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@tinatoren

Thanks for replying!
I'm in Sweden. Never heard of FD guard but I thought peppermint was a big nono since it relaxes esophagial sfincter. I was offered tricyclic meds by a net gastro a few years back but that too relaxes the sfincter.
I don't think I have fantom pain. What I mean by that is yes of course I have a supersensive nerve after 30 years of acid exposure but up until 3 months ago I did get better from ppis even if it took a long time. Also when going off them my symptoms would come back eventually and worsen over time. My problem now is that I have neurological damage since December with total body paresthesia including face, nose, lips plus trembling lips and myoclonal jerks, dizziness head pressure in back of head and I'm pretty much bed ridden. I have been off acid blockers for weeks and slowly my stomach pain have increased to an unbearable level where I feel like someone is trying to cut me in 2 right above belly button. Since eating and baking soda has taken the edge off for a while I now assume it's a stomach and/or esophagus problem.
If it was nerve pain it would be constant and not get worse and worse. My fear now is that both pepcid and Prilosec cause my nerve damage to worsen in which case I have no hope because I can't live with stomach pain on this level.
The people I read about had their paresthesia go away after discontinuing meds but mine hasn't so I don't know what is happening I just know that every hour is torture!

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Replies to "Thanks for replying! I'm in Sweden. Never heard of FD guard but I thought peppermint was..."

Oh my gosh, @tinatoren, your symptoms sound awful! I just have to ask, did you quit the Prilosec and Pepcid cold turkey? If you’ve been on those for years and just stop there is such a thing as a rebound effect. I took protonix for several years during chemo and had to slowly taper so that I didn’t have acid rebound. I still did have some issues, but it was mitigated with taking OCT antacids to compensate.

My husband also had reservations about using oil of peppermint and the recommendation of FD Gard from his gastroenterologist. But both worked quite well in easing the ‘cramping’ from his Functional Dyspepsia.

https://www.healthline.com/health/benefits-of-peppermint-oil#uses

What did help the most was in the link I posted before. He tried a tricyclic med first but that didn’t have the desired results, so his doctor switched to another anti-anxiety med. He was suspicious too because he felt if that the sphincter was relaxed it would allow more acid to reflux. But that wasn’t the case and it greatly improved his condition. His ulcer healed completely.
Your situation sounds pretty dire. Have you had a recent endoscope to rule out an ulcer?