Does anyone know if intense keppra side effects are normal?

Posted by annabcd @annabcd, Mar 6, 2023

This is about my husband. He started having seizure like episodes four months ago once or twice a month that lasted 5-20 minutes. After trying to convince doctors these weren't anxiety attacks they did an EEG which was interrupted by a seizure like episode. They immediately got him on Keppra without confirming epilepsy and since then he's been completely out of it, has memory loss, slurs his speech, uneven pupils sometimes and others he smells something burning, cough, panic, sees flashing lights and colors,loses contact with the environment and more. He has stopped taking it since Saturday morning and he's much more conscious but still had episodes mostly with his head hurting, panic, burning smell and getting super sleepy when this happens. Memory is getting better.

Does anyone know if all of these are normal as far as bad side effects of keppra go and if so when they will go away?

Interested in more discussions like this? Go to the Epilepsy & Seizures Support Group.

@chercairns

@smokry777 can you tell me if Keppra made you have highs and lows to the extreme? My sister started to take it because she had one seizure in 28 years. I really don’t think she needs it. Was on 500 mg I finally convinced her Dr to lower it in have. One minute she’s as happy as can be the next very irritated. She’s mentally delayed so hard for her to explain what she feels like. She also has been forgetting things which was one thing about her was her great memory. I don’t know how to sign up on here. Maybe you could help me. My name is Cher Cairns thank you 😊

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Only 1 seizure in 28 years? What type of epilepsy does she have? Is medication really needed. How old is she and does she have any other medical conditions? I need more information in order to try to answer your questions. Thanks, Brad

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@lyhay1973

Hello, I am wondering if anyone has any suggestions on how to help deal with side effects of Keppra? My daughter was diagnosed with seizure disorder over a year ago. She was put on Keppra at 500mg twice a day. 4 months later she had another seizure the doctors upped her to 750mg twice a day. Since then she has been seizure free for over a year now. But she has been battling fatigue due to the medication. Some days are better than others, she said at times she feels like a zombie. I’m just wondering if anyone has experience this and if there was a way to counter act the side effect.Thank youLisa

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Hi @chercairns
I am very sorry about your sister. I can not help you much with Keppra as I have not taken it. But I am sure others will be able to help you with that.
As to signing up for Mayo Clinic Connect, on this page you can choose in which groups you want to participate.
https://connect.mayoclinic.org/#ch-login-form
Did I answer your questions regarding signing up? If not, feel free to contact me.
Santosha

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@lyhay1973

Hello, I am wondering if anyone has any suggestions on how to help deal with side effects of Keppra? My daughter was diagnosed with seizure disorder over a year ago. She was put on Keppra at 500mg twice a day. 4 months later she had another seizure the doctors upped her to 750mg twice a day. Since then she has been seizure free for over a year now. But she has been battling fatigue due to the medication. Some days are better than others, she said at times she feels like a zombie. I’m just wondering if anyone has experience this and if there was a way to counter act the side effect.Thank youLisa

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Keppra can interfer with your potassium levels. I had a blood test done and my levels were really low so I was put onto a potassium supplement and I feel brilliant.It took about a month to work but it has changed my life. I also suffer fron tinnitus.How do I get rid of that?

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