Vestibular migraine: What symptoms do you experience?

New to the group. Been suffering from vertigo/dizziness and nausea since June of this year. In August I got diagnosed with Vestibular Migraines. While I do suffer from regular migraines and have not had a regular migraine since June, these VM episodes that I am experiencing are mainly just the dizziness and nausea and ear ringing and an occasional head pain or twinge but not always. Doctor started me on Ajovy shot and some supplements but the dizziness and nausea have not subsided. I have it everyday, all day long. I work full-time as a teacher and am coming to work every day but not feeling the greatest. I am really at a loss here. Not sure what else to do but I know that or hope that this cannot be my new norm.

New to the group. Been suffering from vertigo/dizziness and nausea since June of this year. In August I got diagnosed with Vestibular Migraines. While I do suffer from regular migraines and have not had a regular migraine since June, these VM episodes that I am experiencing are mainly just the dizziness and nausea and ear ringing and an occasional head pain or twinge but not always. Doctor started me on Ajovy shot and some supplements but the dizziness and nausea have not subsided. I have it everyday, all day long. I work full-time as a teacher and am coming to work every day but not feeling the greatest. I am really at a loss here. Not sure what else to do but I know that or hope that this cannot be my new norm.

Welcome to Mayo Clinic Connect, @zpagan. Glad you've had a break from regular migraines and that you've got the vestibular migraines diagnosed.

Trying to work as a teacher everyday while not feeling your best sounds challenging.

What did your doctor tell you to expect so far with the fremanezumab-vfrm (Ajovy)?

Hi, I don't know how you are able to work with these symptoms. I'm sorry to hear that you are suffering. I have been dizzy since January 2020. What you describe sounds like what I have been told is "silent migraines." Now there's another fancy name for it. Ajovy did not work for me but has helped many others. None of the other popular preventives have helped me either. Propranolol has been somewhat helpful as a preventive for full blown migraine HA and Reyvow for abortive. Do you have a neurologist? If not, try to find one that helps you keep searching rather than a neuro that passes you off to a nurse that only provides maintenance. I'm not dismissing the importance of specialized nurses--they are important. I just feel that a continued search for successful remedies is important. A book that has helped me a lot: Victory Over Vestibular Migraine: The Action Plan For Healing & Getting Your Life Back by Shin C. Beh, MD

Thank you, I will look that book up. I am feeling like nothing is going to work for me either as I have already tried topamax, gabapentin and now ajovy. My biggest complaint is the dizziness and nausea NOT headaches.

In december i had high stress and anxiety about my job and other personal stuff in my life. I started notcing my eyes would have a hard time tracking movement, wne in motion my left eye would slowly drift to the left i couldnt focus oand had convergency issues. Sweets and cocolate started making my eyes sensitive to movement aswell. i caught the Flu in january and sinus infection followed by a another cold all in january. and new symptoms arised from all that mess. foods started causing internal trembling sensations and movement sensations in my head and music/sound of own voice started causing the sensations and a feeling of disquilibreum in my body. New symptoms would arise each month limiting my life
Traveling would change my bowl habits, being in motion would case my movement sensations and soon looking at screens at phones causing symptoms aswell.
I did vng and it revealed 45% weakness in left ear with cold caloric test. CT and MRI scans were all normal. VNG changed how my movement sensation functioned into full on spinning and feeling like im traveling or on a boat or rollercoaster. Neurologist suggesting vm or dysautonomia/ ppd still figuring it out she said. at this point only rice and eggs arent causing smptoms. Noticed im getting temperature regulation issues and feeling like something crawling on my skin to feeling a pulling sensation in my legs when i rest and feel the sensations. These sensations are constant.

What could this be?

In december i had high stress and anxiety about my job and other personal stuff in my life. I started notcing my eyes would have a hard time tracking movement, wne in motion my left eye would slowly drift to the left i couldnt focus oand had convergency issues. Sweets and cocolate started making my eyes sensitive to movement aswell. i caught the Flu in january and sinus infection followed by a another cold all in january. and new symptoms arised from all that mess. foods started causing internal trembling sensations and movement sensations in my head and music/sound of own voice started causing the sensations and a feeling of disquilibreum in my body. New symptoms would arise each month limiting my life
Traveling would change my bowl habits, being in motion would case my movement sensations and soon looking at screens at phones causing symptoms aswell.
I did vng and it revealed 45% weakness in left ear with cold caloric test. CT and MRI scans were all normal. VNG changed how my movement sensation functioned into full on spinning and feeling like im traveling or on a boat or rollercoaster. Neurologist suggesting vm or dysautonomia/ ppd still figuring it out she said. at this point only rice and eggs arent causing smptoms. Noticed im getting temperature regulation issues and feeling like something crawling on my skin to feeling a pulling sensation in my legs when i rest and feel the sensations. These sensations are constant.

What could this be?