Does reducing exposure to Mycobacteria ( NTM) work?
Ok, I’m sure this will open up a whole hornets nest , but here we go….
I was at a pulmonologist appt yesterday , at a Recognized Bronchiectasis & NTM Center Of Excellence . This was my second appt there.
Both appts when I asked about the risk with MAC in water , etc, the pulmonologist stated there’s no evidence that changing shower heads , drinking water , etc , will keep someone from getting MAC. *She said “ it’s not scientifically proven” . She’s had patients that do all those things and still fight MAC. She’s also had patients that did none of it and they either didn’t get MAC, or were able to get rid of the MAC with standards treatments , and they continued to do fine without starting all the MAC preventions .
Lastly, she said they ( researchers ) still don’t know why some people get MAC and others never do , regardless of any preventative measures . Therefore , if you’re one of the ones to never get MAC, you could be doing all the MAC lowering risk measures for nothing , as you may have not become infected anyway .
She did recommend I wear a mask if gardening.
.
This is all new to me. I had a MAC sighting in the first culture I had there last Dec , but this last one it was negative .
Again , she’s at a Center Of Excellence, so this was all surprising to me . Apparently there’s not consensus in the medical community regarding this topic. Sure makes it hard to know how to navigate it all….
Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.
Connect

@sueinmn yes! Thanks so much . I like that it’s a recent review .
@sueinmn Thanks for posting this really interesting article. I’ve read it once, but need to reread a few times before I comment!
There is a lot to digest but it is very insightful and it’s a recent publication.
I have been thinking about some of these questions, but I don’t have a scientific background.. this is so helpful.