Does anybody have gnawing stomach pain just above bellybutton?

I have pain below that area,seems possibly connected with coffee

Yes Functioan Dyspepsia , . Check it out. I have AFib do to Gerd anyone else been told that?

I'm suspecting Gerd too now. It's just so strange that it hurts so far down around navel but Gerd is what I have been struggling with for years.

Hi @tinatoren Your symptoms sound very much like my husband’s situation a few years ago. I’ve written about his experience in this discussion: https://connect.mayoclinic.org/comment/610254/
That was 2021. My husband is now off all of his stomach meds. The FD gard and the anti-anxiety meds mentioned in the discussion really worked well for him.

It’s in a support group about Functional Dyspepsia, here’s the link: Help with stomach and abdominal discomfort when lying down
https://connect.mayoclinic.org/discussion/help-with-stomach-and-abdominal-discomfort-when-lying-down/

Hopefully you’ll find some information that’s useful with other members @riflemanz64 @rashida.

As @lvon suggested, has Functional Dyspepsia (FD) been mentioned by your gastroenterologist? Have you tried FDgard?

Thanks for replying!
I'm in Sweden. Never heard of FD guard but I thought peppermint was a big nono since it relaxes esophagial sfincter. I was offered tricyclic meds by a net gastro a few years back but that too relaxes the sfincter.
I don't think I have fantom pain. What I mean by that is yes of course I have a supersensive nerve after 30 years of acid exposure but up until 3 months ago I did get better from ppis even if it took a long time. Also when going off them my symptoms would come back eventually and worsen over time. My problem now is that I have neurological damage since December with total body paresthesia including face, nose, lips plus trembling lips and myoclonal jerks, dizziness head pressure in back of head and I'm pretty much bed ridden. I have been off acid blockers for weeks and slowly my stomach pain have increased to an unbearable level where I feel like someone is trying to cut me in 2 right above belly button. Since eating and baking soda has taken the edge off for a while I now assume it's a stomach and/or esophagus problem.
If it was nerve pain it would be constant and not get worse and worse. My fear now is that both pepcid and Prilosec cause my nerve damage to worsen in which case I have no hope because I can't live with stomach pain on this level.
The people I read about had their paresthesia go away after discontinuing meds but mine hasn't so I don't know what is happening I just know that every hour is torture!

@loribmt @tinatoren I definitely have GERD as I get chest pain due to acid reflux. I have tried getting off Lanzoprazole but that is the only medication that he,ps with my reflux. I also have occasional stabbing pain in my upper right quadrant, just under the ribs which I just tolerate since no doctor can tell me what causes it, and ultrasounds show nothing.

My husband really suffered with all of those symptoms too. He’s doing well now and after 2 years is off all the medications. Though he will still have moments of what he refers to as ‘a clenching or tightness’ in his stomach on occasion. It’s awful when you can’t find the cause.

Oh my gosh, @tinatoren, your symptoms sound awful! I just have to ask, did you quit the Prilosec and Pepcid cold turkey? If you’ve been on those for years and just stop there is such a thing as a rebound effect. I took protonix for several years during chemo and had to slowly taper so that I didn’t have acid rebound. I still did have some issues, but it was mitigated with taking OCT antacids to compensate.

My husband also had reservations about using oil of peppermint and the recommendation of FD Gard from his gastroenterologist. But both worked quite well in easing the ‘cramping’ from his Functional Dyspepsia.

What did help the most was in the link I posted before. He tried a tricyclic med first but that didn’t have the desired results, so his doctor switched to another anti-anxiety med. He was suspicious too because he felt if that the sphincter was relaxed it would allow more acid to reflux. But that wasn’t the case and it greatly improved his condition. His ulcer healed completely.
Your situation sounds pretty dire. Have you had a recent endoscope to rule out an ulcer?

Thanks for your reply. Yes most people seem to get pain higher up than me. I'm trying pepcid now to see if there's any difference in the pain. I can be up 30 min before the pain is too strong. I'm also getting pain behind my right ribs behind the liver. Maybe my pain is coming from 2 things. Mri didn't show a reason for the pain either. Waiting for an ultrasound now. Maybe it will pick up something. The area about an inch above my bellybutton is so sore that I can't even touch it but sometimes it gets a little better.

Yes. I had an endoscopy in January and they couldn't see anything visually wrong. I'm still waiting for biopsy results. I've had 9 endoscopies over some years and only one showed esophagitis grade 1 despite unbelievable pains. I would have cough, reflux, wheezing and burning pain and hunger during the night. I recently came across an article by a doctor called Dr Jamie Koufman that actually talks about that type of reflux. I also found articles on pretty severe irritation of the vagus nerve even from non erosive esophagitis. The theory is that the acid penetrates the mucosa layers all the way to the nerve even though you can't see it. I used to always get better with Prilosec but it took a long time. This december however I had eaten 40mg of Nexium and not gotten better plus I developed the nerve and brain issues. At first I thought it might be the vagus nerve but then I read that my facial tingling must come from brain because the facial nerves are in the skull. At the same time some reflux people swear the have tingling lips?
It's all so strange. Hovever I also feel dizzy and have myoclonus jerks of head when I use my shoulders etc so something is going on in my brain too.