Does Vitamin B-12 help with neuropathy?

Posted by Retired Teacher @retiredteacher, Jan 24, 2019

I have developed neuropathy in my feet—-especially the soles. When I walk, it’s like walking on shards of glass that are on fire. Several articles indicate that B-12 can help. I don’t want to take any prescribed meds. I have Diabetes 2. This not being able to walk without intense pain has kept me from even walking the grocery store to buy groceries. Can anyone give me information about B-12 and foot neuropathy?
Thanks,
Carol

@elained

Interesting, John. I cannot 'walk' in the normal sense, but I spend about an hour on the NU-STEP several times a week. I also exercise in the water, tho' i know that won't affect the atrophy.

I believe that my muscle atrophy is primarily caused by denervation. Two of the primary nerves in my lowers legs are completely non-responsive in an EMG and the third is severely damaged.

First EMG 2010:

INTERPRETATION:
1. PROFOUND AXONAL NEUROPATHY: RIGHT AND LEFT PERONEAL AND TIBIAL NERVES.
2. PERIPHERAL NEUROPATHY: RIGHT AND LEFT PERONEAL AND TIBIAL NERVES.
3. RIGHT AND LEFT SURAL NERVE NEUROPATHY

QUOTE Denervated muscles atrophy rapidly. Neurogenic atrophy is faster and more complete than disuse atrophy, although these types may be difficult to differentiate in some patients.

This quote is from Science Direct. Because I'm new I cannot include links in my posts.

QUOTE: Axonal degenerative polyneuropathies tend to produce weakness along with muscle atrophy, but atrophy is much less conspicuous in segmental demyelinating polyneuropathies because in these disorders the axon remains in continuity with the muscle, preventing denervation atrophy. The most common symptom in polyneuropathy is weakness in dorsiflexion of the feet at the ankles. This can result in a partial or complete foot drop that typically causes the feet to slap while walking and predisposes the patient to stumble and fall when the toes catch on an uneven surface.

This quote is from the Cleveland Clinic. I cannot post the link.

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Very interesting elaine and am wondering what NU Step is?
I want to underscore john’s urging us to do as much exercise as possible to maintain what muscle mass we can. I wear leg braces and know that with the huge walking and balance benefits my braces give me they prevent my calf and other muscles that I still have from being activated.
So I frequently walk around my house (very carefully) to use those leg muscles.

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The NU-STEP is an exercise machine. You sit in the seat, and press the pedals back and forth (not like bike pedals, but rather like brake pedals) and at the same time you pull and push the large levers back and forth. So you exercise your legs and arms at the same time.

You can set the 'resistance' level, and adjust the seat and arm levers to fit your body.

The monitor displays your 'speed' and other measurements, like distance and calories consumed.

There is a tray below the monitor, where I place my large iPad. Using the wifi at the gym, and my cordless earphones, I can watch movies while I exercise.

It is marvelous.

I would post a link to show you the Nu-Step, but I am a new member and cannot post links yet.

Regards, ElaineD

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@elained

The NU-STEP is an exercise machine. You sit in the seat, and press the pedals back and forth (not like bike pedals, but rather like brake pedals) and at the same time you pull and push the large levers back and forth. So you exercise your legs and arms at the same time.

You can set the 'resistance' level, and adjust the seat and arm levers to fit your body.

The monitor displays your 'speed' and other measurements, like distance and calories consumed.

There is a tray below the monitor, where I place my large iPad. Using the wifi at the gym, and my cordless earphones, I can watch movies while I exercise.

It is marvelous.

I would post a link to show you the Nu-Step, but I am a new member and cannot post links yet.

Regards, ElaineD

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Here are the different models/prices of the Nu-Step cross trainer @elained is using (I think):
https://www.nustep.com/product-category/cross-trainers/

Here's a less expensive hybrid elliptical-recumbent exercise bike that I use. I think the Nu-Step is better but the older model ProForm that I have works for my needs. It does have resistance settings. I use the elliptical every morning for about 10 to 15 minutes to help with the legs. I think any exercise is good. I wished I had an indoor pool for water therapy close by.
https://www.proform.com/hybrid-training

John

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@johnbishop

Here are the different models/prices of the Nu-Step cross trainer @elained is using (I think):
https://www.nustep.com/product-category/cross-trainers/

Here's a less expensive hybrid elliptical-recumbent exercise bike that I use. I think the Nu-Step is better but the older model ProForm that I have works for my needs. It does have resistance settings. I use the elliptical every morning for about 10 to 15 minutes to help with the legs. I think any exercise is good. I wished I had an indoor pool for water therapy close by.
https://www.proform.com/hybrid-training

John

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@johnbishop Those look nice, but I certainly couldn't afford one. I'll have to stay with a treadmill, the stairs in my house, and exercising to walking tapes. It would be nice if insurance covered these aids for people with problems, but I don't think that's going to happen.
Carol

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@retiredteacher

@johnbishop Those look nice, but I certainly couldn't afford one. I'll have to stay with a treadmill, the stairs in my house, and exercising to walking tapes. It would be nice if insurance covered these aids for people with problems, but I don't think that's going to happen.
Carol

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Hi Carol @retiredteacher – I only paid a little less than $300 for mine and it's small enough that I can have it in my bedroom and have easy access to it.

