Does anyone have daily persistent headache all day, every day?

I have had a 24/7 headache for 6 years and 3 months. I have tried every option the 2 neurologist’s I have seen have. Including an MRI. Acupuncture, physical therapy, Chiropractic, nothing helps. I have seen NDPH articles on the internet, these described my condition perfectly. The 2 doctors I’ve seen had never heard of it. Not very encouraging.

I have had a 24/7 headache for 6 years and 3 months. I have tried every option the 2 neurologist’s I have seen have. Including an MRI. Acupuncture, physical therapy, Chiropractic, nothing helps. I have seen NDPH articles on the internet, these described my condition perfectly. The 2 doctors I’ve seen had never heard of it. Not very encouraging.

Welcome to Mayo Clinic Connect, @jnharris. That is a very long time to have a non-stop headache. It sounds like nothing has worked so far, and I'm sorry to hear that.

Are you looking at seeing another headache specialist? What do you think will be your next move?

omg mine is 6 years too. Nothing helps.

Right. Have you had blood patches in your spine for a spinal leak? I've had that done 6x and 4 spinal blocks.

Haven’t had that.

You may have a spinal leak. Why didn't your neurologist suggest this? A leak would cause a constant headache with relief lying down.

First, the obvious - do you have migraines?
Are you taking daily medication for such headaches? Tylenol, Advil, triptans and the like?
You could be experiencing "rebound headaches"...which will show up every day if you are in a cycle of taking headache pain medication daily. The brain gets "use" to pain relief and then wants more when a pain medication is not there - so you take more pain medication and the cycle goes on and on.
Could this be anxiety? Depression? Anxiety/depression literally affects everything in the body and daily headaches is certainly one of its manifestations. Dizziness goes along with that also. Any problems with your inner ear? Dizzy for sure, if so. Sinus condition? Seasonal allergies? Or allergies in the home? Living in an area with poor air quality? All of which cause headaches.
Are you under the care of a headache specialist/neurologist? If not - find one. Under a lot of stress? If so, find ways to de-stress, de-stress and de-stress!! Any head injury recently? It could even be years ago...a traumatic brain injury can show up at ANY time. I am proof of that...which morphed into an awful ongoing migraine condition. Are you drinking plenty of water? Dehydration could be the culprit. Skipping meals...low blood sugar? Headaches for sure.
Have you had a CT scan/MRI to rule out anything significant in the brain? My sense is all is well.
Use migraine sunglasses watching TV...your eyes might be sensitive to any kind of glare...no perfumes either.
Are you sleeping well? Lack of sleep is a recipe for any and all medical issues...headaches one of them. Naps might be beneficial for you. A sleep machine might help relax you trying to fall asleep, i.e. nature sounds, etc.
Blood pressure normal and stable? Spikes in blood pressure can cause headaches.
And lastly, sometimes the brain chemicals - for whatever reason - the neurotransmitters, are out of whack and such transmitters send pain signals to your blood vessels causing dilation which results in head pain.
A good neurologist can help you...and even such specialists, if they are being honest, will admit so much is unknown about the brain even in 2023. Do as much research as you can. There is the National Headache Foundation which has a wealth of information as well as the World Migraine Summit which has annual presentations by the top headache specialists in the country. 2024 is the next summit and it's free.
Do you have headaches tools in place? Ice cap, neck wrap, sunglasses, peppermint aromatherapy is excellent for headaches, the only "smell" I use. Ginger or peppermint tea to sip? Do you go to a spa for a headache relief treatment/massage? Works wonders - unfortunately doesn't last but it's great while it does. Use all the de-stressing tools you can muster up and use them daily...guided imagery, yoga, meditation, walks, prayer, mantras, inspirational readings. It's a battle. You need "weapons".
I more than feel for you as I am there with you. I get it. I wish you well!