Does anyone else have neuropathy?

I also have PN supposedly caused by Rheumatoid Arthritis I think mine has progressed since diagnosis in May after 3 months in hospital and rehab after i was told i wouldnt walk again but with determination and exercise and physio i am now walking again I have just had Rituximab Infusions and hoping it will help Has anyone had this medication and did it help?

I am so glad to see this post, I also have tingling and numbness in my toes. I can’t seem to find shoes that are comfortable and I have achy ankles, knees and hips. It was worse when I was on levequin but it’s still bothersome. I mentioned to my dr. It might be from ethambutol and she said she didn’t think so. I only have 4 month left so she wants to keep me on the ethambutol.

I will mention that acupuncture helped manage my numbness and tingling in feet plus fibromyalgia related pain all over.
The sad truth is that people who can afford seeing an acupuncturist, podiatrist or having an evaluation and treatment at the Good Feet store (mine with shoes cost $1900.) are able to manage the foot problems. My podiatrist recommended Drew or Brooks shoes with laces. They are expensive, but they have kept me from breaking anymore foot bones. The Good Feet inserts got rid of foot, ankle, knee and back pain.
One more point about MAC treatment: stick with it unless you have eye problems. My MAC destroyed a lobe in my right lung. I now have Bronchiectasis, too. I have been exacerbation free for 10 years with daily management, nebulizing and postural drainage.

I am so glad to see this post, I also have tingling and numbness in my toes. I can’t seem to find shoes that are comfortable and I have achy ankles, knees and hips. It was worse when I was on levequin but it’s still bothersome. I mentioned to my dr. It might be from ethambutol and she said she didn’t think so. I only have 4 month left so she wants to keep me on the ethambutol.

I am so glad to see this post, I also have tingling and numbness in my toes. I can’t seem to find shoes that are comfortable and I have achy ankles, knees and hips. It was worse when I was on levequin but it’s still bothersome. I mentioned to my dr. It might be from ethambutol and she said she didn’t think so. I only have 4 month left so she wants to keep me on the ethambutol.

I also have PN supposedly caused by Rheumatoid Arthritis I think mine has progressed since diagnosis in May after 3 months in hospital and rehab after i was told i wouldnt walk again but with determination and exercise and physio i am now walking again I have just had Rituximab Infusions and hoping it will help Has anyone had this medication and did it help?

Well one thing is for sure I am determined as well, do not give in to anything if I can help it, so happy to see that you with determination are walking again. I also have a knee problem, mild arthritus, torn miniscus, and he mentioned something else, supposed to go for knee replacement but around here that can take two years or more, so am looking into other alternatives . Makes it difficult when you are in pain for walking from a couple of different issues, but have come across others who had the same problems and they went through physio and such and it has helped so will be getting the paper work to do this on my own. I miss not being able to do my exercises and strength lifting, which also leads to weight gain, not a good thing to have if you have a sore knee Noticed the PN got a bit worse one day after a reflexology treatment, but it was the first one, the next day felt better, so will continue with that as well,. Gotta find something that works I do not like taking meds all the time.

Hi Maremouse. Do you have MAC or another infection as well as bronchiectasis? How does that impact your walking/arthritis issues? Good for you to keep at it!