Hi. I am Greg and have been taking the big 3 since March 2024, first at three times a week then daily since last September. About 2 weeks ago I started having vision problems in my left eye. It's like there is a constant glare in my vision. I went to an eye doctor who has been monitoring my vision but he couldn't find anything wrong but he referred me to another ophthalmologist specializing in toxicity. Was your eye problem like mine?
@grgpc
Greg what did the opthomologist tell you was causing the eye glare? Was it toxicity of the ethambutol?
I have had a glare for the past 4 months. Optometrist doesn’t see any reason for it. Field vision test is ok.
@nancysh Hello Nancy,
Yes, I agree, as a person who depends on her vision for everything, I was very concerned about ethambutol. When I had my pre-medication eye appointment with my ophthalmologist, I expressed my concern. She told me she monitors people taking ethambutol VERY closely, with a thorough baseline exam, then at 3 months, and every 6 months after that. In over 30 years, she said she had only 2 patients with a problem, even though it is used a lot in our community because we have a large immigrant population prone to TB (the other main use for the med.) She told me to stop the medication and call immediately if I had changes in vision or eye pain, and she would see me right away - I trusted her, and that set my mind at ease. I took ethambutol for over 18 month, 6 months of that was daily, and did not have an issue.
Remember, all drugs, even "safe" over-the-counter meds like antacids, can have side effects. It is a matter of deciding whether the benefit of treatment outweighs the risk.
Have you scheduled an eye exam?
@sueinmn This is very reassuring, as I am about to see an opthalmologist tomorrow for a pre-treatment visit. It is terrifying to consider the side effects as I too use my eyes intensively for my legal work—and my voice and ears, etc.
@grgpc
Greg what did the opthomologist tell you was causing the eye glare? Was it toxicity of the ethambutol?
I have had a glare for the past 4 months. Optometrist doesn’t see any reason for it. Field vision test is ok.
@sueinmn This is very reassuring, as I am about to see an opthalmologist tomorrow for a pre-treatment visit. It is terrifying to consider the side effects as I too use my eyes intensively for my legal work—and my voice and ears, etc.