Does anyone with Myelofibrosis suffer musscle spasm?

Posted by sharonm2024 @sharonm2024, Aug 24, 2025

At first I thought they were just cramps or what I call charlie horses. Then I was told they were muscle spasms. They happen at night in either leg. Many times only in my ankles other times in my calves and thighs. I have to get up and walk around until they go away, sometimes they are so painful I can't walk and break out in a sweat, nausea. Very disruptive of my sleep. I am on Jakifi 10mg 2Xs a day. My Doc. says to drink water melon juice or tonic water. I've tried both.

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I have been on Jakafi for 3+ years. The leg/feet cramps started about 10 months ago. I have tried the pickle juice and liquid in with no relief. I guess I will give the spray a try.

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