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@loribmt

Hi @tinatoren Your symptoms sound very much like my husband’s situation a few years ago. I’ve written about his experience in this discussion: https://connect.mayoclinic.org/comment/610254/
That was 2021. My husband is now off all of his stomach meds. The FD gard and the anti-anxiety meds mentioned in the discussion really worked well for him.

It’s in a support group about Functional Dyspepsia, here’s the link: Help with stomach and abdominal discomfort when lying down
https://connect.mayoclinic.org/discussion/help-with-stomach-and-abdominal-discomfort-when-lying-down/

Hopefully you’ll find some information that’s useful with other members @riflemanz64 @rashida.

As @lvon suggested, has Functional Dyspepsia (FD) been mentioned by your gastroenterologist? Have you tried FDgard?

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Replies to "Hi @tinatoren Your symptoms sound very much like my husband’s situation a few years ago. I’ve..."

Thanks for replying!
I'm in Sweden. Never heard of FD guard but I thought peppermint was a big nono since it relaxes esophagial sfincter. I was offered tricyclic meds by a net gastro a few years back but that too relaxes the sfincter.
I don't think I have fantom pain. What I mean by that is yes of course I have a supersensive nerve after 30 years of acid exposure but up until 3 months ago I did get better from ppis even if it took a long time. Also when going off them my symptoms would come back eventually and worsen over time. My problem now is that I have neurological damage since December with total body paresthesia including face, nose, lips plus trembling lips and myoclonal jerks, dizziness head pressure in back of head and I'm pretty much bed ridden. I have been off acid blockers for weeks and slowly my stomach pain have increased to an unbearable level where I feel like someone is trying to cut me in 2 right above belly button. Since eating and baking soda has taken the edge off for a while I now assume it's a stomach and/or esophagus problem.
If it was nerve pain it would be constant and not get worse and worse. My fear now is that both pepcid and Prilosec cause my nerve damage to worsen in which case I have no hope because I can't live with stomach pain on this level.
The people I read about had their paresthesia go away after discontinuing meds but mine hasn't so I don't know what is happening I just know that every hour is torture!