Does anyone have tips on showering independently with epilepsy?

Maintain positive attitude and don't let the fear of having a seizure define you .

Hi @hpedersen
Welcome to our group at Mayo Clinic Connect! I'm glad you found us, and I hope you'll find the support you're looking for here.
I agree with what @kobebeef2026 said. Don't let fear of having a seizure control your life. As I heard someone say recently: "Either you give in to fear and it wins, or you face your fear and you win."
On days when I sense seizure sensibility, I take extra precautions—like sitting on the floor of my shower to keep myself safer. But my seizures are mostly partial ones.
What kind of seizures do you experience?
Chris

Thanks, Chris.
I am asking for my daughter. She lives with me and is very independent. She has no warnings of a seizure coming - sometimes mid conversation or mid sip of coffee. The focal seizures last about 30 seconds, she doesn't lose conciseness, but if she is not sitting, she usually falls down. I seem to be having more fear than she does and appreciate the advice - Don't let fear of having a seizure control your life! I have added handles, non-slip stickers, and am contemplating a shower chair.

@hpedersen

Is there a time of day when she’s more likely to have a seizure? Before some very good seizure control, my seizures consistently, but without advance warnings, occurred between 5 pm and 10 pm. So my nightly shower became my morning shower.

Unfortunately, no.

My pleasure @hpedersen !
It's great that you've already added handles and non-slip stickers in the shower. A shower chair is an excellent addition and will definitely help with safety.
Like your daughter, my seizures don't follow a particular time pattern either. But @methel's observation was a very good one!
I have temporal lobe epilepsy, and my seizures are mostly focal ones. I experience both focal aware seizures and focal impaired awareness seizures. I've never fallen during my focal seizures, except when they evolve to generalized ones, which thankfully don't happen often.
I'm curious - what kind of epilepsy does your daughter have? What kind of symptoms does your daughter experience during her seizures? Does she have déjà vu or jamais vu feelings, unusual smells or tastes, sensations of heat or cold, or any other symptoms?
Chris

First question is -What are the frequency of your seizures
Second question is-Have you discussed this with your neurologist , if you haven't why not

@hpedersen
Yes, finished. Thanks for your support. She only started having seizures after college. There is a tiny “birthmark” on her brain. The meds keep grand males at bay, but she has at least 3 smaller seizures every day. There is no warning or sense that one is coming. They are medication resistant. Surgery was going to be done to remove the spot, but it is too close to her left side motor movement. A DBS has been implanted. It has a few settings and many power increases to try. Unfortunately, so far this hasn’t worked, but there is one more setting to try, so we are still hopeful. We have moved to Rochester and the Mayo doctors are amazing.

@kobebeef2026
This discussion has been closed.
This discussion/question was about supporting my daughter-
Answers to your questions:
3x a day
Of course

@hpedersen - I really hope the remaining setting on the DBS is useful for your daughter. Have the handles and non-slip stickers you put in the shower for her come in handy for her as of yet?

Hoping that other members in the Epilepsy & Seizures support group will have some further tips and suggestions on showering independently with epilepsy, such as @auroralm @jakedduck1 @cathy5161 @tch @dannoyes @randallshields56 @laura1961.