Hi I have had headaches for many years now (Im 63), always temperature related so I'm guessing barometric headaches although noone has ever diagnosed this. 2 months ago I had a new headache start, severe searing pain in the morning as I start to wake and turn my head, then as I rise a more background headache with occasional stabbing throughout the day. Along with the headache constant lightheadedness, roaring tinnitis, left ear fullness and some pulsation and some minor episodes of vision issues. I have tried a few things (including seeing an osteopath) but caffeine and panadol works the best. Doesnt take it away but lessens it.
I am currently waiting to see a neurologist (4 month wait in NZ for a private neurologist!) My daughter-in-law is a neurologist and she has suggested it may be intracranial hypotension or paroxysmal hemicrania. Wondering if this has been ruled out for you.
Headaches suck, I hope you find your answer soon
I'm so sorry you are having headaches with dizziness. Have you seen headache specialist or Ear/nose throat specialist as of yet?
I used to have chonic daily headaches. Early in life, my migraines were cyclic with "female" cycles, becoming daily in my 20's . After many years of not being treated sufficiently, I refered myself to an endocrinologist and was diagnosed with Hashimotos Autoimmune thyroid disease and hypothyroidism. Starting treatment with levothyroxine helped to reduce the severity and frequency of headache pain. Years later with increasing migraine severity and frequency (no meds helped), I began to have a different type of nightly extremely severe headache in the middle of the night that was unbearable. I visited a Headache specialist in North Carolina and soon after a move, in San Fran; I was still very sick and visited headache specialist in early 2020 at Mayo clinic. Under preventative treatments from my Mayo physician, I now have migraines that respond to acute treatment about 4 episodes per month, and noctural MILD headaches maybe 5 times per month. My life is much improved, and I am very seldom having severe GI symptoms with either type of headache or feeling nauseated and in terrible pain daily.
Dizziness is a conceran for many reasons. If you feel you are severely dehydrated or at increased risk for a fall or falling asleep driving--or might be experiencing inner earissues--please do see a physician (if not already done). I hope you can find someone to help who can offer some options for relief. It can be very depressing and debilitating.
Hi I have had headaches for many years now (Im 63), always temperature related so I'm guessing barometric headaches although noone has ever diagnosed this. 2 months ago I had a new headache start, severe searing pain in the morning as I start to wake and turn my head, then as I rise a more background headache with occasional stabbing throughout the day. Along with the headache constant lightheadedness, roaring tinnitis, left ear fullness and some pulsation and some minor episodes of vision issues. I have tried a few things (including seeing an osteopath) but caffeine and panadol works the best. Doesnt take it away but lessens it.
I am currently waiting to see a neurologist (4 month wait in NZ for a private neurologist!) My daughter-in-law is a neurologist and she has suggested it may be intracranial hypotension or paroxysmal hemicrania. Wondering if this has been ruled out for you.
Headaches suck, I hope you find your answer soon
@josieglow Please don’t take this as medical advice, but what you describe is similar to what I was experiencing. I now use azelastine, an antihistamine nasal spray, that works for vasomotor rhinitis, non-allergic rhinitis, and sinus pressure. Antihistamines are known to narrow blood vessels. I believe that is the drug action that stops my headaches.
I am on tamoxifen which is a vasodilator (vasodilation is known to lead to hypotension). I had headaches similar to yours, first documented in March which seemed insignificant at first. I eventually had a brain MRI as they searched for reasons for my headaches. It was decided to lower the dose of tamoxifen, that helped.
Yet, when March came around, the headaches started again. I did not have noticeable sinus congestion but I had been through an viral upper respiratory infection recently. My doctor prescribed azelastine 1%, but it can be purchased OTC as a 1.5% solution (long term I’d rather be on the 1%, and health insurance makes it cheaper than buying OTC).
You had mentioned the changes in barometric pressure, which for me was possibly the repeated onset in March, but of course there are a lot of allergens in the air at this time, too. I also had a feeling of fullness right near my left ear, intense headache upon waking, headache through the day, and my tinnitus increased a lot with the higher tamoxifen (vasodilation?) dose. So along with barometric pressure issues, your possible inter-cranial hypotension sounds similar to my symptoms.
