Does anyone know of anyone whom has gotten over Long Covid Condition

Posted by jimmiep @jimmiep, Jul 30, 2023

We are all hearing of our issues that don't seem to get any better BUT, does anyone know of someone who has beat this bug. My wife made the comment that those who beat it probably don't communicate hear on this sight any more. If someone has found a way to beat this thing please let the rest of us know how you did it.
I've only been dealing with this for 7 months now and I am exhausted with it. Hearing that some have been suffering with this for 2 1/2 to 3 years is dis-heartening for sure. I really feel bad for you folks. I'd be a pot head by now. At least I'd be able to control the way I feel. I'm starting to think that way. Good luck everyone.

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YES. There are many of us who have healed from long haul. You will not get the information through your typical western medicine doctors/specialists. I can provide lots of information. I mentioned it in the forums for a LONG TIME but it was just too depressing to watch thousands of people suffer and no one else listen (in the medical community) to those of us who HAVE HEALED.

My most recent Covid case was October 2021. The long haul kicked in Feb 2022 -- I was in a terrible state -- practically housebound and unable to work/function. And I went back to work full time in November 2022. Been working full time since, though I am careful with my energy levels.

I can give you a long haul protocol. I am not joking. It's as simple as anti-inflammatory diet + LOW histamine diet -- both VERY strictly followed. This alone works wonders because you must get the inflammation levels down in your body + reduce histamine levels as much as possible. This along with B-3 (niacinamide, non-flushing, 500mg x 3 daily) works wonders. It's because B-3 helps your body create more NAD again; NAD is stripped by Covid and is absolutely needed for all physiological functions in ALL the cells and systems. Also, hydration -- but use Liquid IV (one packet daily very very watered down) or a healthier option like LMNT. You must have the electrolytes in order to absorb the supplements.

You can also research MCAS (mast cell activation syndrome), as the protocols/symptoms/diet is similar. I truly wish you ALL the very best and hope for your immensely speedy recovery. You WILL see a difference with this protocol. DM me for more info...

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If you're interested, there's also a Facebook Covid/Long-Haulers group which is where I found a lot of my information initially. Like in March/April 2022, I mean, because I had recovered by July/August 2022. You may have to dig through the forums a bit too, but there are PLENTY of people sharing from around the world and offering easy guidelines for what helps.

Another big part of healing long haul is balancing the nervous system, but since I have just mentioned the diet and key supplements here, we'll start with that. Getting the worst symptoms under control is clearly the most important place to start. I wish you all the very best!

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@jimmiep

I feel like I've mostly recovered, but it wasn't until I started medication for fibromyalgia - Savella & Lyrica. Without them I'm sure I'd still have symptoms.

Even after going through the Mayo Clinic's long Covid program I felt like I was just barely hanging on. Now life is enjoyable again.

I don't know if I had the fibromyalgia before I had Covid or if Covid triggered the fibromyalgia. What I do know is that it helps to see doctors from all sorts of backgrounds if you can. It took 6 months to get in to see my local rheumatologist, but it was so worth it.

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It been 5 months for me and I'm almost over L covid (vaxxed, boosted, paxlovid). I have celiac so already have a gluten free/minimal processed food diet. I don't have allergies so histamines are not a problem. I got a double cytokine storm in early March from getting glutened and covid at the same time. Post-covid symptoms were mostly fatigue and heart trying to break its way out of my chest. It has mostly been a slow gradual improvement in which I can gradually ramp up exercising and such with lots of rest breaks. Oddly, I got a shingles vaccine at the end of June that wiped me out for more than two weeks. After recovering I noticed my covid symptoms had decreased. I wonder if my immune system targeting the vaccine distracted it from any nasty covid bits wandering around my system. I guess time will tell. With covid it is important to eat well, avoid stress, get enough sleep and rest, and be nice to yourself. Find something good to do every day to break away from its grip.

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I'm the one you've answered in two different topics. I'm really looking for some common sense answers. I'm willing to give this a 100% try. This sounds like a good option and it's a good diet to boot. I tried the lions diet to try to reset the immune system. It just made me extremely week and caused my fevers to go nuts. It was worth a try.
I'm really glad to here this worked well for you. Today I start a new diet and supplements. We grow all are own food so vegetarian isn't an issue. Thank you for taking the time to share your adventure in this fine new demon weve all been cursed with.

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Thank u🌝..ordered Liquid IV and B3.. will start low histamine anti-inflammatory diet. Thank God I finally found a local Dr that thinks outside the box! I’m determined to kick this thing!

