1. < Autoimmune Diseases

Does anyone suffer from CIRS (Chronic Inflammatory Response Syndrome)?

Posted by sunnyred2247 @sunnyred2247, Oct 26, 2022

I have CIRS, and looking for others who r, as well. So few Drs who even know what it is!!

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

marshasanger | @marshasanger | Sep 15, 2023
In reply to @becsbuddy "@marshasanger I hope the following site will be of some help to you. https://moldfreemenu.com/35-safe-foods-when-recovering-from-mold-exposure-and-five-to-avoid-completely/ It has..." + (show)
@becsbuddy

@marshasanger I hope the following site will be of some help to you.
https://moldfreemenu.com/35-safe-foods-when-recovering-from-mold-exposure-and-five-to-avoid-completely/
It has a list of foods that are safe for you to eat and ones to avoid.
Do you live in a town that’s near to a hospital?

Jump to this post

I eat steamed vegetables, frozen boiled organic chicken, oatmeal, apples, gluten free bread and losing weight which I don’t want to do.

Vitamins d and c and Quercetin. Can’t take antihistamines.

REPLY
marshasanger | @marshasanger | Sep 15, 2023

Where do I find a reply? Just keeps spinning me around.

REPLY
1 reply
Mentor
Becky, Volunteer Mentor | @becsbuddy | Sep 15, 2023
In reply to @marshasanger "Where do I find a reply? Just keeps spinning me around." + (show)
@marshasanger

Where do I find a reply? Just keeps spinning me around.

Jump to this post

@marshasanger What reply would you like to find? Replies from members are not instant. They come in from all over the country at lots of different times of day.
Do you have a medical doctor who can evaluate your weight loss? Zooming is great, but it doesn’t replace in person meetings
https://www.sjchsa.org/Assistance/General-Assistance This website will help you contact the people at the Agency on Aging in Stockton. There are many ways this organization can help you. Will you reach out to them?

REPLY
marshasanger | @marshasanger | Oct 9, 2023

What can I eat to PUT ON SOME WEIGHT?

Down to 80 pounds.

HELP!!!!

REPLY
luir | @luir | Jan 30 3:53pm
In reply to @tessb90 "Sorry, I haven't read the full thread yet, as I have only just made an account..." + (show)
@tessb90

Sorry,
I haven't read the full thread yet, as I have only just made an account to comment.

Just wanted to let you know that after a lot of self diagnosis due to useless doctors, and weighing up what symptoms could be due to long covid. After nearly three years i've finally managed to find the correct diagnosis of CIRS.

It's been the worst three years of my life, and I am only just starting to be able to make some headway toward getting back to normal after nearly 6 months of sleeping in a makeshift isolation bedroom.

I haven't gotten much further than being able to think slightly more clearly, and some steps toward getting my mobility back, but it still sucks.

Being in Australia, there aren't even any labs capable of running the complete screening blood tests that can indicate whether or not it's likely that you have it.

So I'm at an impasse medically.
I have a decent GP now, but the infrastructure doesn't exist to test for it.
The only way is to have one of two doctors in the country, who both happen to work on the other side of the country; send off the blood samples to a singular lab in Brisbane capable of running the first round of testing. Then send the blood-work in dry ice, to one lab in the US.

There is no pathway for actual medicinal treatment, due to the strict guidelines around prescribing the applicable medications.

So attempting to get better is very slow going at the moment

Jump to this post

Hi Tessa!

Can you please please please connect me with the doctors and provide info on the lab in brisbane?! Im in sydney.. and I desperately need to know if what im suffering with is cirs or not.

Many thanks in advance if you can help me!!!

REPLY
bayhorse | @bayhorse | Jan 31 12:16pm

Could you please tell me what type of physician diagnosed you? I go to an integrative pcp who does lots of testing for mold-born, tick-related and other illnesses that traditional doctors don't know about or bother with, but still have never heard of CIRS.

REPLY
1 reply
imads | @imads | Feb 12 12:41pm

I feel like a robot. Lathargic and depressed all the time.

REPLY
connecting29 | @connecting29 | Apr 17 8:18pm

I get my results back in 2 weeks. I would be shocked if it was negative.

REPLY
willwingert | @willwingert | Apr 23 11:47pm
In reply to @boonay "Does anyone know of doctors that treat CIRS in the Chicagoland area? I am in the..." + (show)
@boonay

Does anyone know of doctors that treat CIRS in the Chicagoland area? I am in the north suburbs. I have CRPS and it was looking forward to a treatment two weeks after moving to a new apartment and the treatment can you possibly put me back to work part time for the first time in eight years. I moved into my new apartment and became incredibly sick at the time I woke up the first morning. Bottom line is the place was filled with mold, the entire building was but my unit was the worst how am I all they did was lie about it and didn’t care, because I’m disabled and low income I had waited five years to live there and my small emotional support pet is now dying after never being sick a day in his life and I am getting worse very quickly. I live there from August, 2019 until October, 2020 as it was very difficult trying to find a place but I did. I’m 59 years old and feel like getting better is hopeless at this point.

I’ve never had a doctor call me back that is certified in detox and my understanding is that none of them take insurance anyway.

I will take any suggestions. Running back-and-forth to a bunch of different places for tests and things is not possible either. Very desperate!

Jump to this post

I have CIRS. Dont waste your time with regular brick and mortar doctors. they have never heard of it and are lost on environmentally aquired illnesses. Go to surviving mold.com. Find a Shoemaker qualifed Dr in your area. Shoemaker is not the end all be all but he discovered CIRS and the Shoemaker certified Drs at least know what they are doing with this. yes! is is a devastating illness.

REPLY
View MoreView Less
Please sign in or register to post a reply.