I have CIRS, and looking for others who r, as well. So few Drs who even know what it is!!
Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.
@marshasanger Welcome to Mayo Clinic Connect! I’m so sorry that texting or typing is difficult for you. Unfortunately, that is the only way we have of communicating. Connect tries very hard to protect everyone’s name and phone number. Do you have a family member or friend who might help you with typing?
Did you have something you wish to discuss or ask the group?
Jump to this post
No one to help me as by myself. Been exposed to black mold and suffering so much with side effects. What do others eat as I’m following the CIRS diet and losing weight. Down to 80 pounds if that. Don’t have a scale now. Wondering if someone could recommend a bonafide person I can trust for information. I do go to a naturopath on zoom but so far only prescribed antihistamines and they have the opposite effect on me and agitate me so unable to sleep. I’m aware of the Shoemaker and Nathan’s books but need one on one. I’m living in Stockton, CA and want help. People find and call me but when I call back they’re not responding. Afraid of scams and scammers. Appreciate any reliable sources and advice and information. Thank you 🙏.
Please let me know what type of food you’re eating and medication you’re taking. Just so curious. Thanks.
Need someone to “talk” to who’s walking in my CIRS footsteps to give me some advice and positive feedback as right now I’m not in a good place. Thank you.
Tell what you eat for breakfast and lunch on a CIRS diet.
How and where do I read comments from the CIRS group???!!!!
What do you eat and what medication do you take for CIRS?
Hi @marshasanger, you can click this link to read the comments from CIRS discussion from the beginning:
– Does anyone suffer from CIRS (Chronic Inflammatory Response Syndrome)?
Wow… my heart goes out to U!! Mine is a longggg story, and I’m still desperately trying to find help. Was just in the hospital and NOT ONE NURSE OR DR. Knew one thing about it!!!
Before being diagnosed I had 6 years of a myriad of odd infections, severe explosive diarrhea that didn’t respond to any of tge many drugs prescribed ( couldn’t leave the house)., much mucus and constantly blowing my nose. I’m now experiencing issues with pain/numbness of legs… While. I in the hospital I had numerous MRIs… showed inordinate amount of white lesions on my brain… they ruled out MS … many CIRS pts have been erroneously diagnosed with MS. I hope I’ve answered some of ur questions I’d b More than Happy to speak with you anytime if u felt it could be beneficial. I’m Doctored out!!! U REALLY DO ALMOST HAVE TO BE UR OWN DIAGNOSTITION!!!!! Sad
Have they tested for MOGAD? Newer diagnosis, often first thought to be MS or even Non-MS demyelinating auto-immune disorder. It started for me in March '23, and I wasn't officially diagnosed until end of August.
@marshasanger I hope the following site will be of some help to you.
It has a list of foods that are safe for you to eat and ones to avoid.
Do you live in a town that’s near to a hospital?
Connect with thousands of patients and caregivers for support and answers.
Already have an account? Sign In