Anyway, this is what works for me. Hope you find an answer!
@josieglow Please don’t take this as medical advice, but what you describe is similar to what I was experiencing. I now use azelastine, an antihistamine nasal spray, that works for vasomotor rhinitis, non-allergic rhinitis, and sinus pressure. Antihistamines are known to narrow blood vessels. I believe that is the drug action that stops my headaches.
I am on tamoxifen which is a vasodilator (vasodilation is known to lead to hypotension). I had headaches similar to yours, first documented in March which seemed insignificant at first. I eventually had a brain MRI as they searched for reasons for my headaches. It was decided to lower the dose of tamoxifen, that helped.
Yet, when March came around, the headaches started again. I did not have noticeable sinus congestion but I had been through an viral upper respiratory infection recently. My doctor prescribed azelastine 1%, but it can be purchased OTC as a 1.5% solution (long term I’d rather be on the 1%, and health insurance makes it cheaper than buying OTC).
You had mentioned the changes in barometric pressure, which for me was possibly the repeated onset in March, but of course there are a lot of allergens in the air at this time, too. I also had a feeling of fullness right near my left ear, intense headache upon waking, headache through the day, and my tinnitus increased a lot with the higher tamoxifen (vasodilation?) dose. So along with barometric pressure issues, your possible inter-cranial hypotension sounds similar to my symptoms.
Anyway, this is what works for me. Hope you find an answer!
I’m 72 and I am experiencing waking up with headaches couple times a week. They last all day and sometimes two days. I take pain meds for chronic pain and they barely help. Front forehead area. I recently Reclast infusion in April and the Headaches started with that but went away after two weeks now only to start appearing consistently beginning in June. I went to ER and they want a brain scan which I am very afraid to do. They took bloodwork and ekg and my tests were ok. I’m at a loss. Anyone else have headaches like this or with Reclast infusuion for osteoporosis?
I’m 72 and I am experiencing waking up with headaches couple times a week. They last all day and sometimes two days. I take pain meds for chronic pain and they barely help. Front forehead area. I recently Reclast infusion in April and the Headaches started with that but went away after two weeks now only to start appearing consistently beginning in June. I went to ER and they want a brain scan which I am very afraid to do. They took bloodwork and ekg and my tests were ok. I’m at a loss. Anyone else have headaches like this or with Reclast infusuion for osteoporosis?
Babby, I have had a daily persistent headache for 6 years now, every day/all day. Neurologists cannot figure it out. I have done everything, including 4 spinal taps, 6 blood patches in my spine, every single migraine medicine, on and on. I am now doing PT because dizziness has been worse than ever. They think it is my eyes and an ocular migraine and vestibular migraine. Where do you live? Is there a headache center nearby. I go to Jefferson Headache Center in Philadelphia.
I have migraines every day. Just started a new mix of Botox, Topiramate, Qulipta and Ubrelvy. I am also weaning off some other meds like Gabapentin and Amitriptyline.
I have had daily headaches for about 4 years. Had mohs surgery on my forehead which is where pain is. Had brain scan bloods etc all clear. On amitriptyline which has helped but recently not relieving pain anymore. Am on 10 mg per day. Trying to see if upping the dosage will help but difficult getting to see a doctor in UK.
I’m 72 and I am experiencing waking up with headaches couple times a week. They last all day and sometimes two days. I take pain meds for chronic pain and they barely help. Front forehead area. I recently Reclast infusion in April and the Headaches started with that but went away after two weeks now only to start appearing consistently beginning in June. I went to ER and they want a brain scan which I am very afraid to do. They took bloodwork and ekg and my tests were ok. I’m at a loss. Anyone else have headaches like this or with Reclast infusuion for osteoporosis?