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@johnbishop

Hi Carol @retiredteacher – I only paid a little less than $300 for mine and it's small enough that I can have it in my bedroom and have easy access to it.

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@johnbishop The less expensive bike would be doable, but in the thousands—wow; too much for me. For now, I'm going to have to stay with my tread, stairs, and tapes. We had a pool in every house we lived in except the one we own now. Too bad because I could use one for pool exercises. I think they would be really beneficial, but I don't get in public pools. It's just a germ thing I have about public places.
Carol

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@retiredteacher

@johnbishop The less expensive bike would be doable, but in the thousands—wow; too much for me. For now, I'm going to have to stay with my tread, stairs, and tapes. We had a pool in every house we lived in except the one we own now. Too bad because I could use one for pool exercises. I think they would be really beneficial, but I don't get in public pools. It's just a germ thing I have about public places.
Carol

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I use the Nu-Step at my fitness center. I haven't thought at all about buying one! We're moving to a Senior Living Center, and they have both a warm water indoor pool, and at least two Nu-Step machines in the gym.

Regards, ElaineD

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@johnbishop

Hi @fbell330, That's interesting, I've never heard of B12 doing anything to aggrevate the nerves and have never seen any research or data showing it can be harmful. I know each of us are different in how we absorb different vitamins and minerals and that could account for problems or conditions. I am interested in learning more if you can point me to some references on why B12 made things worse for you. Thank you…John

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I have just recently become aware of the need to monitor B12 and since have been taking it occasionally. I have done some enquiries about dosage (Pharmacy, Diabetes nurses, on-line and GP) etc. and have also never seen or heard any cautions about it. Interesting and it may be an individual reaction

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@bulgebattler

I have just recently become aware of the need to monitor B12 and since have been taking it occasionally. I have done some enquiries about dosage (Pharmacy, Diabetes nurses, on-line and GP) etc. and have also never seen or heard any cautions about it. Interesting and it may be an individual reaction

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Hi @bulgebattler, The only information I've seen or read is about B12 deficiency and the need to monitor for it. But I did find an interesting article on the possibility of too much B12. I have no medical training or background but the way I read the article is high levels of B12 are not toxic but if you have high levels it can indicate other health issues.

B12 deficiency related:

Indicators for assessing folate and vitamin B-12 status and for monitoring the efficacy of intervention strategies
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3142735/
Expert recommends annual monitoring, injections of vitamin B12 for long-term metformin users
https://www.healio.com/hematology-oncology/news/print/hemonc-today/%7B01b7451f-5f04-4de5-a97d-aac607bc3f21%7D/expert-recommends-annual-monitoring-injections-of-vitamin-b12-for-long-term-metformin-users

And there's this one that talks about the possibility of too much B12 and why:
Are You Overdoing It On The B12?
http://www.phlabs.com/are-you-overdoing-it-on-the-b12

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Much appreciated. I will read those articles as well as continue to research

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@johnbishop

Hi @bulgebattler, The only information I've seen or read is about B12 deficiency and the need to monitor for it. But I did find an interesting article on the possibility of too much B12. I have no medical training or background but the way I read the article is high levels of B12 are not toxic but if you have high levels it can indicate other health issues.

B12 deficiency related:

Indicators for assessing folate and vitamin B-12 status and for monitoring the efficacy of intervention strategies
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3142735/
Expert recommends annual monitoring, injections of vitamin B12 for long-term metformin users
https://www.healio.com/hematology-oncology/news/print/hemonc-today/%7B01b7451f-5f04-4de5-a97d-aac607bc3f21%7D/expert-recommends-annual-monitoring-injections-of-vitamin-b12-for-long-term-metformin-users

And there's this one that talks about the possibility of too much B12 and why:
Are You Overdoing It On The B12?
http://www.phlabs.com/are-you-overdoing-it-on-the-b12

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My B12 level was greater than 1500 on a scale of 123-720 in 2012. At that time I was taking very large doses of the Vitamin B12 called Methylcobalamin (Methyl B12).

I was hoping Methylcobalamin (Methyl B12) would cause healing of my damaged nerves. I took a very large dose several times a day for nearly two years. I had no improvement. And I had no negative side effects from the large dose.

However, I understand that there can be problems for people who also have kidney problems, particularly diabetic neuropathic kidney disease, (since excess Vitamin B is excreted through the kidneys). By the way, I had NO idea neuropathic kidney disease existed!
https://www.healthline.com/nutrition/too-much-vitamin-b12
My neuropathies aren't caused by a Vitamin deficiency, so it makes sense that extra Vitamins can't really help.

I have hated my neuropathy, I have struggled against it, I have sorrow and I have grieved. Now I have some level of acceptance (I hope), and fortunately I have reasonable relief of pain. But I must take my medication (gabapentin) regularly or the burning returns.

Thank goodness for the medications that give me relief.

Regards, ElaineD

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You can set the 'resistance' level, and adjust the seat and arm levers to fit your body.

The monitor displays your 'speed' and other measurements, like distance and calories, consumed.

There is a tray below the monitor, where I place my large iPad. Using the wifi at the gym, and my cordless earphones, I can watch movies while I exercise.

REPLY
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