepam. Woke 4:30 with palpitations, took .5 mg lorazepam. Woke at 7:45 AM!! Woke up and gave thanks for the sleep.
I had a stomach issue yesterday that scared me. I'm trying to wean myself off Protonix. Symptoms? Chest pain and nausea!!! I can't be doing that right now! I feel so good this morning. Thank my wonderful friends and Jesus! And the drugs? I'm aware these meds may be covering up something but my doctors are saying it's stress. Thanks for listening. I'm in the big heat wave!

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@dcypherzzz Good! I don't know what Protonix is, but guessing it's a PPI? Those shouldn't be used often or for long as far as I know. They can mess with the gut biome and with electrolyte balances, not to mention nutritional absorption in the gut.

I feel you must be a good person....at heart, and under it all...like the rest of us. Let yourself off the hook for past problems, correct what you can and must (what you know you must, as painful as it may be), and reclaim your life. Keep an open mind, and if you have any energy and no work/life obligations that take up too much of your time, maybe volunteer a bit? Such purposes can really spice up an existence. My wife and I shop with an organization that does grocery order shopping for shut-ins. The call in their orders, a group of us receive them and write them on forms, and the the shoppers meet on certain mornings, take a form, plunk it on a writing board, grab a shopping cart, and begin to go up and down the aisles filling those orders. It's exercise, and it is helping a poor soul who can't do this for themelves....just as an idea of what I mean about volunteering. It might be good for your brain to have that good-heartedness working for you. Note that I don't presume you AREN'T doing volunteering already, but if you aren't, would you consider it? 😀

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