Hi there
I sympathise as I have had nearly daily headaches for about the last 15 years. I have had every possible therapy/ medication out there without success. My neurologist requested a brain scan, which did not explain the headaches, but DID show three small brain aneurysms for which I am now being followed. They would otherwise have gone undetected. Please reconsider the brain scan as it is safe and could explain your headaches. Take care
Hi there
I sympathise as I have had nearly daily headaches for about the last 15 years. I have had every possible therapy/ medication out there without success. My neurologist requested a brain scan, which did not explain the headaches, but DID show three small brain aneurysms for which I am now being followed. They would otherwise have gone undetected. Please reconsider the brain scan as it is safe and could explain your headaches. Take care
Hi I have had headaches for many years now (Im 63), always temperature related so I'm guessing barometric headaches although noone has ever diagnosed this. 2 months ago I had a new headache start, severe searing pain in the morning as I start to wake and turn my head, then as I rise a more background headache with occasional stabbing throughout the day. Along with the headache constant lightheadedness, roaring tinnitis, left ear fullness and some pulsation and some minor episodes of vision issues. I have tried a few things (including seeing an osteopath) but caffeine and panadol works the best. Doesnt take it away but lessens it.
I am currently waiting to see a neurologist (4 month wait in NZ for a private neurologist!) My daughter-in-law is a neurologist and she has suggested it may be intracranial hypotension or paroxysmal hemicrania. Wondering if this has been ruled out for you.
Headaches suck, I hope you find your answer soon
I have a lot more then headaches and dizziness I had this before but not as intense and I had aneurysm so it's scary
@josieglow Please don’t take this as medical advice, but what you describe is similar to what I was experiencing. I now use azelastine, an antihistamine nasal spray, that works for vasomotor rhinitis, non-allergic rhinitis, and sinus pressure. Antihistamines are known to narrow blood vessels. I believe that is the drug action that stops my headaches.
I am on tamoxifen which is a vasodilator (vasodilation is known to lead to hypotension). I had headaches similar to yours, first documented in March which seemed insignificant at first. I eventually had a brain MRI as they searched for reasons for my headaches. It was decided to lower the dose of tamoxifen, that helped.
Yet, when March came around, the headaches started again. I did not have noticeable sinus congestion but I had been through an viral upper respiratory infection recently. My doctor prescribed azelastine 1%, but it can be purchased OTC as a 1.5% solution (long term I’d rather be on the 1%, and health insurance makes it cheaper than buying OTC).
You had mentioned the changes in barometric pressure, which for me was possibly the repeated onset in March, but of course there are a lot of allergens in the air at this time, too. I also had a feeling of fullness right near my left ear, intense headache upon waking, headache through the day, and my tinnitus increased a lot with the higher tamoxifen (vasodilation?) dose. So along with barometric pressure issues, your possible inter-cranial hypotension sounds similar to my symptoms.
Anyway, this is what works for me. Hope you find an answer!
I have glaucoma so an antihistamine wouldn't work for me.
I’m 72 and I am experiencing waking up with headaches couple times a week. They last all day and sometimes two days. I take pain meds for chronic pain and they barely help. Front forehead area. I recently Reclast infusion in April and the Headaches started with that but went away after two weeks now only to start appearing consistently beginning in June. I went to ER and they want a brain scan which I am very afraid to do. They took bloodwork and ekg and my tests were ok. I’m at a loss. Anyone else have headaches like this or with Reclast infusuion for osteoporosis?
Babby, I have had a daily persistent headache for 6 years now, every day/all day. Neurologists cannot figure it out. I have done everything, including 4 spinal taps, 6 blood patches in my spine, every single migraine medicine, on and on. I am now doing PT because dizziness has been worse than ever. They think it is my eyes and an ocular migraine and vestibular migraine. Where do you live? Is there a headache center nearby. I go to Jefferson Headache Center in Philadelphia.
I have migraines every day. Just started a new mix of Botox, Topiramate, Qulipta and Ubrelvy. I am also weaning off some other meds like Gabapentin and Amitriptyline.
I have had daily headaches for about 4 years. Had mohs surgery on my forehead which is where pain is. Had brain scan bloods etc all clear. On amitriptyline which has helped but recently not relieving pain anymore. Am on 10 mg per day. Trying to see if upping the dosage will help but difficult getting to see a doctor in UK.
Hi there
I sympathise as I have had nearly daily headaches for about the last 15 years. I have had every possible therapy/ medication out there without success. My neurologist requested a brain scan, which did not explain the headaches, but DID show three small brain aneurysms for which I am now being followed. They would otherwise have gone undetected. Please reconsider the brain scan as it is safe and could explain your headaches. Take care
Had that, but thank you Richard.