Side effects from Keppra?

This event was the first in my life. Never had one since. I will see my doctor in September and tell him. Mine have been partial complex. No daydreaming. I knew what was happening prior to seeing my wife. Seizure free for over a year.

@royanthony
whether or notyour having seizures is a question for your doctor, I wonder if you could be experiencing absence seizures. Absences are generalized seizures, where people lose consciousness. Absent seizures, usually only last for seconds (normally less than 15 seconds) seldom more than 30 seconds but can last a few minutes but these are rare. People who have absences rarely ever have any memory of the seizure or what was happening prior to it.
How often do these forgetful episodes occur? What type of seizures do you normally have?
Have you mentioned these episodes to your doctor? Has anyone ever told you that you appear to be daydreaming?
Take care,
Jake

I have empathy for your husband and hope he's feeling better. But since you mentioned hallucination, I'm sharing the following. I have been on Keppra for over 10 years and it's worked well. I don't know if Keppra had anything to do with the following, but here it is.
1) I remember: walking on the treadmill and getting off
2) I don't remember: walking up the stairs and talking to my wife about my sister with whom I haven't spoken to in almost 10 years
3) Then I remember: walking back downstairs and getting back on the treadmill and finished my walk.
I had no typical partial complex seizure. Never experienced such a thing ever in my life. I welcome any comments. Could this have been some form of seizure? Has anyone experienced such a thing? Is this a hallucination?

@lluedke
I'm so sorry you're experiencing hallucinations. I once had a hallucination myself and it was incredibly frightening and distressing. Your neurologist's response is not nice at all. I can well understand your frustration with that lack of empathy and dismissive attitude. The first doctor who diagnosed and treated my epilepsy had a similar approach and was very uncomfortable with me trying to educate myself about my condition. As a result, I sought second and third opinions and changed doctors.
I'm also on Keppra, having started in December of last year. I haven't experienced hallucinations with this medication, but I know that individual responses to AEDs can vary significantly. Checking for it on the internet, hallucinations are mentioned as a possible side-effect: https://www.sciencedirect.com/science/article/pii/S1059131122002783.
Have you considered seeking a second opinion? If possible, I'd highly recommend seeing an epileptologist rather than a general neurologist. It has made a tremendous difference in my epilepsy journey.
Wishing you much better care!
Chris

I'm happy to know that @ysv12345.
Let's keep walking.
Chris

Hi @motobee,
I am doing well, thanks for asking.
Oh my heart goes out to you! Sleep issues are absolutely exhausting, both physically and emotionally. For me, it was the worst symptom I experienced during my first years of epilepsy treatment. Thankfully, with changes in my medications for epilepsy together with yoga practices and aerobic exercise, my sleep patterns have improved.
I understand that Zopiclone hasn't been very helpful in improving your sleep pattern, correct? What other approaches have you tried? Have you considered seeing a sleep specialist?
In the meantime, please be gentle with yourself on those rough days. Sleep deprivation is no joke - I know it well myself.
Sending you wishes for better sleep ahead. 💜
Chris

I have been on Keppra since 5/12/25. This week I have had multiple hallucinations. Contacted my neurologist. His response was just tough it out this will eventually resolve itself. Seriously!! Anyone else have this reaction and lack of empathy?

Everyone with epilepsy must understand the risks of stopping seizure medications abruptly or too quickly. I made that mistake at 15, thinking I knew better, and it nearly cost me my life. I ended up in status epilepticus and was placed in an induced coma for eight months. I lost all my memories, with my first recollection being March 14, 1971— the day a hit-and-run drunk driver caused my father to become a C-5 complete quadriplegic.

As @motobee pointed out, it is critical to never stop seizure medications without proper medical guidance. I had a psychologist friend who experienced status epilepticus in his driveway—not due to stopping medication but because it can happen unexpectedly. Unfortunately, he fell behind his garbage cans, and no one was there to help him, leading to a tragic outcome.

It's imperative that people take our warnings seriously. Stopping these medications quickly or without a doctor’s supervision can have devastating consequences. I'm not saying it always happens but why take a potentially deadly chance. Please prioritize your health and safety.

Take care,
Jake

Thanks. I keep on schedule thanks to Alexa 😀 I have a lot of dr appts but also a lot of hobbies and I’m in a online groups and exercise. I also sell on etsy and am a Bible reader so I’m busy and just treat this med stuff like a job. Of course the sleepless nights are the worst part of it. Not much of a tv person as I’m online too much esp when I can’t sleep😆

So sorry for the difficulties you go through. NO FUN !!
How do you manage to go through a day ? I have trouble with just a few sleepless nights, I can't imagine your suffering.
Wish I could give you some advice or help BUT I am not qualified to do so.
wishing you better health and a solution to your problems.