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I'm so glad you feel supported by your local doctor. I think a lot of them know long haul is real, but they have no idea how to treat it so it's easy to dismiss...

The Liquid IV is very strong (way too strong) if you use it as instructed. Just ignore the package instructions -- we are using it in a different way. I watered it down and drank it throughout the day, so one packet was enough to put into 32-64oz of water. The reason it works is because of the high sodium, potassium and B-3 levels (yes! there's that B-3 again). It is vitally necessary for actual absorption of nutrients into the cells + the B-3 helps your body create more NAD, which is also vitally necessary. I wish you all the best!

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@kayabbott

It been 5 months for me and I'm almost over L covid (vaxxed, boosted, paxlovid). I have celiac so already have a gluten free/minimal processed food diet. I don't have allergies so histamines are not a problem. I got a double cytokine storm in early March from getting glutened and covid at the same time. Post-covid symptoms were mostly fatigue and heart trying to break its way out of my chest. It has mostly been a slow gradual improvement in which I can gradually ramp up exercising and such with lots of rest breaks. Oddly, I got a shingles vaccine at the end of June that wiped me out for more than two weeks. After recovering I noticed my covid symptoms had decreased. I wonder if my immune system targeting the vaccine distracted it from any nasty covid bits wandering around my system. I guess time will tell. With covid it is important to eat well, avoid stress, get enough sleep and rest, and be nice to yourself. Find something good to do every day to break away from its grip.

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Kaya, your case sounds complex so I won't comment too much here. But ANYONE experiencing long haul symptoms has a problem with histamine levels and inflammation in the body. That is precisely why the body starts breaking down in so many ways, in so many systems. Western medicine treats symptoms one by one, and does not look at the whole picture (systemic inflammation).

You may "eat very healthy" but unknowingly be eating very high histamine foods (tomato, citrus, avocado, anything fermented etc). Once I cut these foods out, I improved drastically. It's not permanent, just long enough to get the symptoms under control. I already was not eating dairy or cane sugar but this type of diet also necessary to reduce inflammation as much as possible.

The diet/protocol mentioned, along with B-3, WILL help bring the immune system and nervous system into a much more "relaxed" state in order to be able to rest and actually recover.

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@denglish19

I'm so glad you feel supported by your local doctor. I think a lot of them know long haul is real, but they have no idea how to treat it so it's easy to dismiss...

The Liquid IV is very strong (way too strong) if you use it as instructed. Just ignore the package instructions -- we are using it in a different way. I watered it down and drank it throughout the day, so one packet was enough to put into 32-64oz of water. The reason it works is because of the high sodium, potassium and B-3 levels (yes! there's that B-3 again). It is vitally necessary for actual absorption of nutrients into the cells + the B-3 helps your body create more NAD, which is also vitally necessary. I wish you all the best!

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I am taking NAD in pill form now 2 a day…Hope it won’t be too much if my body starts to create more??? I will water down the liquid IV like u say. It took me quite awhile to find a Dr that understood about long COVID. My biggest problem besides fatigue is oxygen levels fluctuating. No more avocado or tomatoes or vinegar etc!! Thanks again!

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@denglish19

Kaya, your case sounds complex so I won't comment too much here. But ANYONE experiencing long haul symptoms has a problem with histamine levels and inflammation in the body. That is precisely why the body starts breaking down in so many ways, in so many systems. Western medicine treats symptoms one by one, and does not look at the whole picture (systemic inflammation).

You may "eat very healthy" but unknowingly be eating very high histamine foods (tomato, citrus, avocado, anything fermented etc). Once I cut these foods out, I improved drastically. It's not permanent, just long enough to get the symptoms under control. I already was not eating dairy or cane sugar but this type of diet also necessary to reduce inflammation as much as possible.

The diet/protocol mentioned, along with B-3, WILL help bring the immune system and nervous system into a much more "relaxed" state in order to be able to rest and actually recover.

Jump to this post

Hi denglish. That is great that your diet has worked for you and for others. Elimination diets are important to ascertain if there are foods/groups that increase inflammation. Autoimmune diseases/disorders are genetically complex and there is no one-diet-size fits all. I have navigated mine for decades and most of the foods you list do not result in inflammation for me. It would be good if you could include some peer-reviewed papers and links; I would like to read them. There are a number of papers on the histamine, other diets, and inflammation in ResearchGate.

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