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Does anyone take Azithromycin and Ethambutol every day?
After being diagnosed with MAC in December 2022, I have been seeing Dr. Winthrop, ID doctor at OHSU. I was on the clofazamine trial, got the placebo, but only one sputum sample since then has indicated MAC, and my CTs were relatively stable, so in spite of the coughing which gets better and worse, I thought I was doing okay with airway clearance. But this visit he’s not happy with the pattern of the CT scans, no big decline, but over the three years it’s showing more and more tree in bud. So now he wants me to start just the 2 drugs, but daily. I’ve never heard of that. I thought it was either 3 day or 5 day.
By the way, he did say that the clofazamine study which is to be released soon does show that it does have positive results. Whether that means it’s good enough to use on its own or not, I did not have the opportunity to ask, but I will.
Thanks to all who share your experiences.
Anna
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@sonofrio It takes several days before you get a response from either the on-line form, or a phone call. But if you prefer to call, the number is (507) 538-3270.
The way it works, in either case, is that basic information is taken, then routed to the most appropriate department. Someone from that department will call you for an in-depth phone interview, and explain the next steps and probable timeline to you (this varies from one department to another based on staffing.)